Breast Cancer Care Forum

Hi Angie    sounds like you have it all planned it’s great when work are flexible with you & sitting down job fab that’s me also ....   enjoy yourself this week pottering around having time for you it’s important I’m reading & watching tv can’t really do much else with the lack of arm movement.   would you mind if I asked what & when you were diagnosed I know all cancers are different you seem to have moved on so fast & with no further treatment is amazing I know you said it was in your lymph nodes too I guess I am trying to work out if I will have to have further treatment. my cancer was Ductal carcinoma oestrogen  positive Her2 negative and found in the gateway lymph. was yours  similar ? having a little wobble today I just want consultant to say right take tamoxifen every day & go live your life.   sorry a million questions I know every one is different but it helps me reading & hearing others stories. waiting for results is just horrid.   message me when ever you have a chance I know you’re a busy mummy of 2 boys...   hugs 🤗💓Xx    ... View more

Thanks Angie I will rest up & zone out with a few movies. i am anxious about results & what’s next I pray I don’t have to go through chemo that scares me. but I will do whatever I’m told. keep strong 💪  I am pleased you feel ready to go back to work mind yourself on the trains you are still fragile do you have a sitting down job ? Ease back in slowly I actually can’t wait to go back to work. i work full time but plan to go in on less hours to start with our health is our wealth. i will keep you posted ok & thanks for your message means a lot. keep up your good healing your amazing 😉 Xxx ... View more

Hi Angie    sorry late reply I had a busy week & yes surgery went ahead yesterday morning I was lucky first on the list & not slept to well but I’m going home today with the one drain in & this will be removed in 5 days. i feel a bit sore & uncomfortable hey ho nothing like the first operation. fingers crossed results come back clear. i hope you are doing okay 👌  speak soon when I’m home xx  big hug 🤗    ... View more

Hi Angie    Small world isn’t it with us both having lived in the same towns we have probably passed each other around the shops you never know. I actually can not remember the names of the night nurse I had she was young & from Spain long reddish hair she was a real sweetie I will see them all again I guess on Friday fingers & toes crossed.( I have packed my little overnight bag 💼) I just want this op over & done with a bit like you may of felt when you had to go for second op.   How cute your little boy helping with the washing bless him. its great you are up doing a few bits & healing well. What has your consultant planned for you now do you know? Are you under the breast clinic at Barnet now that would be a small world also as we could of sat in the waiting room at the same time🤔 No fences down this weekend thankfully but last weekend we had 2 down 😟 weather has been so miserable. I have cooked today which was good & it’s only me & the hubby at home so easy dinner for 2. My children have flown the nest now but all live close by ish & have been amazing support.   Hope you have had a nice chilled weekend with your family but taking it easy at the same time.   you have got this too 💪 keep strong Xxx       I    ... View more

Hi Ya Angie   mad isn’t it that having a couple of busy days knocks the stuffing out of us i was told this happens & going back to work will do the same & like you I really want to return it’s just I guess we want normal again. Wow you are in Bushey I once lived there just off cold harbour lane I am now back in Barnet where I grew up. so I told the consultant I didn’t wish to know the length of time the operation takes as I knew from knowing the last op was 10 hours that made me anxious. i will be back in the royal free I guess you had your op there too with you being pretty near me. its a one night stay I will come home with the drain in & 5 days later I shall have it removed by my lovely cancer nurse Eileen she has been amazing with me through this I sure have had many hospital appointments like you probably.     Then it’s waiting time for results on lymph nodes I have asked what comes next but this all depends on results I’m told. its all kinda set me back as I did plan to return to work at the end of this month hey ho got to keep thinking positive. I was told there is a chance the operation could be cancelled due to there being a big list I have to keep my fingers crossed I do not get a cancellation phone call. i need to get this done sitting around waiting sends me back in worry mode. so how are you doing are you healing ok & I do hope that you’re still resting up & allowing family to help out still. i put some washing on the other day for the first time in a few months & made a nice veg soup it felt good to do something useful 💁‍♀️ big hug back to you 🤗🤗🤗Xxx   ... View more

Hi Ya Dellywellydodah🤗 I finally got more mobile after a few weeks in bed I think why I was in such agony the nurse said maybe a nerve in my tummy & made the pain unbearable to stand hey ho that’s all behind me now. i have had a set back the Lymph node removed during surgery as a precaution the results came back positive it was not the news I wanted to hear & of course I had big meltdowns again as I was sent for body scans to check if it’s elsewhere so it was back to sleepless nights for me again. Scared out of my blooming mind. Lucky for me & huge relief it had not spread I cannot tell you how I skipped out the consultants room. so the plan is I’m booked in on Friday 21st feb for another operation to remove more lymph nodes for testing I’m not sure what the plan will be after treatment wise they don’t really tell me which is frustrating as I want to know I guess they have to wait on the next lot of lymph nodes results.  I feel like my diary for the last 3 months has been full of hospital appointments I know I’m not alone as all us warriors are seeing lots of docs nurses etc. i am getting cabin fever too being stuck in all the time well apart from a mooch to local shop walking distance & I miss not being able to drive 🤔 mind you my scar on tummy feels ok but still numbness but that may never go I was told oh well small price to pay for being saved. so I will be packing a little bag this week for hospital and this is an overnight stay only which is a relief apparently I come home with one drain. I am NOT going to clog myself up with too many tablets that was a lesson learned the last time 😂 embarrassing moments 😂  so that’s my little update & hey thank you so much for checking in on me. i hope you’re doing ok what’s happening with you? Hope you are doing just fine.  I’m approaching the half of century birthday in May so I’m keen to feel human for that & hopefully raise a glass to I’ve kicked cancers arse. 🙏  big hugs 🤗 Nicky xx   ... View more

