Breast Cancer Now Forum

God bless you for being so positive, keep it up, you never know what the boffins May have in preparation. ... View more

Bless you, it must be very hard.  I was originally diagnosed with breast in 2014 but when they scanned me it had already spread to liver and lung.  I had obviously had it for years but not found it as it does not show up on CT, MRI, Ultrasound or mammogram.  I was given five years and the hope that they may come up with something new in 5he meantime.  I have had, Anastrezole, tamoxifen. Exemestane and they all stopped working .  I am now lucky enough to be on Abemaciclib tablets (tergeted chemo) and Fulvestrant jabs in my btm.   I am lucky I am on it as although it has now be approved for certain patients, I do not qualify but my consultant still had it on extended access following the trial for two more days following my latest bad news.  After that it will be a trial. I am luckier than you, older, unmarried and no children, so I really feel for you.  Talking to a you fellow this morning and he was raving about Canabidoil for pain relief ( he had testicular cancer). it is legal.  If my pain gets unbearable I shall certainly buy some.    Try not to give up hope, you never know what is around the corner in the way of new drugs coming on stream.  They did for me even if they have a limited time before progression of disease.  I shall pray for you that you will find relief from your pain and a new treatment.   God bless.   Christine ... View more

Just be supportive, when she wants more from you she will ask ... View more

Hello, i also have lung metastices.  My breast cancer was not discovered until it had already spread to  liver and lung.  Unfortunately the primary does not show on any type of scan as it is hiding behind my nipple I only found it by accident and my first consultant never could feel it as normal breast palpating misses it. Fortunately the specialist nurse and surgeon found it so I was able to have a biopsy.  MRI showed the spread and I was started on Anastrazole, when that stopped working I was put onto Tamoxifen which worked for a year only, then onto Exemestane.  In April this year one of the lung squatters doubled in size so it was all change again.  I am now on Fulvestrant injections in my buttocks and Abemaciclib targeted chemo pills.  I am very lucky to be on the Abemaciclib because although it is available via the National Cancer Fund for some reason I don’t qualify but Nottingham still had it on extended access until two days after my visit. I have a two hour journey to Nottingham every month to have my see the consultant, jabs and collect my pills, I have blood tests at my GP and take the results with me.  I go to Nottingham although I live north of Lincoln because I wanted to go to a centre of excellence, I would not be on my present treatment had I gone to Lincoln.  They have given me 5 years for which I am grateful and hope to have a couple more.  I thank God for the NHS  and Eli Lily who provide the Abemaciclib foc  as the treatment I am on at present costs thousands of pounds a month.  I continue to be active, walking my dogs and playing with my ukulele band.  The Abemaciclib does have some nasty gastro intestinal side effects but I am learning to control them.  There is life after diagnoses, maybe not as long as without the squatters but I have no complaints. ... View more