Hi Daisy (and everyone else) Sorry to hear your treatment has been extended, but it WILL come to an end... promise! I absolutely agree about not Googling things - I did that to begin with, but found advice contradictory and scary. I will only look at the NHS site, Cancer Research, McMillan and this one - they tell the truth without giving false hope or offering solutions that may or may not be effective. And I try to only look for answers to specific questions and then close the site before I'm tempted to go looking at other possibilities. Definitely don't look at American or Australian sites - they have to pay for their treatment there, so seem to me to be looking for cheaper ways of doing things whereas at least we don't have to worry about that in the UK. I'm Triple Positive, so had chemo (August - December 2019) then two operations (they didn't get enough margin on the first one) in December/January, and then radiotherapy in March. Finished radiotherapy on 20 March, then lockdown from the 23rd! I'm also having 18 infusions of Herceptin (at 3-weekly intervals), but had the first 6 at the same time as chemo (which made the side-effects worse, I'm now told!) and the thought of another 12 after surgery really upset me at the time. But... I'm having my 16th tomorrow so only 2 more to go after that (finish end of August) and although it's a pain having to go back to the hospital every 3 weeks (twice, as I now have to go for a COVID test 2 days before each infusion) I can see the end coming. My final (I think) Zoledronic Acid (Zometra) infusion is next January so I'll have been having continuous treatment for 16 months by the time I'm finished, but after the 5 months of chemo I've not felt nearly so bad. I'll be on Letrozole for at least 5 years, which cause hot flushes, but popping a pill each day isn't much of an inconvenience. Really, honestly, radiotherapy was a breeze. A pain going every day (hour's drive each way for me) but it went surprisingly quickly and I had hardly any side effects, just a bit of itchy skin which went away a week or so afterwards. I haven't had oral chemo but, like others, have heard it's not too bad - the important thing is to get well, and to prevent it coming back. As I said, IT WILL END. I'm now feeling positive about the future and quite proud to have got through it all. You will feel the same... just not yet. Every day is a step forward. Do be kind to yourself, rest when you need to (and even when you don't, but just want to get away from everyone for a while sometimes!). Your body has gone through a lot, but these dark days will soon be over and you'll be able to look back and know what a strong person you can be when you need to. As others have said, try to think about happy things - even if just a little flower that's opened up for a bee to come and drink to go off and make honey. Life goes on all around us. Sorry to have gone on a bit, but always remember you're not alone and we all care about you (even though hugs are out of the question!!). Do keep us updated, and enjoy the sunshine we've been promised at the weekend. Julie xx
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