Breast Cancer Care Forum

Hi All   thank you mini mad once again for your reassurance (feel like I’m a broke record) and thank you Becki for letting us know how you got on with your first pax. Glad to here it’s so far so good for you 🤞🏽 I do hope that continues for you. Let me know how your getting on as the week goes on. Hope everyone has a nice weekend.  lisa xxx ... View more

hi mini mad    Did you find you had any days when you felt “normal” I think my main concern is not having the couple of weeks of feeling ok in between. Am I going to be wiped out for 12 whole weeks? I’m not expecting it to be a walk in the park Iv just enjoyed having these times of feeling myself in between my treatments.   Lisa xxx ... View more

Hi mini mad    Thank you! 😘 I think you’ve offered me some reassurance before.  I think my main concerns are 1. the frequency in which it’s given, Iv been having EC every 3 weeks and I’m finding that for a week of that I’m very fuzzy headed and tired but then I have 2 weeks where I’m feeling “normal”. I’m worried about not having that break from it and spending a whole 12 weeks wiped out. 2. A whole new set of side effects to deal with 😳 I’m sure I’ll think of other things to pick your brains about to 😆🙈    thank you so much for offering your advice    Lisa xxx ... View more

Hi Becki    lovely to hear from you. Sorry to hear you’ve had a few problems which have delayed your treatment. I’v got my last EC on Friday 18th then I’m moving onto Paclitaxel like you. Please let me know how you get on with it as I’m getting quite anxious about starting a different type of chemo. Feels like your starting all over again doesn’t it?! I’m hoping like you that its correct about the EC being more harsh. Are you having it weekly? Doesn’t give you much time to recover in between 😳    Lisa xxx ... View more

Hello ladies.  Sorry for late reply wolvesgirl. I have indeed been enjoying these chemo and fuzzy head free days! im 11 days post EC now and feeling pretty good.  Been trying to get out walking as much as I can with my dog and meeting up with friends.  blackcat I’m so glad you managed to get onto the look good feel better workshop, I really can’t recommend it enough to all you other ladies.  Hope everyone’s ok?  big hugs to everyone  Lisa xxx ... View more

  Hi Wolvesgirl    Hope your feeling ok after your latest treatment?!  I’m slowly feeling like I’m back in the land of the living (day7) stomachs a bit tender today though.  Hoping to get out tonight to watch downtown abbey with my daughter so just having a chilled out day.   Hope everyone’s ok. xxx  ... View more

  Morning ladies    Wolvesgirl glad your meal out went ok I do think it’s more us that feel conscious of it rather than other people even realising we have one on. Glad your feeling more positive too! I’m 5 days post EC now and feeling ok just very tired. I am finding that these first few days after chemo I feel a bit down and less positive then as I start feeling more myself I get my mojo back and feel very upbeat and positive again 💪🏽. I too am TN. Everyone’s treatment plans are a bit different aren’t they. I haven’t had surgery yet. I was offered to have it before chemo but I said whatever they thought was best and I think they thought chemo first to blast as much of it away as possible. its a lovely day here today so going to drag myself out for a walk.    Lisa xxx   ... View more

  Hi Wolvesgirl    I too wear my wig all the time when out and I’m starting to get used to it now. The only bit that’s getting on my nerves and I don’t know if anyone else is getting this is were it sits on my collar it obviously doesn’t sit like normal hair and getting on my nerves a bit. Apart from that though I don’t think those that don’t know even notice. Iv been into work a few times and Iv even had people saying how lovely my hair looks. I had it cut shorter once I knew it was going to fall out then got a wig very similar apart from the fringe. Those friends that do know said how real it looks. I’m still quite  conscious of it but getting more used to it now.   Hope you have a lovely night out 😘 xxx  ... View more

