Breast Cancer Now Forum

Hi all,   Glad to hear that everyone is progressing well in their own ways. I hope we can all stay on a good path.    I'm triple negative too and have just been put on tamoxifen for 5 to 10 years. I had a slight response for estrogen so they are trying it out. Apparently there's nothing to lose by being in it and so as long as my side effects are minimal that's my plan.    I'm struggling a bit with being home, looking after my three year old and trying to work too. It's all just chaos at the moment. My husband doesn't particularly want to help either.  At least we have had good weather and we are lucky to have the garden to play in.    Here's hoping life can return to normal soon!    Sending love x ... View more

Hey guys!   It's great to hear how well you are doing! I'm really pleased for you!!  I've just finished week two of radiotherapy and have about 8 sessions left to go! It's gone quickly but I'm a bit fearful of being 'done'.   I'm currently just finishing off 36 cupcakes for my little boys third birthday party tomorrow. That's one of the last jobs for the night!    Hope everyone else is doing ok too xx ... View more

Hey everyone,   Firstly, you're all doing amazingly. This whole situation is crap no matter what positive mindset you have and eventually it wears us all down.  I finished chemo a few weeks back. I then caught the husband's latest viral bug and ended up in hospital with a temperature of 41°C. Get through all that and a pesky bug knocks me down!!  I'm all recovered from that and will start radiotherapy on Tuesday. 18 sessions, one a day except weekends. I'm also starting to miss the chemo. I knew it was blasting whatever was left and now that has gone I keep thinking, it'll be back now.  Stupidly though, what gets me down is my hair. Don't get me wrong, I'm not at all a girly girl and I wasnt overly attached to it because it was static and unstylable most of the time! However, it's the most obvious reminder that I'm still here, fighting, trying to get on with life, feeling crap about the world, trying to build a life for my boy and yet feeling mega pissed off this even happened to me. To any if us.  Tomorrow is a new day. It's still a windy, rainy day but it's another one we are getting up for and telling this crappy disease to do one.    You're all superstars, and I thank each and every one of you.  Lots of love xx ... View more

That's amazing Jasmine!! Well done 🙂 x ... View more

Jasmine, I am so so sorry to hear this and so sorry for your loss. I've been thinking of you all.  Please let us know if you need anything at all in support going forward. You have been such a brave and strong pillar of support for your mum and I'm sure she would be so very proud of you and how you helped her (and us!) at such a difficult time. Sending you love and to your family too.  Claire x ... View more

Third paclitaxel was Mon for me and my phone no longer recognises me either! Thought it was just my phone lol.   I'm coughing a lot at the moment. Seems to be a sure effect for me. Really annoying. I'm absolutely shattered today and feeling really fed up. It's one of those poor me days. Hope the steroids have given up stealing my sleep and that will help.    Trying to figure out some achievable goals for this year. So far I just have to not be fat and bald anymore!! Any suggestions welcome.    I shall stop wallowing and just say that I think you're all amazing. You've come so far and you're all doing so well in your own ways with everything. You've all kicked so much ass already despite whatever you have left to go.    I hope the heart rate slows for you both guys and that the next time round it gets easier.    Sending love x ... View more

I feel a bit odd! I think I've come to get used to the routine and I know I'm fighting it by having the treatment so I'll kind of miss it in a weird way.  Looking forward not having a life back after rads but then it's the uncertainty of it all still with coming back etc. Think I'll need some counselling or something to help with that bit.    11 is such a great age! Does your son have any idea what he wants to do for his birthday?? Xx ... View more

Happy new year everyone! So glad this time was easier for you Lou!  I had my oncologist appointment today and I finish on the 13th as planned which is great but I'll have a four week break then three weeks of radiotherapy (every day) followed by three targeted radiotherapy sessions so not quite at the finish line.    I was thinking the same though, I need to do something to mark the occasion.  Little ones 3rd birthday is on the 1st march so we are having a party for that. My celebration may have to come later when I am back to my old self a bit more!!  I need to schedule my review with my consultant too in the next few weeks! Already at the stage they want to start monitoring me. At least they are though! Hope everyone had as good a Christmas break as possible xx ... View more