Hi Angie    good to hear you have been reassured I know in a few weeks you will feel the difference & lol your new boob will begin to feel like it’s neighbour & no one will ever know I think they do a fantastic job it just takes time to adjust to the no nipple part but hey they will come in 6/9 months for us 💁‍♀️ Angie I think Us pink warriors will always be paranoid of every twinge from now onwards  it’s normal & guess we just need to learn to move forward from this & yes I think I will be put on tamoxifen if the next op results are clear. I am just back from my consultant they have provisionally booked me in for the operation on 21st feb but this could be changed as the list is quite long that day. hopefully it will go ahead I know I’m nuts in saying this but I feel like going back to work soon 💁‍♀️ My friends say take more time but i am getting cabin fever I need normal routine again 😂 I may regret this when my alarm starts going off again at stupid o clock. anyway you keep resting & thinking about you big hugs 🤗  where are you in the world I’m in North London. Nicky Xxx   ... View more

Hi Angie i hope you seeing your consultant yesterday reassured you that your new boob is normal to feel that way as I mentioned mine has felt softer in last few weeks so what’s the plan for you now do you need any further treatment ie radiotherapy or tamoxifen.  I’m at hospital tomorrow seeing my consultant I hope to get a date for surgery I think they are going to remove 8 lymph nodes in total I guess I will find out tomorrow I will keep my positive face on. keep up your resting & allow all to pamper you. Nicky xxx   ... View more

Hi Angie   Great to hear your home it is the best feeling huh nothing like being back in your own bed. sorry to hear about you ending up back in surgery that’s not what you needed or deserved 🤗 so I’m sure your tummy feels pretty numb like mine it takes sometime to get used to it & I was told that you don’t always get the full feeling back after having a Diep flap & the boob feels numb also & once the dressing comes off I was told to massage it so when I had showers I did this with a soft sponge it’s 4 weeks today since my op and things feel softer there now & I can finally sleep on my side 🙏 & im walking a lot better. Keep applying cream on tummy scar & boob it helps. i have had a few tough weeks back to the tears again as the lymph node they removed during surgery tested positive so I’m going to be operated on again soon to have more lymph nodes removed it was not the news I wanted to hear & I also then had to have full body scan to see if cancer had gone elsewhere thankfully it hasn’t but whilst waiting for results I went right back to how I was on Nov 19th when I was first diagnosed no sleep & too many meltdowns. Did you have a lymph node removed?  It’s all so scary the feelings and emotions are unexplainable at times & I look in the mirror and see this pale face staring back at me but I tell myself keep positive I’ve got this 💪  I hope you’re resting & making the most of all the help you get & watching lots of movies like me although I do feel I get cabin fever a bit 💁‍♀️ But have managed a few walks with my husband. not lately though due to these winds. keep me posted on how your doing & keep your head held high your a pink warrior now Xx Nicky  ... View more

hello Angie how are you feeling after your operation hopefully you are being well looked after & gaining strength 💪💓   hugs    Nicky Xx ... View more

Hi Angie    you are most welcome I think it’s important to be on this site pre op and post op as we are all brave ladies & reading stories & advice sure helped me through. i had my dressings removed today & made to take a look at my new boob I have to say what amazing clever surgeons I had in that theatre it looks ok just no nipple but this will come in 6 months. you remember you have so got this ok 💓💁‍♀️ Keep us posted when you’re feeling up to it & once again I wish you all the luck & will think of you on the 3rd. glad you got fab support & hell yeah you treat yourself to slippers etc ..... I also did the same and a button up pj too as easy to put on .... all the best .... girl power be strong 💪 xx ... View more

