Breast Cancer Care Forum

Hi Chris yes my  gums have been a bit sore I think it happens as I read a thread suggesting a soft toothbrush , I was given chlorhexidine mouth wash twice daily but I had a tooth out 4 weeks ago so I thought maybe that's why , the roof of my mouth is also strange, rough but not sore so thinking gums can be affected to    Hugs KC xxxxx  ... View more

Sorry the hear that Lisa , I know we are all keen to get this over with , however it takes such a toll on our  bodies that you have to be fit or I'm sure the after effects will be worse , and what a day to lose hair 😕 I know you were expecting it but I dont think we are ever really prepared chin up girl you are going to smash this we all are !!    Love and hugs KC xxxx  ... View more

Hi VivMc and other forum members  can I ask when did you start to shed your hair ? How many days after 1st chemo ? Just trying to get prepared  you all look fabulous by the way !!!    Love KC xx  ... View more

Hi lisa sorry to hear about your A/E trip today I've started with a weird throat tonsils feel sore but no temp , mouth is rough and odd and I'm not sure if it's just the chemo attacking cells , I will follow your lead and keep an eye on my temp and ring if things dont settle . This chemo bingo card of symptoms is a strange thing , fingers crossed for tomorrow for you great news your cell count is good 👍 let's hope you get another ticked off xx KC xx  ... View more

Hi Chris , yes mine same day 9.30 bloods 10.30 see onc ,11.30 chemo longer day , I have a family wedding in London right before Christmas so travelling on the 20th and home the 23rd  ( we are " up north" ) so probably going to be a bit tough but I really want to go and I'm homding out that 2nd time I k ow what to expect, will check with onc of course and take numbers etc but I am a tad nervous but I will only do what I'm capable of .   So glad your rallying you've had a tough Initiation into chemo land Chris  take care xxx KC xxx ... View more

Hi Helen , I'm with you top of the list constipation , 2nd heartburn and feeling totally off kilter, wooshy spaced out . Tonight the roof of my mouth feels strange rough not smooth however not painful and boy have I slept today !!! Mind you my nan always said sleep was the best medicine .   Helen  I'm sure all will be ok Friday at least you know what to expect and others have said 2nd time wasnt as bad so keeping fingers crossed for you , enjoy your next few days of freedom but you will be rallying round soon xxx KC  ... View more

Hi Chris hope your improving , thinking of you xxxx KC  ... View more

Awwww Chris so sorry that's rough , sending a (((((HUG ))))) get better soon  Lots of love KC xxxx ... View more

Hi All my first EC was Tuesday so feeling bit low today , nausea hasn't been much of a problem they gave me something different to met for 4 days , I now have the metoclopramide if I need it took one this morning , I have been floored by the silliest thing , constipation !!! Its been 5 days, it's like my insides shut down, got something prescribed now  but had a major meltdown yesterday over it , today's symptom is aching , specifically shoulders , anyone else feel like that ?? Plus I want to eat and dont want to eat if you get my drift lol yeah bonkers I know what this stuff does to you. Taking the lead from you girls great to know things get better  Thank you xxx KC  ... View more

Hi Chris I got steroids iv on the chemo day then for 3 days so they finish today .so expecting a dip tomorrow, the assessment nurse blamed them for my heartburn , so it's a real trade off with these things ,so sorry your having a low day , I'm not feeling great totally off kilter I wake with such a start which isnt normal for me , I'm ordinarily a poor sleeper but this feels different , chin up few more days and we should be picking up and remember that's first one done and dusted xxx KC xxx ... View more

Hi All  I gave in this morning and rang the unit re my heartburn and constipation ( didn't mention that before) as I had such a bad night with the heartburn despite sitting up most of the night , and I'm approaching day 4 and dont want to be hysterical with it by the weekend ,they were great told me the heartburn is aggravated / caused by the steroids and they will sort me some meds for both , the food is going in albeit small amounts and it just isnt coming out !!! Not sure where it's going have tried liquorice beans, loads of fluids and fybogel  lol perhaps my body is in a bit of shock lol I know I certainly am  Thanks again for listening everyone your support is invaluable  💕Kc xx  ... View more

