Breast Cancer Now Forum

Hi Marie9  Are you back on ribociclib yet? I’m still tolerating Faslodex well, hoping it continues to work for me for a long while, I really don’t want anything new just yet!   ... View more

Hi Blondie I do hope my message finds you well! I tried to private message you, but I was not able too.  I have been waiting for your yearly update. How are you? B  ... View more

Thank you for sharing. Does this means you can retire early and get your pension as well as other benefits? I’m still able to work and hope to continue a bit longer. ... View more

Congratulations…amazing news! Have you remained on the same treatment throughout this period? B ... View more

Exactly it’s frustrating! The thing is we are playing this game for big bucks, I want to be more than a number! I need facts and details…why…because…getting knowledge on this subject is a must. I’m going to be more prepared now     ... View more

Hi Gilly I’ve just been taken off Palbociclib  because radiologist used ‘progression’ in his report, which by all accounts was small not sure if it 30%. Is there a way I can get MDT to change their minds? Oncologist was all for me continuing with palbo initially 🙄 Any advice on how I can get this back on my treatment plan? Or is once a new treatment plan is in place it’s non negotiable do you know?  apologies too many Qs!! B ... View more

Good to hear from you Blondie! A year ago you gave me and many newbies hope, and I’ve been looking forward to your 18th year post knowing it was due around this time.... and you have not disappointed me 🥰  When you get given a diagnosis of no cure, and then get to read your journey it gives the hope that we can ‘live with’ IT. Thank you 🙏   Stay safe and keep well xx  B   ... View more

I was diagnosed stage 4 22nd December 2019 clavicle, multiple nodes and liver there was an indeterminate area in my bone near shoulder which thank god did not require me to have bisophonates. I’ve been in Palbociclib, letrozole and zoladex and fingers crossed long may I remain on this combo 🤞🏽 I’ve been having 3 monthly MRIs since the start. It took me a year to ‘get to grips’, but it went  by very fast. One year on, my scans indicate all is stable with some shrinkage  - and I’ve realised that’s good news (more than good) because I will never be free of it 😔 no point in thinking I’ll be cured because it’s not the case, but I don’t let this get in my way. I’m fortunate that I’m quite busy and I believe this helps me a lot, not much time to dwell on the shoulda coulda woulda 😊 what’s the point in that.  If you can.....try your best to be positive, this mindset has helped me a lot, you need to find strategies that help you, what works for me may not work for you and vice versa. I did Dr. Google loads for the same reasons as you, but not so much now as I go on forums and find that much more helpful, interesting and learn much more. I do hope you are feeling better now and treatment has helped x tc Bowler12. B  ... View more

Hi Bowler12 So sorry to read this, I can imagine how not only scary not being able to take a proper breath, but the diagnosis of spread must have been shocking.  I do hope you’re a little more comfortable since Sunday. How long has it been your original diagnosis?  I’ve not been on this forum much lately, but I will definitely log on more often and look out for your messages. Take care B ... View more

Hi Seren23 It is definitely a massive blow that’s difficult to take in, I had my 1st bout around the same time as you. I’ve just had my one year anniversary from my stage 4 diagnosis and I’ve finally got my head around it all - it’s not easy, but once treatment began it became easier and I was adamant I didn’t want my life to change too much, I do hope that it’s the same for you. I take my pills & get my jabs and follow my treatment plan like my life depends on it.. and it does!! ‘Can’t be cured’ is a bitter pill, but you will see that you can carry on, it becomes more ‘palatable’ once meds kick in. I’m working, carrying on as I used to -  I know it can all hit the fan at any time.. I try hard not focus on that...and I figured when it happens- I’ll deal with it then, what’s the point of overthinking about it now! I’m not on furlough, but if you’re permanent and your job is stable - I’m sure you are protected, but I’m no expert. I took 8 months off sick - I needed it! You say it’s back with a vengeance - I do hope you’re not in too much pain. Just wanted to reach out to you, good luck with biopsy. Take care and keep us updated.. B   ... View more

Hi Lisajt I can imagine how you feel - I was given the ‘news’ 22nd December 2020 and since then I’ve tried my best but the dark thoughts take over during the night and when I get the news that someone’s journey has ended because of the beast. I keep myself busy during the day with full time work and family, this helps a lot and also (like you) I see myself as fortunate- I’ve coped well with the meds, injections and scans and I’ve  accepted the diagnosis was not confirmation that it was game over with immediate effect! Another coping mechanism for me is not talking about ‘it’.. works a treat 🙂 this is why I love this forum, talking without talking to nearest and dearest. Our diagnosis is similar, but I’m on letrozole, palbociclib and zoladex. I hope you don’t mind me asking Is your treatment IV infusion? I’m wondering why if our diagnosis are similar then why our treatment aren’t  the same, trying to gather knowledge as ladies with more experience always express that we should be our own advocates. I’ll be getting my 1st year anniversary scan results in a week, fingers crossed for stable.  TC B x ... View more

Great news Jools...stable Mabel fantastic:-) ... View more

Good luck with that Gemma 🙂 wishing you well!  ... View more

Hi Jo I’m sorry I am unable to give you any advice, but I do hope it went well and you’re feeling ok! Sending you a virtual hug 🙂 B ... View more

Hey Kitty- I live in West London, let’s keep in touch x I would like that a lot!   ... View more

Hi Misty What a twit of a GP! I read your post last night and was speechless! I have heard medical treatment in France is very good, it could be your GP didn’t make the grades in the bedside manners module at med school!! I have just approached my first year anniversary with MBC, my journey has no similarities to yours (not triple neg etc) but still, thank you for sharing - you sound like amazing individual x timescales are predictions... that’s what the past tense 12 months have taught me 🙂   ... View more

Such fantastic news Gillyflower, thank you for sharing.  Just what I needed to hear, being positive is all well and good but facts is the cherry on top!! May no activity/disappearance continue to infinity and beyond x not sure if u are NED or NEAD after 12 months both sound amazing whichever from where I’m standing. Bee ... View more

Such sad news! RIP Nicky08 x I have always read Nicky08s posts - very informative and always positive.  The posts have helped me so much during my first MBC year, I cannot find the words to stress the support she provided and the hope she gave. My sincere condolences to her family. B   ... View more