Breast Cancer Now Forum

Morning. I was moved onto Pax by my Oncologist when Cape didn’t work for me. I’ve just had treatment number 10. I have it weekly for 6 weeks and then a week off. I’ve found it really do-able with the only real side effect being tiredness. I do get a horrible taste in my mouth for about 4 days and I get the steroid flushed face for 2 days after as well but both of these are pretty manageable. I work full time so the biggest challenge is having to be at the hospital for 3-4 hours every week.  It had a scan yet but I know my blood results are improving every week so hopefully I that’s a good sign.  Hope it’s all going ok for you xx ... View more

Hello! I was on Abemaciclib but my liver function went haywire so I had to come off it. Had a long period of not being on any treatment which was scary but I’m now on cape and I’ve had no problems with it so far. Sending you hugs xx ... View more

Sandra11 - I agree, I was really surprised at how much radiotherapy affected me emotionally. If you ever want to meet up in York sometime let me know. ... View more

Well done to Sandra11 and absolutelyannie who I think have finished treatment today! I finished last Thursday and other than having to have a nana nap every day I’m feeling ok. My skin is fine apart from redness underneath my boob. The curse of the large breasted woman!   I hope everyone else is doing ok! xx ... View more

Well done Jewels994.  I’ve got my last session today and I know exactly what you mean ... it all feels so unreal that we’ve been through so much and then that’s it - end of active treatment. ... View more

Yay! Well done Oots and Nelly McNelly for finishing active treatment! Xx ... View more

Sandra11 - Wasn’t it amazing to manage to meet up especially as St James’s radiotherapy department is huge! We were sitting next to each other in the waiting room and then we were on machines 9 and 10 so we got zapped next door to each other too!    Oots - thank you for your message. I’m using R1 and R2 and moisturising 4 times a day.  My skin is good apart from this patch under my boob. I was worried as the nurse yesterday seemed surprised it had broken down “so soon” but I talked to the lovely radiologists today and they said my skin was bearing up really well so I’m feeling much better about it. It’s pink and a bit hot but it’s not sore at all!   Hope everyone else is doing ok!   xx ... View more

How’s everyone doing?   I’ve got my 14th (out of 20) session today and I’m finding it tough going. It’s nowhere near as bad as chemo but I’m surprised at how much it’s hit me emotionally. I’m not feeling too tired yet but I’ve got large boobs so the skin on the fold underneath my boob is starting to break down and I’ve still got 7 more zaps to go 😩!    I’ve been on Tamoxifen for about 6 weeks now and other than the hot flushes I’ve not experienced any adverse side effects. I’m having acupuncture at the Breast Cancer Haven and it’s definitely helping.   Thinking of you all in this very hot weather!   Nicky   xx   PS Hopefully see you this afternoon Sandra11. I’d say I will be holding a rose and carrying a newspaper but that’s too much to organise! I’ll be the one with the brown rucksack.     ... View more

Hi Sandra11   Im on machine 9 so we’re in the same waiting area. My appointments are always at a different time each day but I’m there on Wednesday at 5.20 so we might see each other!    I couldn’t get a prescription but decided to buy the R1/R2 as there were a lot of positive reviews. So far so good with it and I’ve done 11 sessions so far.   Nicky xx ... View more

Sandra11 are you at St James’s? I’m there!   Nicky ... View more

I’m using R1/R2. I’ve only done 9 sessions but so far I’ve had no pain, soreness or redness. Fingers crossed it works for the remaining 11 sessions.  Like you say, it’s not cheap and the little sachets are a bit of a faff but so far I’ve been impressed.   Nicky   ... View more

Morning everyone   I had my 8th (out of 20) session yesterday and it all seems to be going ok. My skin is holding up well so far but I’m noticing I’m getting tired. I’m trying to drink 2.5 litres of water a day so maybe my tiredness is down to all the trips to the loo! 😂   I hope everyone else is doing ok.   Nicky xx ... View more

Hi everyone   I had my first of 20 radiotherapy sessions yesterday. I was diagnosed in December and had 6 lots of chemo (2 of EC and 4 of the dreaded Docetaxol). I had a lumpectomy and ANC in April. I’ve been feeling really good - the further I get away from chemo the better I feel - and I recovered very quickly from surgery. I really didn’t enjoy the feeling of being a cancer patient again yesterday when I went for my radio!! The session itself was fine and I’m glad I’ve got the first one done! I’ve just got to grit my teeth and get through the next 19 sessions!   Hope everyone else is ok xx ... View more