Hi there Emma. I too have bone mets in my hip/thigh, and also many other bones. Do you mind me asking if you have had scans of the areas in which you have these aches? My first thought would be to mention this to your oncologist if not. I have experienced pain in spinal and rib bone met areas as an ache. I found cocodamol helped a lot. I have recently had significant pain in my hip (prob combinatiin of surgery radiotherapy, bone strengthening drugs). Worse at 4am! Really struggled getting on top of it. I found side effects of oxycodone (longtec and shortec), to be nausea/vomiting, I got serious constipation from the ondansetron which I took to stop nausea from said oxycodone. I stopped both of these and upped the 100mg gabapentin I usually take 3 times a day, to 200mg 3 times a day. After a few days of feeling pretty knocked out I was painfree(and constipation free - yippee). I have aches in my left hip now and am going to see my osteopath who does nedical acupuncture. She worked wonders with other pain but not seen her since diagnosis.
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Hi rach and all others going through this. I left work at nhs one week before initial diagnosis in 2004 as i had carer commitments for my son cashed in pension previously to fund extension on house as he had an accident as a passenger in car which left him with ABI also lost my Mum In accident so had a bit of a coping crisis. Was diagnosed in 2018 with secondaries after initially been told it was scar tissue. 5 months later got correct diagnosis. Am working part time and asked re ds1500 form but gp said that they have been told that is only if you are 6 months to live terminally ill apparently incurable cancer isnt enough!! I have applied for PIP yesterday on my own without form so watch this space. I am off work at present with flu type/ cough etc . have secondaries in chest pelvis and base of spine. So fed up with the "system" Feel free t o msg privately although I will have to work out how too . Love and Hugs Liz xxoo
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