Breast Cancer Care Forum

Have had my surgery ANC and WLE been back today and only 1/15 nodes positive and had clear margins. 😊 Waiting for oncologist to tell me when and what chemo I’ll be having. It’s been such a whirlwind the past few weeks. The genetic test came back negative and I have no risk factors apparently am just unlucky! Having my hair cut short next week. Think it’ll be less traumatic as was told today I will lose my hair but could try cold cap if I wanted too but have heard mixed reviews about that. At kest it was good news today. ... View more

Thank you for thinking of me. I am having surgery first then chemo followed by Herceptin and pertuzumab for a year. Feel better now I have a plan but was shocked by length of treatment. They’ve found cysts on my ovaries so may her them removed as well. Bit scared but want to get going with treatment now. My daughter is a knitter so she’s busily knitting me hats. Think it’s helping for her to do something practical! SJ ... View more

Last time round I was really lucky and walked out of my first appointment with surgery booked so mom ew exactly what was happen. Still seeing oncologist next week so hopefully will be able to ask the questions I need to. My daughter is coming with me because she doesn’t think I listened at the other appointment! My other daughter’s 6th form are great and she has good relationship with her Tutor as well as a lovely supportive group of friends. My Macmillan nurse is great so do have support but like you said it can be lonely.     ... View more

Thank you for your kind words. You seem to be able to say the right thing.   Had my scan results bone scan all clear but CT scan has shown something in other breast (one I originally had cancer in), thickened womb lining and nodule. They aren’t concerned about nodule will just rescan it in 3 months. I knew about womb thickening as had tests 3 years ago but they want to re ultrasound. I was told Tamoxifen can cause it. Also going to ultrasound other breast even though mammogram was clear. So more waiting. I just want to know and start treatment. Macmillan nurse said CT scans often show up things but hasn’t stopped me freaking out. My youngest (17) had a melt down about it all as I think it’s suddenly become real for her and like me the waiting is becoming unbearable.    Work are being great but I’m not going to be able to carry on once treatment starts as I’m a nursery teacher. I did ask but was told being round 3 and 4 year olds was not a good idea whilst having chemo! At the moment it’s helping to keep me going as there’s no time to think during the day.   ... View more

Thank you for your advice. I’m  going to take all the help I can get. Last time I didn’t as I felt a bit of a fraud only having radiotherapy. Now have CT scan and bone scan booked this week and oncologist appointment on 17th. Very scared about what they will show as have way more aches and pains than I did last week. Trying to keep busy by being at work who have been incredibly supportive and bit to think about what is to come. Taking one day at a time. SJ x ... View more