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Brumrunner
Member
since
29-07-2019
15
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4
Hugs
25-09-2019
03:51
2 Hugs
I'm about to start RadioRx, and wonder what people might recommend to minimise/ treat the skin side effects? I know to moisturise - but are there any to avoid, or use?
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25-09-2019
03:45
2 Hugs
I questioned this too as it secretes progesterone, and not oestrogen, but all the oncologists I spoke to (I'm a Dr so could pull in some contacts) said to take it out immediately (and, indeed, it is also an absolute contraindication on current UK contraception guidelines, and the usage leaflet for the Mirena also states it should not be used). I wasn't happy with this plan (I've loved no periods!), but on the information I gained I went ahead and had it removed. It's a personal choice though, obviously - as are all the treatment options....
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12-09-2019
08:21
You sound like you are doing amazingly - good luck for the journey. But... I wonder if getting going on the counselling/ therapy front now might be useful: get in there early to prevent relapse/ minimise the drop in your mental health? And, yes, perhaps getting on the antidepressants now might be a good idea with what you have already been through. I had to cancel a longed for holiday - but am now getting going on sorting something out for the future, which is also keeping me going. Take care x
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05-09-2019
08:46
Iron deficiency anaemia is not normally caused by a kidney stone..... Make sure you have been thoroughly checked out regards this (your GP is your best place - make sure they have also checked your thyroid tests and for coeliac disease)
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05-09-2019
08:39
p.s I presume you have had yourself checked out for other causes such as anaemia...
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05-09-2019
08:38
If you have had surgery or radio - I presume this is your body still healing itself If not - then, yes, this is normal with the stress of it all. Be gentle and good to yourself....
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05-09-2019
08:37
Yes - my friend told me this (I wasn't warned) too! She got me a soft padded bra top from Asda she herself had used (I think they were £6) - very comfortable, but I found the problem was reaching up to put an overhead top on..... (I had a WLE and SNB too). So,in retrospect, I would suggest a front fastening soft non wired padded bra/top if you can find one: m&s do a good range (and some are for women with breast cancer - so no VAT ;) ). I'm now in the market for nicer looking non underwired bras (not sure when I can return to wired), and have seen Next have a good range also. I have kept the original bra top (s) though as they are comfy for sleeping in. I will also add the M&S post surgery sports bra front fastening is very comfortable, however, it is low cut on the boobs (so I have to wear another top as well to stop my boobs jiggling when out jogging), and high cut under the arms (so I got an infection from it rubbing my SNB wound)
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27-08-2019
09:54
There is a soluble bisphosphonate which you could try (apologies - I can't recall the name) if not already? it's meant to be better for the reflux SE. The best things you can do for your bones is a good healthy diet and weight bearing exercise. Bisphosphonates are a triumph of pharma marketing to some extent.
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27-08-2019
08:51
Hi I posted this same question a few days ago! (can you find my other posts I wonder?) To cut to the chase, I have hauled in a few contacts (I'm a Dr), and it seems the 'view' now is that radioRx is felt to have minimal side effects, that, really, there is no point risking the major surgery of mastectomy. this has immensely reassured me, and I think I am now much happier proceeding down this route: but, obviously, it is so personal (I keep staring at my boobs in the mirror wondering if I could stomach a mastectomy....). You might find these articles helpful: https://www.cancernetwork.com/oncology-journal/decision-making-surgical-management-invasive-breast-cancer-part-1 (this is quite medical and detailed, so perhaps consider if you want to read this??). This link is a decision making tool (tbh it didn't tell me anything new, but it is useful as a starting point at least): https://www.researchgate.net/figure/Option-Grid-decision-aid-Breast-cancer-surgery_fig1_310666496
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27-08-2019
08:42
Thanks for this information (I've been lurking): I was feeling guilty I wasn't rushing back to work (radiotherapy still looms now I hasten to add), and to know that others have allowed themselves time to heal has been of great succour. Thank you
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22-08-2019
04:36
Thanks for those thoughts - and may I wish you well on your journey. I've got the book - and read it cover to cover twice now!!!!
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22-08-2019
04:35
Thanks. Radiotherapy has both side effects immediately / in the short term, but also potential long term damage to the lungs and heart. And it's weighing these up vs the side effects/ long term effects (including psychological) of a mastectomy. Throw in the fact I wasn't offered the options to start with, which has made me more confused!
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21-08-2019
09:18
I would imagine that is correct - yes. The number sampled will be those that have been highlighted following the radioactivity/ dye injection
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21-08-2019
09:16
I wonder if anyone has any personal reflections or facts/ online links to information that might help me? Following a WLE and SNB which had, thankfully, clear margins and clean nodes I have been offered radiotherapy (and anastrozole). However, when I countered with could I have a mastectomy instead of the radiotherapy this was agreed this could be an option. I am a reasonably fit 50 year old who enjoys sport (running, hiking, weights), and also worries about the risks of radiotherapy on the left side of my chest, and wants to get back to a 'normal' functional life asap (some of the threads suggest radioRx can take as long, or longer, to get over than a mastectomy) - the aesthetics are less of a priority for me. I am struggling to find any resources to help me make this decision, so if there is anyone out there with personal experience (good or bad), or information they could share it would be appreciated (I would like to get on with the decision making prior to my oncology appointment, so I can then move on asap)
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29-07-2019
09:09
So. I'm recently diagnosed and getting excellent care. I have a WLE and SNB due this Friday - and hoping that will be it for surgery, then hormone treatment only (though I obviously realise this can't be decided for sure until the results are all back). I have a fantastic trekking holiday in the Himalayas booked for early October: I'm going to have to cancel aren't I (if only because it will be too late by the time I get the full results)? Guess I just want to be reassured I'm not passing on this holiday unnecessarily. Also, any advice on trekking/ using a backpack after boob ops?
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