  Hi Spottycotty and everyone else.   iv not been feeling too bad thank you. Not sleeping great even though I’m feeling so tired. The steroids are keeping me awake. An achy arm still but seems to have eased a bit from last week. I’m Currently sat with a hot chocolate and a heat pad on my arm 😆. Managed a little walk to my local shops today, albeit a woozy headed one it was nice to get some fresh air after being inside most the weekend. I do find the EC does make my head fuzzy 🤪 been a few comedy moments of me saying random things and also my 18 year old daughter looked at me slightly worried as I sprayed air freshener onto the work top and wiped it down instead of antibacterial spray! Anyway hoping I can muddle my way through this week somehow.     Nice to catch up on how everyone is.  Hope everyone’s feeling as well as possible 😘 xxx ... View more

    Thank you ladies 😘    weathers been horrendous here too so definitely a curling up on the sofa weekend. Iv actually transferred myself to bed now to watch tele so that’s me set for the night. Slight nausea and starting to feel verrrry tired now so most likely be asleep soon if this sickness keeps alway 🤞🏽  I think your so right about the nurse Julie! I was actually going to say I don’t want you to give me it if she was there today 😂😂 she wasn’t though so all was good. The nurse I had today was so lovely 😊    I’ll go off into my “chemo coma” now and update you all soon.   Thanks again for all your well wishes 😘     Lisa xxx ... View more

    Thank you Shi once again for your advice.    Im all done and back home now. It was all fine the nurse was lovely. I went over my concerns and she said the message had been passed on and they’d kept my meds out of the fridge once they’d been brought up and she put it through a lot slower than the nurse last time and into a different vein.  Another one down.. so one more EC to go in 3 weeks then on to paclitaxel.  Im feeling ok at the minute but it’s been about tea time when Iv started feeling sick the last couple of times so I’m just waiting for that to kick in. Pjs are back on and all cozy on the sofa.    Hope everyones ok.  Lisa xxx ... View more

    Spottycotty that must of been awful for you! Not a nice experience at all. Thank you Shi for the advice 😘 I am getting quite anxious about tomorrow now with my sore veins 😫 the ward sister assured me that when the medication is brought up it will be kept out of the fridge so it’s not as cold as I’m in at 10 and it’s only brought up at 9.. and she’s also having a word with the nurses to administer it slowly as I told her I felt it was forced through quicker last time.. so fingers crossed all will be well 🤞🏽😫    Nice to catch up with everyone’s progress. Hope everyone’s feeling ok 😘 Lisa xxx ... View more

    Hi Spotty scotty   my arms hurting too from my second round of EC! I’m due my 3rd on Friday and I’m really not looking forward to it as I’m worried it’s going to hurt! I feel my 2nd was pushed through quicker than the first so Iv mentioned that to the pharmacist and chemo ward sister today and she’s going to tell the nurses to do it slower this time and they’ve told me to use the bags you put in the microwave that others on here have mentioned to ease it and also rubbing ibuprofen gel into it too also helps.    Lisa xxx ... View more

  Hi ladies    hope your all well? I have indeed been enjoying my chemo free days! Just sat in the hospital waiting for my bloods to to taken ready for my 3rd EC on Friday. Iv been getting slightly anxious about it as my arms been aching and still a bit tender round the vein where the chemo is put in. Going to mention it in clinic today.  Im usually at the gym 4 times a week as well as working 40 hrs so I’m actually struggling to sit still and relax! I work in a health spa so have been taking advantage of my managers offer of using the new sound frequency bed whenever I want. It’s soooo relaxing 😌 you lay on a water bed in a dark room which sends vibrations up and down your body while listening to binaural beats through head phones. Really good for making me relax a bit more. Anything’s worth a try.    Hope everyone is as well as they can be. Lisa xxx ... View more

