Breast Cancer Care Forum

Hi Twinkle im sure your boys won't worry when they are opening their presents on Christmas Day. You shouldn't fret you just need to concentrate on yourself and get through the treatment.  Im due to have my second treatment on on the 17th dec so I don't think I will be going any where on Christmas Day. Have said to my hubby that's there will next year, my boys are grown up, but they still like Christmas. I don't know about you but I feel as though every one is getting on with their lives talking about Christmas and what they are going to be doing and I sometimes want to scream at them. I know that people aren't doing it on purpose and people will get on with their lives, but   at this present moment in time I just feel like I'm am in no mans land.  we just have to think there will be other Christmases and we can celebrate bigger xx   ... View more

Hi Viv i am due to start on the 26 so the waiting is the fear of the unknown, my anxiety is bad at times, but I think I will be in a better place once I have had on round, at least I will know a bit better how it effects me. I am going to keep a journal of everthing so will at least know what to expect for future rounds.  Hope number 2 goes better for you and less side effects xx ... View more

Hi Twinkle wlcome to the forum. We are all here to support each other although it our own journey we are here for each other. I am due to start my chemo on the 26th so a day before you, we can do this journey together. I have tried to prepare the best I can for side effects,a m having fec-t six cycles over 18 weeks then radiotherapy and hormone.  Its not easy at times as I know especially with my anxiety, but there are lots of lovely people on the forums who have come out of the other side and I am just hanging on to that thought.  Xx ... View more

Goid luck hope it goes ok xx ... View more

I have just been to see my oncologist today as my anxiety was off the planet about a slightly suspicious node as she put it shown on my scan. Got some clarity and feel a little better after speaking to the cancer nurse. I mentioned that I have been taking cbd oil for my anxiety and asked if I could continue when I start my chemo and she said she didn't see a problem with that so really good news for me to help me manage my anxiety, she said better than taking diazampan which I had taken earlier in my diagnosis    hope me this helps    xx ... View more

Thank you, glad you have finished with yours good luck for any other treatment xx   ... View more

Well got my start date today for chemo 26th November. Very nervous,  But know it's a given has to be done. Hope you lovely people will give me courage to get through this   💕💕💕 ... View more

He Helen  i have started to build up a basket of things I will need. Some of things I have prepared are the likes that of pain killers, baby wipes, hand sanitizer, soft tooth brushes, sea sickness bands, skin cream, dove two in one shampoo as trying the cold cap, which will hopefully be gental with the remaining hair. It has took my mind off the waiting a little    hope this helps x ... View more

Thanks for the replies guys, am walking loads at the moment with my little dog so getting plenty of fresh air. Think I will just have to try and clear my mind and try to relax I know my chemo will come soon enough so will have to just persevere and hopefully my sleep pattern will get better xx ... View more

Hi All  Sounds like everyone having difference experiences of chemo due to start mine hopefully in the next few weeks as waiting is sendng my anxiety off the scale. Have got sleeping tablets from my Gp as not sleeping well at all, I don't know how many times I wake up during the night. Have tried meditation before I go to sleep and put it on when I wake up but not really helping. Has any one got any tips to hopefully help me get some sleep. Good luck to all going through your treatments fingers crossed for you all. Great to read tips that help will be trying them all  chrisy xx ... View more

Thanks so much Jen for responding to my post. My anxiety levels have been of the scale since I found out. It's good to hear that the chemo shrunk it and radio anliated it. Hope mine goes the same for me. Can I ask did you have a scan after to show that it had gone   thanks christine xx ... View more

Hi Helen  im am the same as you had a mastectomy about 3 weeks ago, lobual cancer grade 3 her2 - ER positive. In 1 & 1/2 lymph nodes. Due to start my chemo probably around the 20th or 27th so slightly behind you. Didn't have oncotype as oncologist said it would probably come back as high score. And I learnt today that there have found a pin prick of 1mm slightly suspicious in one of my lymph nodes in my chest so definitely doing the chemo. Same chemo cycle as yours. Are you going to use the cold cap? Would love to keep in touch to see how things go.  Christine xx ... View more

Hi just been to see my oncologist today and due to start chemo near the end of the month. I had my Ct scan results today which was fine apart from the oncologist saying there was a slightly suspicious node in my chest where it showed a pin prick of 1mm. This sent my anxiety levels of the planet. She has said if it is related to the cancer that hopefully the chemo, radiotherapy and hormone treatment will get rid of it or contain it. I would like to join the thread for November as I,m not sure what's going to happen and hopefully we can share some tips to help    thanks  Christine x ... View more

