Breast Cancer Care Forum

Hi Daisy  I'm from the Nov starters forum as well  and in a similar position to you, I'm triple neg and although no node up in my chest I have one under my armpit. I've had EC x 3 and Carbo x 3 and Pac weekly x 9 , I had my EC first , like you I've not had surgery yet and again like you my white blood cells keep dropping on the carbo and Pac  it happened again this week that's the third time for me  . I was given an injection last time to boost my white blood cells which worked but it happened again , it's really frustrating because it means treatment getting out back . I still have 4 weekly pac to have and 1x carbo so I know how you feel especially now with covid etc , however I notice your pac and carbo are being given first , that's a positive in my book as I think Ec seemed to be kinder on my blood cells and bone marrow ( where all blood cells are made) in my mind get the harder treatment over with first maybe your onc will give you something to boost your immune system , our oncologists are going to be as careful as they can be with us and my advice is to follow what the professionals say my fav saying at the moment seems to be " it is what it is" we have been dealt a tough hand but we will get through this , I have found the forum a great source of support and information , keep safe and I'm more than happy to share any info I have with you 💕 kim c x x x  ... View more

My hair is growing back WHITE not even grey !!! I was mousey brown before with highlights but its def white and is looking curly unless that me chemo hats squashing them lol 🤯 KC xxx  ... View more

I'm guessing it's the way I've done my numbers , I'm 11.00 you are 9.5 which is a lot lower than me you must feel awful !!! here they transfuse at 9.0 if symptomatic   ... View more

Down to 11 was 11.4 last week  but I'm quite symptomatic tired, sleepy  breatless on exertion ,very dizzy on standing  nearly passed out twice , once in bathroom ( matching you Debs ) nearly ended up in the toilet and once on the stairs also risky area , my diet isnt great very stodgy driven few actual greens so really need to make the effort !!! Red cells take longer to recover than the others as well    KC xx  ... View more

Thanks Chri that's helpful I was thinking supplements but seems they arent that good plus never thought they might not be recommended , I've realised my diet isnt very iron rich so will make a conscious effort , must admit I used to love schools brIsed liver !!! 😛 Xx KC xx  ... View more

Can anyone recommend a cereal high in fortified iron as my Red cells continue to drip and I want to avoid a transfusion , I downloaded a nutrition sheet but just says a fortified cereal  dont fancy scanning the shelves so just wondered if any of the vegans on the forum can help ??  Many thanks KC xxxx ... View more

Oh my goodness I might get curls to  !!!! Not sure I could cope with that 🤣 and yes its white totally devoid of any colour , interestingly my mum coloured her hair because she said hers was white not grey ( she died 2000) I never saw her with white hair xx KC xx  ... View more

Hi all , has anyone noticed any hair growing back ? I have in patches however I was mid brow / mousey and now its white and I mean WHITE !!! 😱 , I'm still shaving as its patchy but I was surprised , I had read this can happen but it was a shock to see 👵 Xx KC xx  ... View more

Hi Jen  Sorry you ended up in hospital , I'm also neutropenic but luckily have remained well although going a bit bonkers with self imposed isolation 🤯 just hoping bloods ok on Tuesday so I can restart , I wonder what they do if I cant I dont fancy a 2 week break !!!  Hugs to all xx KCxx   ... View more

Hi Debknits  I'm risking going for a costa coffee in the morning , to hell with ot i have stayed in all week ( neutropenic) not seen anyone but hubby , and I have cabin fever x 1000% i'm going loopy indoors , need to motivate myself . Does anyone one else feel like they just go from Day to day and week to week ?? 🤯🥳 🤡 Love to all KC xxx  ... View more

Hi Chris  Yes was pretty gutted re the treatment we were late Nov staryers anyway , at this rate I will be trailing well behind everyone lol last but not least eh !!!  Xx KC xx  ... View more

Lol I have to show this to my son who is a math teacher no wonder kids struggle 🤣 ... View more

Hi lisa  Treatment delayed a week as neutropenic bloods all over the place , which I find odd as I feel ok today !!! So just waiting to go home , lots of instructions about what to look for and who to ring but bit gutted 😖   Xx KC xx  ... View more

Hi VivMac I'm def woozy washed out incredibly tired and cant be bothered with much , I wake up and within an hour I'm yawning !!!  Just been out to the shops for a few things and I'm done in now , feel totally pathetic, hubby bless him has been doing the school runs and pick ups for our 3.5 year old grandchild , I just cant muster it , these young mums with BC are heroes!!!!    Next PAC on wednesday but that's number 3 out of 9 weekly doses so am on countdown . Like everyone else I'm a bit panicky about coronavirus and am watching the news with trepidation , we could really do without this added anxiety in our lives really , Helen your def being sensible re your daughter !! 😷 Also noted my eyebrows are half gone , nose hair non existent and eyelashes nearly gone 👀 I'm becoming a dab hand at the makeup now !!!!! 🤡   Love to all hugs xx KC xx  ... View more

Hi all chemo brain I got muddled , sorry Vivmac it's you who is struggling sending hugs 🤗 🤗 🤗 🤗 xx KC xx ... View more

Debknits that's such good news makes all this crap worthwhile 😘   Sorry your feeling rough lisa just try to hang on to the fact its gonna get better , I'm not brill today I was a bit hopeful on weekly pac that this week wouldn't be too bad but it's not as huge a dip as last week . Remember ladies tears release natural antidepressants so a good cry is ok and will make you feel better 😥 🙂   Hugs to everyone xx KC xx   Still no notifications coming through 🤔 ... View more

Hi Helen  I asked to be prescribed pyridoxine 50mg 3 x daily for hand foot syndrome it's a B vit studies have been done on slightly higher doses and jury is out , you can find some research on line. I'm paranoid as neuropathy can become permanent so let them know I have neighbour who now cant get credit card out of her purse and a colleague who cant drive !!! Get in touch with your team Helen I would . I've had to pac and no neuropathy xxx KC xxx  ... View more

Looks like I havent been getting my notifications of messages, thought everyone was quiet lol , have missed you all !!! 🤗 shows how much I need this xxx KC xxx  ... View more

Hi all I guess we are head down walking in the storm, doing our best to move forward , I had 2nd pac yesterday and added bonus no steroids for afterwards only iv dose    Last week was tough but guess that's the carboplatin , very weepy very very tired slept day and night and out the blue outpatient nurse rang me and was really helpful lots of advice and meds offered though declined ( sleeping pills)  Def on the up today so hoping the pac isnt too bad . Love to all my fellow warriors, chin up keeping trudging and wear your pants on the outside , superwomen 🦸‍ ♀️   Love xxx KC xxx   ... View more

Hi Helen first carbo and pac 3 days ago not doing great tired but not sleeping , no appetite, no taste , no diarrhoea infact the opposite again !!!! Totally out of kilter hope I shake it as next pacliataxel is Wednesday , I dont want this cycle for 9 weeks ughhhhh , sorry ladies down day today xxx KC xxx ... View more