Hi Alwayshope, I am very pleased that Paclitaxel has worked so well for you and that you will be able to continue on it. That is great news. I am sorry that you have had a 4 week gap and had to chase to make things happen. I have had similar issues to you with my treatment. My Consultant says things like 'I want to see you again in two weeks', or 'you will go onto this new treatment next week' and then I am unable to get an appointment. The consultants have the power, not us and they should be responsible. Like you I have learnt that I need to be proactive and on top of appointments or I might end up with nothing. I do understand that if the consultant says I will start a new treatment 'next week' there truly might not be a space but then he shouldn't say it, as I take what he says at face value. I have had to 'fight' my corner several times and when you feel vulnerable it is hard. Your consultant was probably thinking aloud when he said that you should not have stopped treatment, but he shouldn't have said it as its only impact would be to worry you. I agree that it was up to him to make the appointments and that you should not have to chase but unfortunately we need to continue to be proactive. I often wonder what will happen when I become too ill to keep an eye on things. Wishing you all the very best. xx Bee
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