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Jippy
Member
since
04-10-2019
12
Posts
16
Hugs
04-02-2020
01:37
I am about to start Letrozole, it's the Cipla brand, Is anyone on it? I don't react well to drugs so am nervous about how I will tolerate it. They have suggested me starting on alternate days.
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27-12-2019
04:37
1 Hug
Thanks Mandles for the good wishes last session done, so pleased. Thanks Wonky for what you shared about your friend, its given me food for thought. The " adrenaline dump" makes perfect sense, I feel like I've been going on it, whether I've wanted to or not, was the only way to get through. There's a lot of Job's comforters out there, they mean well but would better sometimes to say nothing! Time for me to take time out now to heal myself. I am too tired at the minute to decide what to do but am going to evaluate when I feel better and decide the way forward. Thanks to you all for posting and encouraging me. Feel like there are others who understand.
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26-12-2019
04:15
1 Hug
Hi Jaybro and Shi, Thanks so much for your words of wisdom. I have taken on board what you have said and think I’ll contact people and let them know how I’m feeling. As you say it puts me in control and I can decide who and when I want to see. All I’ve done today is chill and plan to do more next week 😀
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26-12-2019
02:06
5 Hugs
I have one more radiotherapy session tomorrow, but am feeling so tired. Is this normal? We normally have a houseful of people at Christmas. This year we kept it quiet and family were supportive. One friend who I normally have every year, have had her for the last 20 years.didn't even send me a Christmas card never mind wish me a Happy Christmas. I am really struggling with this. Just finding it all hard to process, other friends have tried chivvying me up by stupid texts or telling me it will all be ok, when I am soooo tired. Think I am going to have a couple of weeks just to chill after tomorrow. Any advice welcomed.
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11-11-2019
04:47
3 Hugs
Hi All, Sorry I have been inactive for a while. I was ill last week sore throat and glands up so did not have my chemo last Monday. After my visit to the chemo unit and running through all the side effects and how I react to drugs a lot less potent,(codeine, eterocoxib, iboprufen etc I could not get comfortable with going ahead with chemo for me. So I made a decision and saw the oncology team, who could totally understand my decision and am now going to do radiotherapy and endocrine drugs instead. This decision was right for me I feel so much more at peace. So I just wanted to wish you all the very best as you go through your chemotherapy treatments as I will no longer be part of this thread.
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31-10-2019
05:03
2 Hugs
I start chemo on Monday I've already had 2 surgeries. I'm having EC fortnightly for 4 rounds followed by Taxol fortnightly for 4 rounds. Not looking forward to it as I react badly to a lot of drugs. So will be glad to have Monday behind me.
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27-10-2019
06:32
Thanks to you all who have taken the time to post, give me advice and reassurance. Much appreciated I feel I now have a way forward. I haven't been sleeping well although this has been a problem long before my cancer diagnosis but in seems to magnify everything else when you are tired.
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26-10-2019
06:06
2 Hugs
I have my first chemo session next Monday and am dreading it as I don't react well to a lot of drugs. I am having EC. I am scheduled for 2pm and am planning to cold cap, Should I eat lunch before the session? Also what should I take with me, any suggestions? I read somewhere that someone said don't take anything you like to eat, in case you are sick/nauseous as you will never eat that food again. Sorry if these seem silly questions but I want to be prepared. Any advice welcomed, thanks
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24-10-2019
02:56
Just wanted to connect with anyone starting chemotherapy at the beginning of November. My first round is on Monday 4th so it would be nice to have people I can ask questions too after my treatment
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11-10-2019
12:04
Hi Chris, I can totally identify with what you are feeling. My cancer is lobular too, which seems to be the more infiltrating type. I was told on U/S mine was 17 mms ( mine couldn't be detected on MRI or mammogram)but when they operated it was 55mms. I had a lumpectomy, but because on the report there was lymph involvement and micrometastases I had to go back for an axillary clearance. Because I have 5 nodes involved I have now been referred for chemo plus radiotherapy. I see the oncologist next week. You don't have to have a mastectomy, I was offered that but decided to have the lumpectomy. I am awaiting BRAC testing results so that might change things. If there are more than 3 lymph nodes involved they recommend chemo plus radiotherapy. I wasn't prepared for that as thought the same as you so it is quite something to come to terms with I have good days and bad days, totally understand how you are feeling. The thought of chemo fills me with horror as I react badly to a lot of drugs. You can always ask for a second opinion. But it's a bit like PTSD your body goes into a state of shock. Hope you have a supportive family. Some of my friends have been great, others don't really understand. Phone the help line and chat to someone they are great
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07-10-2019
10:49
1 Hug
Dear Annie & Jan, Thanks so much for taking the time to tell me of your experiences and to encourage me. It gives me hope that it may not be as bad as I might fear and that they do take into account how you cope with drugs etc. I can't afford to lose any weight and am trying to put weight on at the moment. MY experience following both my surgeries was good, I have just read of so many people not being able to eat or being sick. Most helpful, bless you. x
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06-10-2019
05:21
1 Hug
I am due to start chemo in Nov and my biggest fear is nausea and vomiting as I do not tolerate a lot of drugs. I see the oncologist next week, will they take on board that I am sensitive to a lot of drugs? Do they ever stop chemo if you can't tolerate it? Any advice/help welcome
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