Breast Cancer Now Forum

tinyears_surrey · ‎22-01-2020

Hi good to hear your story. Who is you onc at Guys ?

tinyears_surrey · ‎22-01-2020

Hi everyone, I wanted to see if any one could share their experience with Ibrance and letrozole combo. I was dx with lung mets in August 2018 and have been on 3 on and one week off since. Due to low neutraphils I am 3 on and 2 off. They have gone down on the third scan from 2.8 to 1cm. Since last scan no decrease. Has anyone seen a stable position and for how long ? Thanks for responding. hugs

tinyears_surrey · ‎30-10-2019

Mermaid007, Only my partner and me know, as if you didn't know you wouldn't know. Everyone says how great I look as I now work out daily, don't eat diary and don't drink alcohol.

tinyears_surrey · ‎30-10-2019

Anniej I love your approach to secondary BC. I was DX 15 months ago, and on Ibrance and Letrozole 3 weeks on and 2 off, with Zoladex every month. The tumours in my lungs have gone from 2.8cm to 1cm with tumour Marker at 30 🙂 I still believe that I can live with this, and try not to let it get me down. I am 52 and work still daily, not a hard job, and not regular hours, but yes keeps the brain off thinking about the disease. I love your approach, and I am scared to go to any meeting due to it being all doom and gloom. Like you its is starting to be treated like a Chronic disease and not a terminal one. hugs x

tinyears_surrey · ‎28-10-2019

I am new to the forum ! I am on Letrozole and Ibrance, now over 18 months on 3 weeks on and 2 off regime. I seem to have hurt my shoulder from exercise. However also seem to have a tight chest, I wondered if anyone else has got this from time to time. I was DX with lung mets that have gone from 2.8cm to 1cm in the year. Not sure if its anxiety as its nearly time for scan again. Also like other keen to hear stories of those living long term with the disease.

Breast Cancer Now Forum

Re: Lung mets

Stable lung Mets

Re: Diagnosed today

Re: Diagnosed today

Tight chest & long term living