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Mpnewcastle
Member
since
16-12-2019
13
Posts
3
Hugs
25-01-2020
01:43
1 Hug
Hi Nicki Thankyou for sharing your experience, it was very useful to hear and echoes my concerns about having radiotherapy as opposed to mastectomy. I see my surgeon this week and will definitely opt for single mastectomy, and will have to see their response to the idea of double. Michelle
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22-01-2020
02:56
Hi, thanks for the input, will soesk to oncologist again after meeting with breast surgeon x
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22-01-2020
11:37
Hi I'm afraid I cant offer advice based on experience, but I fully understand your thoughts re a mastectomy on healthy breast. I am seeing my surgeon next week and intend to bring this option up for me. Keep me updated on your treatment? Thanks Michelle
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22-01-2020
11:34
Hi, I'm quite shocked that you have been waiting so long. I know its for cosmetic reasons but how you feel about your body image is personal and very important to the individual. Hope this happens for you soon Regards Michelle
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22-01-2020
11:27
Hi, I totally understand your position. I am seeing my surgeon next week to discuss single mastectomy but I would feel so much better about the future if I could have double mastectomy. I think it is highly unlikely that I will get the go ahead but will let you know what surgeon says. Could you keep me updated on your situation? Thanks Michelle
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22-01-2020
11:21
Hi, I'm facing similar decision. My instinct tells me mastectomy is the better choice for me. I have been advised that radiotherapy after lumpectomy has same outcome as mastectomy for me. Let me know your thoughts as you work through this one. All the best Michelle
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22-01-2020
11:16
1 Hug
Hi Nicki, hope you are feeling a bit better, you sound a strong and positive person. I'm not in same position as you, but I am considering mastectomy after chemo finishes as opposed to radiotherapy. Had lumpectomy last August. Given your experience would you have considered a mastectomy as opposed to lumpectomy if you were given the choice? Thanks Michelle
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22-01-2020
11:12
Hi, approx 8 years ago i had silicone breast implants for cosmetic reasons. Last August I was diagnosed with BC which was 1.8mm grade 2 invasive HER2 and oestrogen positive. I underwent a lumpectomy and sentinel node biopsy which was clear. I will complete my chemo in approx a month and the standard follow up would be radiotherapy. However I am considering a skin saving mastectomy and implant for 2 main reasons: 1. I want to avoid undergoing radiotherapy and experience capsular contraction only then to have implant replaced after skin damaged. 2. I have always felt since diagnosis that I would feel less worried about local recurrence with a mastectomy. Has anybody else faced similar situation who could offer me advice? Both the oncologist and surgeon are in agreement that I could choose mastectomy so it is my decision.
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22-12-2019
07:48
I am due to start weekly paclitaxel and Herceptin. I was initially told thst the paclitaxel would start week 1 and Herceptin week 2 so that we could monitor for any adverse reactions. However, now I am going to have both on same day. This has caused me some concern, I am worried about starting 2 new drugs same day. Has anybody else started both same day? How long was the observation period after each ?
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22-12-2019
04:01
Hi, was the main problem with paclitaxel for you exhaustion? I wonder if 9 is a minimum and that's why my oncologist seems happy if mine is reduced from 12 to 9. Did you also receive Herceptin?
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22-12-2019
03:57
Hi That's interesting. Can I ask what your side effects to paclitaxel were? Thanks
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21-12-2019
04:57
1 Hug
I am due to start weekly paclitaxel x 12 and 3 weekly Herceptin. My oncologist has suggested that since I am considered at a low risk, then the paclitaxel might be cancelled after week 9 if I am not tolerating the side effects. I am thinking that if this seems an acceptable plan then I might stop after week 9 paclitaxel anyway. It seems that the paclitaxel is necessary in order to obtain Herceptin, but might not otherwise be prescribed. Has anybody else stopped weekly paclitaxel early?
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