Breast Cancer Now Forum

Thank you all for your replies Just not feeling good at moment due to pain and anxiety. Awaiting review from Royal Marsden  Hope you are all ok  Love  Daisy xxx ... View more

Thank you shi How do i go about getting a second opinion ?. Thanks Daisy xxx ... View more

Hi  How are you all ? I hope you are doing well. Things haven't been to good for me. I had the mastectomy and anc . To be told that 6/,9 nodes contained cancer and one node he couldnt get as was to high up. I then went back to oncology and decided to have rads then capecitabine.  I again mentioned i was really breathless and in chest pain as i had been since oct . Ct scan  has shown tumour in the internal mammary node 4.5cm and 2 further nodes in clavicle and other in axilla. Due to start cape on Tuesday. Feel so angry as i got a copy of my Ct scan from.gp which was done in January which showed this node i was never told about this or followed up . In fact surgeon and histology said internal mammory gland clear . Im so scared to be starting chemo due to all problems of iv chemo but instead of facing it as a preventive ive got to hope it now shrinks tumour as well as nodes . Just feel devestated . Love Daisy xxx ... View more

How did Radiotherapy go Vornsta?  Love Daisy xxx ... View more

So glad to hear your news Tracy and that you are pain free. Have you stayed in ,?  Still no results from the ct scan but had a phone call to go in for another radiotherapy scan on friday as they feel it would be a better treatment to aim at the chest wall as awell as under my arm.  Bit rough today with the chest pain still  Love Daisy xx ... View more

Hi Tracy  Just wanted to say hope operation has gone well today and sending you a virtual hug. Hope you are all ok    Love Daisy xxx ... View more

Hi Vornsta  Had bloods done they were ok . Yes will give them a ring if havent heard by middle of the week   Take Care Daisy xxx ... View more

How are you getting on Thomaschix, charisma and vasanthy ? Lots of best wishes Daisy xx ... View more

Hi Vornsta  Just to wish you good luck with radiotherapy on Monday. Hope you are keeping ok  Love Daisy xxx ... View more

Hi Tracy Thank you for replying and for the vitual hug. I will be thinking of you on Tuesday and sending you lots of love. Glad your new surgeon is nice and great to hear that you will be having less invasive surgery.  So then hopefully the recovery for you will be much quicker. Love  Daisy xxx ... View more

Hi Everyone  Has anyone felt short of breath and so tired after Mastectomy and Axillary clearance. 5 weeks ago I have had ct scan to check out breathlessness awaiting results.  Just not sure if im expecting to much  Love Daisy xxx ... View more

Hi Vasanthy Sorry to hear about having to stop the oral chemo. Do you have a meeting planned for radiotherapy to start ? I understand its all such a worry and sending you a vitual hug    Love Daisy xxx ... View more

Hi Everyone How are you all getting on ?  Just an update from me .I went to see oncologist yesterday as im still experiencing the burping and shortness of breath he is sending me for a Ct scan on Thursday. Following mastectomy and ANC im still experiencing some pain also in my right shoulder.  Sorry if this sounds a bit daft question as anyone else got a nobbly bone on top  above there mastectomy scar. I think it is my rib which would have previously been covered by breast tissue.   I also have scan for planning for radiotherapy on Thursday afternoon . That will be for three week mon to friday starting in about 4 weeks  Then it will be oral carbabetine  for 8 cycles. I dreading that after all the problems of iv i hope it will be less side effects .  The  Axilla node that they couldnt reach in surgery is 1.5cm as it was stuck to the vein . This does play on my mind as they said they give rads to zap it and then chemo to try to prevent recurrence  but there is no follow up scans to check progress which i find strange. Keep safe  Love Daisy xxx ... View more