    Hi Ladies    hope your all ok. I’m now 12 days post EC and feeling pretty much back to myself so trying to make the most of it and been for a cuppa with friends today.  Blackcat Glad you got booked onto the look good feel great.. you were saying about the magnetic eyelashes.. my friend was literally just telling me about those today. Also worth a look are the C lashes that eyelure do, they have them in boots or you can get them on line, I looked in Superdrug for them but couldn’t see any. There were designed by a lady that’s been through cancer herself and found the usual false lashes hard to put on when you’ve no lashes there to put them onto! The C lashes have an invisible strip across the top which stops them dropping down. Iv not tried mine yet as I still have my lashes in tact... for now! Worth a little look though.  No reason why us ladies shouldn’t still look glam when going through such a rubbish time..(saying that I most definitely don’t look glad the week after my treatment 😆)   big hugs to everyone Lisa xxx  ... View more

    Hi ladies    I feel very much the same as you Becky in that I feel like 2 different people. How I feel today in contrast to how I felt last week is totally different. I think it’s just a case of listening to your body and looking after it.    So today iv been to the look good feel great session that are available to us.. have any of you ladies been to one of these?? If not I’d highly recommend! The goody bag you get to take home is just amazing!! No 7, Mac, Clinique, Rimmel and many more top quality skin care and makeup items in it. They give you tips on how to look after your skin while going through chemo and how to do your brows and make up. I just found it a lovely morning with a group of lovely ladies who are all going through the same thing. And of cause you get to take the goodies home with you. Wish I could put a picture on to show you all!    Lisa xxx   ... View more

    Hi mini mad    Thank you so much for your words of reassurance! I am hoping I can get through it and put up with all the different side effects 😳 it’s all very daunting.  Iv been sooo exhausted these past 2 days more so than my first cycle. But I feel a lot brighter today (day 7) and have got washing out on the line (so satisfying!) and had a walk into my local town which is about a 15 - 20 min walk. Back home now with my feet up and a cuppa.  I have also found this time that my vein where the canullar was is bruised! And a bit sore. Hoping this dies down before my next cycle!   hope all you lovely ladies are ok and are able to enjoy your weekends.   lisa xxx ... View more

    Hi ladies   iv had trouble trying to get on here the past couple of days. Not sure if anyone else has? Anyway back on now! Hope everyone’s ok and the Wembley trip went ok?? Im now 4 days post 2nd EC and feeling ok 🤞🏽just very tired.  Becki our treatment sounds very similar I’m having EC for 4 cycles but mines every 3 weeks.. I’m then going onto 12 weeks of Paclitaxel which I’m also worried about the change and different side effects that will occur 😫 also the fact that it’s every week seems a bit brutal!  mini mad any info or advice you have regarding this would be amazing! And I’m so pleased your through it now 😃👍🏼    Lisa xxx ... View more

    Hi Wolves girl.    Glad your feeling better and a bit more positive about your treatment 👍🏼 Also great you have a wig at the ready just in case!    Im back home now after my 2nd EC. Had a stronger anti sickness before the chemo this time as I was sick on the evening after the first lot. Iv also got my anti sickness bands on that others have recommended so fingers crossed they do the trick.  Iv also got some stuff for constipation to take 👍🏼😃 that’ll keep things moving a bit better hopefully.  My wig has thankfully remained on my head! 😂 it’s windy again today! and I walked to the hospital as it’s not far from my home..the fear was there it might blow away 🙈 Think I’m getting a bit more confident it won’t and a couple of the ladies on the ward today didn’t even realise I had a wig on!!!   hope everyone is ok and have a good a weekend as possible xxx ... View more

    Hi ladies    Sorry to hear that some of you are struggling but we’re all here for each other so don’t feel bad about coming on to vent your frustrations.. although family and friends are there for us we there not going through what we are so don’t really understand how we’re feeling.  I had my bloody done yesterday ready for my next EC tomorrow, can’t believe it’s come round so quickly! I’m every 3 weeks Becky so I suppose my body’s got longer than yours to recover before my next one. My hair started coming out by the handfuls 2 days ago and felt like straw 😫 so Iv just been for the shave this morning and am now wearing my wig. Just sat in the car wondering if I dare get out as it’s a bit blustery here today! I’m a bit concerned it’ll blow off!! 😳😂    take care ladies and I hope those that are struggling feel better soon.   Lisa xxx  ... View more