Breast Cancer Care Forum

Morning everyone just a quick one as getting sorted for cycle 5 at 1pm. Apparently today I’m going home with a syringe driver with cyclizine in so hoping this works.As you all know the communication hasn’t been great so let’s see what actually happens when I get there. I know a few of us are feeling up and down and feeling not ourselves.Im the exact same and found that the tears can help me sometimes as they are good outlet.I used to keep them hidden and now I’ve come to realise that it’s got to come out now.I guess at each stage there is something else to manage and curve balls coming our way. Anway I’m sending all of you a massive hug and we are all in it together.As a usual I’ll be a bit quieter after today due to s/e. lots of love and thank you all for your support love and kind wishes ♥️ ❤️ 💜 ... View more

Ju72  so good to hear you are getting strength back after this cycle.Hope you can enjoy everything you can whilst feeling a bit better.I so know what you mean re the treats -I’ve reduced mine too as I was going crazy with them 😂 good luck on your next cycle lovely 💕 x ... View more

Shefgirl  I can’t imagine how hard Wednesday was after being there two years ago.Certainly made worse my doing these appointments all on your own.Sending you such a massive hug. hope you can treat yourself to something lovely over the next few days ❤️ We are all here for you x ... View more

Salsa wow you nearly there too that’s brill so pleased for you  I know what you mean re tiredness I’m shattered. sending you hugs and ready to do a little kitchen dance for you and Shefgirl being finished the chemo ♥️ 🌸 💓 ... View more

Thanks Gem it sure is 💜 Hugs x ... View more

Tmmorris so pleased you are better on number 2 that’s lovely to hear. i feel your pain re conversation with your daughter I have those sort with my 5 year old son 💔 it’s awful.My son said today he can’t wait for things to go back to normal when I’m not poorly. Apparently the out of hours team will be renewing a syringe driver for me after Thursday to help with the nausea but let’s see what actually happens.As you all know I haven’t had a great experience so far sadly.Id love to not feel so ill but won’t get my hopes up.Only 2 more I guess. ive done another couple of runs which was lush.Bitter sweet really knowing I’ll be in bed from Thursday for a week but I can’t change that. shefgirl hope your scan for radiotherapy goes ok and you get your plan soon. sending hugs to everyone 💐 💓   ... View more

Gem ah it was really felt like a small bit of normal for me ❤️ thank you for your well wishes for Thursday,want it over with now I guess even though I dread it. Champagne sounds like a lush idea to look forward to for sure 💕 hope you can manage some other treats  I’ve had to curb the treats as I was having way too many 😂 hope your next cycle goes ok lovely 😘   ju72 glad you managing ok on the T and able to enjoy some treats too 🌸 hugs to all of you lovelies 🌸   ... View more

Morning everyone  hope everyone is doing ok.Yesterday we went to the beach very early in the morning and I managed a little run 🏃‍ ♀️ whoop.I so enjoyed it ❤️ Was good to be out and I felt safe as boys were on people watch but we saw very few  in the distance thank goodness. last weekend before number 5 on Thursday,so will be enjoying a glass of something tonight and something good to watch. sending you all hugs 🌸 💓 hope you can enjoy some nice things xxx ... View more

Hi Shefgirl  pleased you feeling a lot more human now and able to enjoy the sunshine.Hope also you are able to have a few treats 💕 pleased you have a plan going forward.As per usual I’ll be waiting for my plan! bet you can’t wait for last one to come.My 5th one is Thursday 4th so my last 25th June all being well. sending you lots of hugs 💕 🌸 💐 ... View more

tmmorris  I totally agree that both of our children are at a young enough age to cope seeing us go through this.I totally share your thoughts on this though it’s just so hard as they shouldn’t have to see it let’s face it.I know what you mean about us being vulnerable though too as I’m forever explaining that we can’t do certain things and that he wouldn’t have been able to go back to school whilst I’m in treatment.he has accepted this and like you we do what we can to be honest where we can be without scary him obviously.i still have little meltdowns about it from time to time but I’ll not worry about that. what you said about cancer changing you really resonates with me for sure.My perspective on nearly everything has changed without me realising it I guess.All positive though as I’ve not given enough care to myself but have always given it all to others -not from now though. you are correct about being on here as we all get it and have each other’s back which is really comforting. sending hugs 🌸 💕 ... View more

Gem  glad you had no reaction.Im not on the T but sure the lovelies on here will have an answer for you  hope side effects are manageable 💓 🌸 ... View more