Glad to hear you're not doing too bad Kath. Have been thinking of you.  All ok here after dose 2 of paclitaxel. They lowered the dose slightly so that I don't react again but luckily no extension to the regime so it's ok.    Hope everyone else is doing ok? Purple trunks are you out of hospital yet??  X ... View more

Good luck for tomorrow Kath x ... View more

I'm on paclitaxel. It's a high dose though because I'm having it accelerated.  I've come up all blistered where the plaster was! Hopefully it'll go away after treatment then. I've not heard it's a thing but maybe a sensitivity isn't uncommon! I'll ask when I go for my bloods today 🙂 ... View more

Aww guys I'm so sorry you're feeling so tough. I was hoping that once the fec finished you would be much better on the t. I'm in a similar boat. I had a trip to the hospital too for my tummy. Temperature spiked so they did blood cultures and found something odd. I'm waiting to see if it was a contamination though. I recovered fairly quickly but still can't feel my fingertips from numbness. They might change my regime but my onc is at a conference so won't know til he's back. I hope not. Wanted to be ok for Xmas 😞   I have also developed an allergy to plasters in amongst it all!!  I'm hoping we all have a good weekend. Get well soon guys. Xxx ... View more

Glad you're doing a bit better emzlew!  I haven't had any of my monthlies either since day 1. No idea if they will come back. I'm happy with my little boy and didn't want another so not so fussed about them but didn't really want to start the menopause at 36!!  I've put on a couple of pounds - read more than a few here!! 😉 I crave the sweeties on the steroids!!  I've started wearing my wig on and off when I go into work on my good weeks and it's actually ok. I'm getting used to it and people say it looks natural. I'm also not adversed to opening the door with my fuzzy head now though! Go baldness!  I'm rooting for you all x   ... View more

The nurses told me the eyelashes are more effected on T than the eyebrows! Fingers crossed they all stay! I thought my hair felt like it was starting to grow back so I keep checking every day lol.  Leg hair came back but it's sort of coming and going at the moment! Very odd!    ... View more

I hope all goes well for you emzlew.  I had my first paclitaxel on Mon. My bones have been hurting from my hip to my ankle the last couple of days but I'm managing with painkillers so far.  I'm keeping everything crossed for you that it goes smoothly. You deserve a break!  I hope the little ones feel better soon too. It's so hard when they're sick too.  I'll be 3/4 through after my next dose so I'm clinging to that thought at the moment!!  Sending lots of love x ... View more

You've got this! You've done so well so far and this will be another hump to get over.  I started my paclitaxel yesterday and feel s lot better than I did on EC. Less head fog, less tired so far. Spent the day doing jobs but sitting down to Netflix now for half an hour with my mum's dog that I'm babysitting today.  I don't have experience with the other drugs  you mention so cant help you im afraid. You are going through so much so cut yourself some slack here. You're doing amazing!!! And we are always here to listen to a good moan!! Xx   ... View more

Good luck tomorrow Kath. Will be thinking of you x ... View more

You got this Kath! I hope you're doing ok and that you can get started with everything really soon.  Sending love x ... View more

Hi all, Hair got shaved last week. It was actually ok in the end cos it got so painful where it was falling out!! I have a wig but I absolutely hate it. I tried wearing it out on head shave day but it was itchy and annoying. I keep pulling it down and trying to flatten it out because it's massive to me. So I have gone down the route of beanies and scarves too. So much easier, prettier and warmer!! My little one doesn't seem too fussed but isn't keen on cuddles at night unless I wear my silky bed hat to stop the spiky hair getting him! (I didn't shave down to the scalp, just took most of the hair off!) Good luck today Kath, thinking of you!! Claire ... View more

Hey everyone! I'm in the midst of no sleep and shedding like a Labrador so I won't hang about today. I had microblading done a few weeks back just before I started treatment. you can absolutely go ahead and do it now. It just might take a little bit longer to heal than usual. Mine are fine with no issues. I went to people that specialise in hair loss because of this **bleep**ty situation.  Thank you everyone for picking me up in the past day or so. I know I have literally nothing to moan about given what some people are going through but I know you guys get it.  Im thinking of you all, keep talking and I'm keeping everything crossed for you guys still waiting for biopsies and results.    Xxx ... View more