Hi Little Gorton, I thought it was just me....all the leaflets and conversations with GP and BCN talk about "dryness" and loss of elasticity. There was little mention of atrophy. They mention "pain" and one guide I read tonight suggested a painkiller before sex, and lots of lube. The suggestion that sex counselling will help feels almost ignoring the biological reason for this. So we have tried lube and I have been using hyalofemme and it feels like I am so raw and sex is incredibly painful, so painful that last time we tried we didn't try again for a month. I have continued with hyalofemme. I have a conversation with the menopause clinic next week. It is the ongoing challenge of tamoxifen, constipation, painful and itchy labia and vagina...and the GP still won't prescribe the hyalofemme despite this being on my medication list. I have worked so hard on recovery, returning to work, trying to keep my child on track with year 10, exercising most days, eating healthier...but everyday, I itch as if I have thrush and I keep being fobbed off. I asked about the low estrogen cream but so far that is ignored by the GP and the BCN at my check up and didn't respond to my question. I wouldn't normally talk about this at all, but losing intimacy after a year of sleeping apart due to treatment...it is just heartbreaking. I really hope next week's appointment helps. I am so tired of this discomfort.
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Dear team, I have been treated for stage 3 NST in my right breast. ANC clearance and chemo and radiotherapy. Now diagnosis with PALB2, so had my genetic counseling session and met with surgeons. Reconstruction options are limited as Diep was used in right mastectomy reconstruction. I want an autologous reconstruction but they said my option is limited to lat flap. They were not as keen on the success of this. So I am seeking advice as someone must have been in a similar position? My biggest reason to keep my breast is for sensation as hugs do not feel the same with my right breast and abdomen being so numb. Biggest reason to have the Mx is to avoid cancer again and have to have surgery and chemo and radiotherapy. Risk numbers were confusing on the day. 30 -60 percent lifetime risk in healthy breast. Surgeon however was saying 2 percent risk per year based on normal risk, not PALB2. I am taking tamoxifen to reduce risk Am looking for more information all round.
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