Breast Cancer Now Forum

Thanks for your positive reply, I forgot to say I was hoping to gift them to staff not sell them. Mastectomy scarred fairies is a possible idea for the future though I can't afford to have more mugs printed at the moment, maybe cards. X ... View more

Hi Tess10 I've no advice other than my experience of Letrazole has been fine. Started it in January before my second lumpectomy and radiotherapy. I haven't noticed any side effects, maybe some joint pain but I have that anyway and put it down to age, 63. Maybe you should speak to a medical professional in case it's not down to the hormone treatment and is something perfectly straight forward. Good luck x ... View more

Thanks. I started on Letrazole 2 months ago and so far had no side effects. Hope it's the same for you x ... View more

Hi Alison I don't work anymore so can't help with that, but if it helps, my sessions were quick, no more than 20 to 30 minutes from arrival to leaving. I had no ill effects at all until this past week, 4 weeks after finishing treatment. So now I have a red angry looking rash in the crease of my breast which is Beyond itchy! I moisturised as advised and now I've been told not to moisturise and use a Mepitel dressing. My advice to anyone would be to ask for help at the first sign of a reaction, I was putting up with it until I asked.  Good luck with your treatment I hope it goes smoothly. X ... View more

Aberfraw my favourite too even though I'm in Trearddur Bay. We used to rent the little white cottage at the very end of the river estuary. Heaven.  ... View more

Hi Adelemck Yes I am, I  live on Anglesey and attended Glan Clwyd though I think I've been to every hospital and clinic in the area for various tests and appointments throughout this thing 😁 apart from Caernarfon for the lymph clinic which is going to be via telephone now.  This might help, so far no I'll effects and I've been slapping on coconut oil. Good luck with your treatment x ... View more

Yorkshire Defector that's great. I believe with the Fast Forward 1 week course you end up with 60% of the the usual dose but because it's fast and furious the efficacy is comparable. Who knows? 🤷‍♀️ Time will tell. Good luck with your treatment I do hope the ghastly Corona doesn't interrupt it. X ... View more

Hi Stringybean You're right, this is just the mopping up exercise post surgery as I understand. I've been told the chances of non recurrence without radiotherapy is on average 95% and with it 97.5%. I finished my course yesterday, rang the bell 😁 and have a follow up appointment in 6 weeks. So far no real side effects other than a bit tired, but when am I not? 😁 and a few breast twinges. I have to say that travelling an hour to hospital and an hour back was delightful, to be out legitimately and especially as we live in Wales we travel the coast road. I'm feeling more positive about the shortened treatment having read that the delay in rolling it out to all trusts is most likely because they haven't been able to follow up for more than 3 years yet. Do ask questions, report back and good luck with your treatment. XxX   ... View more

Thankyou for replying Tili. I've just spoken to a retired doctor friend, who incidentally has cancer himself, he thinks it's ok and the nhs is just a bit slow to implement new regimes and rolls them out slowly. He also said the aromatase inhibitor that I take is probably more important. And, bless him, he's waiting for his letter to request him to return to work. I hope you keep well XxxX ... View more

Thanks for replying Jill1998 I've just phoned the breast nurse and she said to take it off as it's been on a week. I was only concerned about getting a soggy wound, thinking about how your fingers prune if you swim for a long time 😊 in case it messed up the healing process. X ... View more