Hi Debknits  I've been awake to with this dratted heartburn on an off all night not thinking the steroids might not be helping , the eating thing , I was also given a similar list of things to avoid pre packed sandwiches , pate , shellfish, soft cheeses  soft eggs funnily enough no one mentioned grapefruit but my stains make me avoid them but it seems my nice Christmas treats are out with pates, shellfish etc , I think it's all the stuff they warm pregnant women to stay away from due to it's possible high bacterial load sometimes . Its such a minefield I'm hoping the odd prawn at christmas will be ok but I think I will be day 6 of next cycle so maybe I wont be bothered , any way hope you managed some sleep  ,I'm taking my fitbit off as I dont need to be told I had such a rubbish night lol    Take care 💕 KC  ... View more

Hi Vaneysha  So sorry you are struggling with this , it's so difficult when you are so scared,  try to draw strength from others around you and your health professionals .  Thinking of you 💕KC xx   ... View more

Thank VivMc  Got the normal gaviscon so will try the advance , think I can get zantac over the counter so will send hubby out ( ha has his uses bless )  Thanks again xx KC  ... View more

Hi VivMc  I have also got dreadful heartburn csn you suggest anything other than ginger as I'm not keen and milk isnt working or the bottle of gaviscon I have taken 😬 I didnt want to moan to the team so soon as I did have it the week before, think it was the stress and anxiety but its driving me nuts xxxx KC  ... View more

Hi lisa I'm not as good as yesterday very wooshy and didnt sleep, I had a good night first night chemo but last night was dreadful , but then I'm not a great sleeper full stop , I'm losing my taste which I hate everything tastes dull, i have read it's normal at day 5 /7 to feel the way you are doing ,please dont think you're the only one not doing well I'm guessing chris and i will be just the same at day 5/7    After my 3 cycles of EC i then go on to weekly carbo taxel so i know how you feel cant say I'm looking forward to that either, or the needles , just remember your not alone , it's tough and horrid and unfair but we will get through this every cycle is one less to complete. Thinking of you 💕 KC xxx ... View more

Your not a horrid patient Vaneysha , you're an individual with a history and have had a nasty fright with this diagnosis, it is life changing but it looks like you have excellent support with your team, work with them as you are doing , I'm sure they will understand your concerns and support you with you're decisions ,, accurate info is important so you can make choices with them  Good luck 💕 KC xxx  ... View more

Hi Vaneysha  They are only a low dose mine were for 4 days, they help make your anti sickness meds work and give you a bit of an appetite and energy boost  I was also told the dose with my chemo helps dampen any allergies etc. A nice pharmacist explained all this when I completed first treatment,  I was warned about the iv steroid the day before but not everyone gets that symptom and it was very brief     I have been on larger doses of steroids before as an asthmatic , and the ones given to me were low dose , however talk it through with your nurses they will explain the reasons why  Good luck for December Vaneysha it really wasnt as bad as I expected xxxx KC  ... View more

Hi Denim , it went ok had hoped hubby would be with me but he was hull of cold so I made him wait in the corridor, I'm a retired nurse, we make the worst patients lol one of the nurses stayed with me throughout and kept me company, I think I just quizzed her to death,  it was over with quite quickly about 45 mins in the chair then a chat with the pharmacist where I received my goody bag of pills ! I had some IV dextomethasone to start ( steroid) which they warned can give an itch perinium for some whilst administered lol and deep joy that was me but it stopped when it went through , the cyclophosphamide felt a tiny bit spaced but all in all it was fine and I was glad to have completed number one . I'm 3x  EC the carbo taxel not sure how long ,9 weeks I think but that's weekly so I guess I will become firm friends with the staff . So all in all not as bad as I expected  Good luck for friday and as one of the girls said to me ,its one checked off !!    💕KC xx  ... View more

Hi Chris sorry you had a rough day yesterday , I'm def spaced out and head fuzzy today and nausea in the background I managed dry toast breakfast and dinner and managed a coffee and biscuit in costa ( whilst I can) but that was the most strenuous thing I did today lol    Take care  💖 KX xx  ... View more