I had a punch biopsy 3 weeks ago to test for Paget’s. Results came back confirming Paget’s disease. I’ve been having symptoms for 18 months. I’ve had countless doctors appointments. Was even seen at breast clinic & was told discharge was nothing to worry about. Gp treated as contact dermatitis or excema when these treatments didn’t work referred me to a dermatologist who I waited almost 4 months to see. Dermatologist took one look & said I need a referral to breast clinic for a biopsy for Paget’s. So back to doctors for referral which thankfully I was seen within 10 days. Then the whirlwind began. Results were back within a week & a week later had a central wide local excision. A week on from my surgery and & I am slowly going out of my mind with worry. I keep waking in the night in a panic that I’m going to die & leave my children. I know I’m being irrational but the thoughts keep creeping in. Another week to wait to get next results & have dressing removed. Will I likely need to have radiotherapy too? Sorry for the long rambling post just needed to vent to people who will understand my fears.
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