Hi Angie just want to say I wish you all the best with your operation in 3rd February you will of course be emotional & scared but keep strong positive thoughts & remember you are not alone in this so many of us become pink warriors. i was diagnosed with invasive Ductal carcinoma on the 19th Nov I sobbed screamed & felt anxious all the way through Christmas I hid a lot from my amazing family. I had surgery on 10th January a mastectomy on left breast with Diep flap reconstruction the morning of the surgery was emotional but once that needle went in I knew nothing about it my thoughts walking into that theatre were you can do this this is gonna save me these surgeons are amazing. waking up I was so relieved to see my beautiful family I was sore and had 4 drains in place to be honest pain relief was good & I spent 6 days on the ward I found standing up quite painful & walking was tough always ask a nurse to assist you & if you don’t feel confident as for the commode I did😊  it’s important to get up but the first few days I found the toughest. I’m home now & it’s day 17 post surgery I still feel soreness but it’s heaps better & I feel so much more human I have done nothing but rest in bed with the support of my family & husband & now I manage to go out for 5 minutes walk in the fresh air it’s amazing. i have not been brave to look at my new boob I close my eyes  when washing I will get there but when my bra is on it looks the same as the other. Do buy some big knickers for after surgery they have probably advised you of this & don’t over pack your bag like I did you will be in the hospital gown for days because of the drains. Nurses are good at helping you wash & change. I wish you all the luck in the world you got this 💪 soon you will be sitting up in bed watching lots of day time tv Xx ... View more

Oh the embarrassing moment was day 2 the catheter was removed & of course I needed a assistance rang the nurse bell & then a drop dead hunky nurse appears I’m sitting there in my hospital gown with the ties & the back covering up very little 🧐 how could I say no I don’t want you to help me can you fetch me a lady nurse !! Anyway he eases me up with me screeching in pain & I really couldn’t do it so he gets the commode omg 😮 the embarrassing moment I won’t forget . It’s sure good to be home in my own bed I am not to clever on my feet due to the pain but am getting up every few hours to have a shuffle I’m now cutting out my day time tablets coz still not been able to go to the loo it’s ridiculous lol I’m eating fruit like no tomorrow 🤣 I still not yet have had a peep but from looking with the sports bra on it looks just the same as the other boob I just know that the nipple is missing I will one day get that done but the main purpose for this was to get that cancer out of my body 🙏 I will receive results of Lymph node in 2 weeks please god it comes back clear. Meanwhile I’m gonna keep positive & gain my strength day by day girl powers 🤗💓 us warrior girls understand each other thank you for checking in on me 🙏🤗💓😉💪Xx ... View more

Hey    I’m home now & using my own thrown🤣 Pain is still horrendous on the tummy & getting me up the stairs was an ordeal so I’ve opted to stay in bed to recover & with the help of hubby I get up and shuffle to bathroom like a 99 year old . Today is Day 8 after the op and I know this is going to take some time I hope by next week I can maybe go for a little walk on the outside world. Thanks for checking in on me lovely 😊💓💓 ... View more

Hey surgery day arrived it was tough I took my deep breaths in & out had a few tears but mopped them up fast as I was soon to become a pink super warrior like all of you lovely ladies. i was kept busy chatting about my 3 grown up kids whilst the injection went in & 10 hours later I’m in recovery with a hunk of a doctor I didn’t have my glasses but I’m sure it was Mr Clooney himself he made sure I had pain relief coz I needed it the tummy is sooo sore & nice cool water what an amazing man he is. i am on a ward of 4 ladies to be honest I have slept a lot for 2 days I am struggling to stand & shuffle along with all these bags the groin pains the worst. I gave up earlier and asked for commode to come to my bed all the being a lady goes out the window 🤣 I am just doing what I can do as this morning I pushed myself and felt faint and sick. i have had the sports bra fitting tonight I still can’t look I think that’s a long way off baby steps. i am told I will be here up to a week depending on my mobility. so you had your surgery 13/14 years ago and still helping others on here wow amazing 😉 just what I intend to do ... thank you for your help & support it’s blooming hot in this hospital so I shall end this now. love from a newly qualified super pinky warrior 🙏🧗‍♀️💪🤗 Xx ... View more

Aww thank you 🙏 & oh wow yes I will dream it’s him 😂 Xx ... View more

Thank you Jan I did buy some rescue remedy I have spoken to the nurses & surgeons at my pre op assessment & explained my anxiety so they are all in the picture I know that I have to be strong & just go with this it has got to be done I know once the needle goes in tomorrow morning I shall know nothing about it. today has been tough & emotional but I’m now tucked up in bed ready to zone out with some meditation.  I’m up at 5am I’ve got this 💪thank you so much for your kind message and tips .... tomorrow is pink warrior day 💓🙏🤗xx ... View more

Hi Phillipa    i was told Lumpectomy then mastectomy it is what it is I am fearful but positive if that makes sense and yes I remember you telling me this you poor thing Did you have a D flap reconstruction straight after I’m sorry if you have already told me my heads like fog most days.  I’m sorry you got an infection I hope the antibiotics sort it out so you are alright for the arrival of the man in red next week 🎅 rest up and lots of water to flush it out .... hugs 🤗 Nicky xx   ... View more

Hi Phillipa    not been on here as had to get my head around a few things as everything’s changed I’m not having a lumpectomy now it’s mastectomy with diep flap reconstruction as mri shows more cells 😌 but hey I’m back on form a bit & getting positive kept busy up & down hospital appointments & Christmas shopping. hope you are feeling better & you rested following your procedure. big hugs from London 🤗🤗 Nicky xx ... View more