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Tookie
Member
since
09-11-2019
17
Posts
30
Hugs
16-11-2021
08:31
Hi After taking Tamoxifen for 6 months I was told by optician that I had very early stages of cataracts. I contacted my breast care team who referred me to opthalmology department at the hospital but they decided I didn't need to be seen. I was told they didn't think Tamoxifen would cause cataracts. I have had another eye test and now been on Tamoxifen for 18 months and was told the cataracts are still only early stage. One optician told me not to worry as it is easier to treat cataracts than breast cancer.
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20-05-2021
03:31
1 Hug
I received the spam message about bitcoin. My message was from Samantha Edwards.
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24-02-2021
06:37
Eventually managed to get a prescription for 60 tablets of Tamoxifen and all the same brand. I contacted my breast care nurse to ask why I got 56 tablets and was told that most other medication comes in boxes of 28 (4 weeks supply). Fingers crossed when I get my next prescription it will be for 60 tablets.
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28-06-2020
04:02
Hi Evie Hope you are well. I sent a message through 'My GP' app asking if I could get 60 tablets but got no reply. I rang to order my prescription last week (automated message) and left another message asking about getting 60 tablets. On picking up my prescription at the chemist I still got 56 tablets but luckily all the same brand this time. I'll try again to contact the doctors ready for my next prescription. Take care x
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14-06-2020
05:19
Hi Stayzen I was told that side effects would kick in pretty soon after starting taking Tamoxifen, and different brands could have different effects. I have been taking it since February and so far have only suffered from hot flushes. When taking one brand I did get spots on my face and thought it was from the Tamoxifen (I'd never had spots for years). The pharmacist recommended stopping that brand for a while then going back to it. No spots next time so think it was just coincidence. So far I have had a mixture of brands with each prescription and have been OK. Fingers crossed it stays like that as have another 4 1/2 years to go. Take care
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07-06-2020
01:53
Hope everyone's OK through this lock down. Does everyone get 56 tablets on their prescription for Tamoxifen? I have been on Tamoxifen since February and have received a variety of brands. I started with a pack of 30 from the hospital, but since getting the prescription from my doctor I get 56 tablets. I have received a full pack of one brand, but the second pack has a mixture of brands, so with my current prescription I have 3 different brands. I asked the pharmacist about the brands as when I took one I got spots on my face, but he said that when he orders Tamoxifen he cannot specify a particular brand. I was thinking of asking the doctor when I order my next prescription if I could get 60 tablets so hopefully I would get 2 full packs of the same brand. Just wondered if anyone else has this problem or if there's a reason for getting 56 tablets? Take care everyone xx
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21-02-2020
09:23
3 Hugs
Hope everyone's week has gone well. Finished my treatment on Tuesday. I didn't get to ring the bell (it was just a small china ornament, not one attached to wall like on TV) but my daughter took me for coffee and cake and hubby bought a lovely bouquet. 💐🔔 Been more tired towards end of week. Skin is quite pink and been very itchy. Clothes have been irritating a bit, even been going bra-less when I'm at home with baggy hoodie. Still managing to exercise though! Take care all, get plenty of rest over weekend 😀xx
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17-02-2020
07:20
4 Hugs
All the best to anyone starting/having treatment this week. Take care xx
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17-02-2020
07:14
1 Hug
Hi Shablah I'm not sure if you can buy Flamigel over the counter as I was given a small tube by radiographer and then a letter for my GP so I could get it on prescription. Hope all goes well this week xx
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15-02-2020
06:18
1 Hug
Hi Shablah Glad your first week went well and you're still managing to exercise. I only have two sessions left to go - the time has flown by. I am still exercising which the radiotherapy team said was good for me, mentally as well as physically. I do get tired, so often have a doze in an afternoon. My skin isn't too bad, gets a bit itchy and a bit pink but the Flamigel which they gave me seems to be helping. Hope everything goes well next week for you. Take care and get plenty of rest. xx
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09-02-2020
12:28
2 Hugs
Hi all I'm half way through treatment now. Have felt tired the last few days so had an afternoon nap which helped. Skin has felt a bit prickly so hospital gave me a tube of Flamigel and a note for my GP so I can get it on prescription. Started taking Tamoxifen this weekend so hoping I don't get side effects from that. Good luck to all starting radiotherapy this week x 😀
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04-02-2020
06:11
5 Hugs
Hi all I have just finished day 5 of radiotherapy. So far so good. Don't worry about the treatment - the machine is positioned at the side of you and you cannot feel anything, only hear a whirring noise. My first 3 treatments involved taking images as well as treatment and I was in and out within 20 minutes, now it's just treatment I was out within 10 minutes. You need to let them position your body, which sometimes is quite hard to do as you want to move yourself, and then lie really still. I have managed to go to an exercise class after each treatment, making the most of it in case the tiredness kicks in soon as I was told any side effects would take about a week. Take care xx
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30-01-2020
09:48
1 Hug
Congratulations Mel on finishing treatment. Take it easy and don't rush back to work. x
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29-01-2020
09:15
3 Hugs
Had first session today. All went well. Was in and out in half hour, which included going through side effects, getting put in right position, couple of x-rays and treatment. The actual treatment was only a couple of minutes. Mine is right breast so no holding breath. Radiographer advised to start moisturising straight away and making sure I stay hydrated. She said any side effects would probably take a week. Even got back in time for my body conditioning exercise class! One down, 14 to go. Good luck to all starting treatment soon xx
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27-01-2020
02:19
1 Hug
I'm starting my first radiotherapy session on Wednesday. Had my planning and tattoos two weeks ago. Not looking forward to the drive to hospital as its nearly one hour each way and my appointments are 9 am. I've read about using Aveeno cream but would like to know when you start using it - straight away as a precaution or only if you have skin problems. When I asked the radiographer about moisturizing he said I would probably not need to use anything, but after reading other posts I do not believe that! Also all my bras are wired. Should I go and buy a non-wired bra?
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14-11-2019
07:43
1 Hug
Thank you for the replies. I am feeling much better today having kept myself busy and meeting a friend for lunch. I know surgery is the beginning of my treatment and am feeling more positive. I don't know anyone who has had breast cancer so have been looking at the forum and am finding it really useful hearing of people's experiences and feelings. I don't feel so alone now. Thank you. xx
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12-11-2019
10:13
7 Hugs
I'm new to forum and never used one before - don't even post anything on Facebook!! Diagnosed with grade 2 invasive breast cancer on 24 October (day before my husband's birthday) following a recall from routine mammogram. Am due for surgery on 18 November for lumpectomy and sentinel lymph node biopsy. My husband has changed his week off work to coincide with my surgery which means we cannot go away which we were planning. I am feeling guilty that I have spoilt both his birthday and holiday. At first I was thinking I would just have surgery and 3 weeks of radiotherapy and be OK straight away but now realise that everything depends on the results of the surgery. I have been burying my head in the sand and the few people I have told, my response has always been "I'm fine - it'll be OK." Had a bad day today - just wanted to sit on sofa and not speak to anyone. As my op is getting closer I am getting more stressed. I have never been ill and never had surgery before. Just wish it was all over!!
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