Hi Jan thank you so much for your kind reply, it's nice that support is there for me duing awful time.  I saw my oncologist last night and ended up getting myself in a right state. She was lovely but I don't think she has read all of my report as I only telephoned yesterday to see when my appointment was and she said to go and see her last night. She had also been on holiday the prior week. My consultant had orginally said that the tumour turned out to be 6.9cm following my mastectomy  then the oncologist said well with the tumor being 7.3 I nearly fell of the chair as I kept thinking in my head it's gotten bigger and bigger with every appointment, when I looke surprised she said the difference is neither here or there. She did mention that it was only in 2 nodes and said she wanted me to have a CT scan but it will probably be around 2-3 weeks, then a weeks wait for the results. My husband asked if we paid private for it when was the soonest I could have it done and she said this week, which we have pushed for as I thought my mind would be in a right mess if I had to wait the 2-3 weeks. So as of today am waiting for someone to contact me. She then went on to say well you will need chemo, radiotherapy, hormone treatment and also an infusion for bone thinning. I was quiet shocked about the chemo as I think I had it in my head that I wouldn't have to have it.  I then asked about the onocotype test and she said that she thought that it would probably come back that I still needed chemo, but she would send a letter to the consultant to see if I could be put forward for it. She also said that the hospital she worked from has a similar test but you did not get the results given it just said whether you needed chemo or not. I have been having niggles where my right overy is and I mention this but she just wrote it down. She didn't say whether she thought it was to do with my cancer. My head was in not a good place by the time I came out and I keep thInking is the scan a normal step or is it that she thought the cancer may have spread that's why she wants me to have one.  I keep asking my husband if he thinks the cancer has spread anywhere else. He said he is taking what the consultant said as a positive and the nodes status. I am really anxious at the moment and did think once I saw my oncologist that I would be in a better place mentally. Did you have a scan after your surgery?. Can you please tell me how you felt during your chemo and  if there was anything you did to ease any side effects you had.  I hope you don't mind me asking all of these questions    Christine xx ... View more

Hi Mia  thank you so much for your kind reply and hugs You right when you say it doesn't matter what anyone says I don't think my mind will be in a better place until I see the oncologist and know what's going to happen from there. I have had my results from my surgery and the consultant did say that he had got clear margins when he carried out the lumpectomy. He also said that the pathology said it wasn't any where else in the breast when it was examined. And of course only being in the 1 & 1/2 lymph nodes I hope these are all good signs? I have read your blog and it's so nice to hear you came out the other side and go to see them daffodils🙂 Take care  Christine xx ... View more

Hi Jewls   thank you so much for you kind message, I know your right about having a bit more piece of mind once I have a plan in place, but it's getting to that stage. At the moment I can't seem to think that far ahead my head is a bit of a mess at the moment. My husband, sisters and friends have been a real good support don't know what I would do without them. I have read a number of posts on here where people have come out the other end, it I know it's a long slog and probably not going to be a walk in the park. I have my mastectomy on Tuesday in hops for two days then have to wait until the 23rd for results of lymph node clearance. Hopefully my head will be in a better place once I have them, just keeping my fingers crossed that it's good news this time. Hopefully no more shocks.   its the waiting game, I had never really been a patient person. Am doing some meditations hopefully that will help.    Agaon on thank you for sending me a message they are a great support to me    Christine ❤️ ... View more

Hi Kip,thanks so much for getting back to me. My boys aren't really children they are 31 & 27, the oldest one is married but no children. My youngest is working in Amsterdam, it's him I worry about as he has no support mechanism over there. The consultant only took the sentinel node for biopsy, really can't understand why he didn't take any more to check. I have got my head around the mastectomy but it's the lymph nodes that are really bothering me. I just keep thinking if it's in all of them. I probably won't have some pice of mind probably until I get enresults on the 24th October. It's good to hear that you mastectomy went well, keeping my fingers crossed that mine does. My consultant has mentioned tissue possibly being sent to America for analysis to see whether I would need chemo, have you heard is this?.    Was yours lobula?   No reconstruction - further down the line he says if I want it. have been told I will probably be in hospital for two nights.     Are you having any trouble with your node clearance?   No scan been offered yet as I am getting the op done privately, however after that will be put on to a NHS oncologist so not sure what will happen there.   thanks again  Christine x ... View more