Tmmorris  so pleased you also approaching your final chemo.i bet you can’t wait to ring that bell 🛎   we have got our heads round me having two more -although my 5 year old son was a bit sad as he had made me a card saying how happy he was I’d finished and how brave I was ❤️ The card is still up as I’ll get there.Luckily children adapt well but I do hate him having to go through it.Im sure we all in the same boat with all our families.he also is missing his nana,grandad and Aunty.so hard. i really know what you mean about being out in nature -that’s what gets us through bad times isn’t it and of course seeing the people we love. i keep telling myself it won’t last forever although it feels like it will. i wonder how long it will take to feel a new normal after all this.Im in no rush to dive back in to work and I’ll be making changes for sure.Cancer certainly gives you a new perspective. pleased you got some info from cancer hair care I’m going to get in touch with them too 🥰 hope s/e aren’t too bad and sending hugs 💓 💓   ... View more

witchhazel  so sorry you feeling so rough I can totally relate.The mouth thing is ever changing.I started drinking tea after my 3rd ec.But I’ve struggled with thrush each time and I’m on second lot of fluconazole now. i do wonder if things are just tasting strange until we finish.Im still using plastic cutlery to avoid the metal! glad you picking up a bit hope it continues sending hugs 🥰 ... View more

Hi shefgirl thanks for the info on hair -I’m going to have a look at this.I miss my lovely long hair so much now. i wanted to say I know so what you mean when you talk about the mental health challenges.I feel I have had little to no supper really this whole journey with the exception of you lovelies on here and my family and friends.I am lucky in that I was able to self refer to community mental health team when I got diagnosed.My counsellor is amazing and has continued to help me via phone consultations for months now.We use CBT and strategies to help me manage.I do a lot of work myself at home but feel that I wouldn’t have managed without her support.I journal every day and my yoga also helps.Especially given I can’t run at the minute. The look good feel better courses-I emailed them and they said to email them again in June to see what plans are in the process -if you email them they may be able to help.Hope we can access something though as I’ll need some prep and advice when looking at getting back to work (which I’m not rushing ).my job is quite stressful and hard so will certainly be a phased return. I’m so happy you are nearly finished chemo 🥰 I know you have your radiotherapy to do yet.Do you know if you are to have less sessions due to covid?im hearing this is the norm now. hope you have some treats for your last chemo - 🍺 🍷 💐 🌸 massive hugs ❤️ ... View more

Tmmorris that’s great news 😊 so pleased you only have one more to have  nearly time to celebrate for sure 🥳 🍷 you are so right finish line is well in sight xx ... View more

Tmmorris  sending you good luck for today.I share the utter dread of having the treatment. one step closer to the finish line lovely. sending you love 💓 and a huge hug and hope you can get home quick and rest xxxx ... View more

Gem 33  thanks lovely 💜 oh sounds lovely being away from main hospital with covid.especially the cupas and sarnies.My unit is in main hospital and I dread going in there but what can we do. Got my head round having another 2 like you say we want to do all we can to prevent a recurrence so got to bite the bullet I guess.My birthday in July so I’ll be finished chemo by then so that’s my focus now. hope t is ok for you and your nails stay ok 👍   how is everyone else doing? im back on my yoga after this cycle which I’m enjoying.Thrush is still a pain so on 2nd lot of fluconazole for that.Im finding that the fatigue is getting worse each cycle so pacing is a must.Hard to do with our little boy and his schooling though.We are looking into getting a new fan for our bedroom for my flushes as they really bad.Thought they were bad when I had fertility treatment,god they are awful now.Ill find a way to get on with it. hope you all have nice bh isolating plans 🌸 💐 ♥️ Sending hugs xx     ... View more

Shi  thank you for this I’ll give it a try 😍 🥰 💕 ... View more

Ju72 good luck for starting T tomo lovely ❤️ hope side effects are manageable. 🌸 🌻 🌼 ... View more

Tmmorris so sorry about your cellulitis,so pleased it’s on the mend.We could do without added stuff to this all. Im learning fast that everything comes with a side effect jeez,I’m rattling on top of my usual asthma meds! ive started hot flushes plus plus now-hideous.I started these when I was having fertility treatment so I recognise them.Consultant said they may or may not go after treatment-great!! 🙁 I mean come on I’m only 40!! was on a right downer last night-but I’m focused on getting this done now so will get my head down and focus on next cycle and not think about the one after.Think it’s the only way.My body is crying out for a rest but keep telling it it’s just time then I’ve done all I can before radiotherapy. thank you for your kind words ♥️ 🌸 good luck for your second T next week.   hope everyone is ok,sending you all 💕 x  ... View more