Hi Everyone How are you all getting on ?  Just an update from me .I went to see oncologist yesterday as im still experiencing the burping and shortness of breath he is sending me for a Ct scan on Thursday. Following mastectomy and ANC im still experiencing some pain also in my right shoulder.  Sorry if this sounds a bit daft question as anyone else got a nobbly bone on top  above there mastectomy scar. I think it is my rib which would have previously been covered by breast tissue.   I also have scan for planning for radiotherapy on Thursday afternoon . That will be for three week mon to friday starting in about 4 weeks  Then it will be oral carbabetine  for 8 cycles. I dreading that after all the problems of iv i hope it will be less side effects .  The  Axilla node that they couldnt reach in surgery is 1.5cm as it was stuck to the vein . This does play on my mind as they said they give rads to zap it and then chemo to try to prevent recurrence  but there is no follow up scans to check progress which i find strange. Keep safe  Love Daisy xxx ... View more

Hi Tracy Glad to hear that you have a date for your operation. It will soon all be over and you can get on with recovery.  The actual healing is quite quick i stayed in overnight too.  Im just experiencing some pain  in my shoulders today and just feel so tired still. I think i may be expecting to much to soon which is me all over.  Love  Daisy xxx         ... View more

Hi Annagabanna Thank you for your reply . I am so sorry to hear that your friends have been rediagnosed. I think its so scarey too and can send your mind into overdrive of what ifs . I never used to suffer from anxiety and was always a positive kind of person but the last 8 months have been a nightmare. I have never taken medication before but im now wondering if it may be an option as each day i just feel so low. I miss my dog so so much and im trying to be strong for my family..im not sleeping well and keep waking in a panic. Its like being stuck in a nightmare.  I really hope the antidepressants help you . Which ones have you tried? Please keep as focused as you can xxxx Im sending you a hug and lots of love to your friends too . Big hug  Daisy xxxx ... View more

Hi vasanthy Hows the oral chemo treatment going,? Hope its not to bad for you. Tracy Hope your appt with anaesthetic has gone ok and do u have a date for surgery  Thomaschix Hows are you doing post surgery ?   Vornsta and calied how are you getting on?  Ive not felt to great with increasing tiredness and just short of breath at times. The hot flushes are driving me mad too. Just trying not to get to anxious but im finding it difficult to stop mind from racing in front. I think i will be better when i can drive as it will give me a bit more independence. Really struggling in missing our dog too. She was like my shadow .  Love  Daisy xxxxx ... View more

Thank you so much Holly leaf it means such a lot to have the support I will try to focus on every day little things Thank you for the advice.  Its when mind runs ahead of me and then see sad stories on news and then panic. Just wish i could get rid of breathing issues and extreme tiredness but everyone is saying im expecting to much to soon I wish you well and i thank you for your love and support .  Love  Daisy xxx   ... View more

Hi Tracy Glad you are doing ok and that you have a plan for surgery. The actual surgery i didnt feel was to bad . The worst part for me was the drains. Pain was managable. I stayed in over night.  They will give u a front fasting bra which im still wearing now as its more comfortable than the one i ordered from Asda. It hard at moment due to Covid in going shopping as we normally would. Ive not been feeling to great in an emotional sense.  I have never suffered from Anxiety before but im finding it hard at the moment as i just feel so tired all the time and very weepy . ( Not sure if its the medically induced menopause as well which isnt helping) Also im so nervous about starting the oral chemo after side effects previously. I hate being like this especially in front of my children . I just want to feel like me again . I have stopped googling and going on any other forums for TNBC as i think im making myself much worse. Any other tips for keeping mind in one piece gratefully received.  You will be fine through surgery and it will soon be another step completed. Sending virtual hug Love  Daisy xx   ... View more

Thank you so much everyone for your reply and kind words. Im just finding so hard trying to focus on anything. Just feel so panicky and really dont want to feel this way as i know its upsetting for my children to see me like this but just dont seem to be able to change my mind set. The nurse in me knows that negative thinking doesnt help but really struggling.  Ive asked to be referred for counselling but this is on hold due to covid. I know that i would be better when i can go back to driving ( im 3 weeks post op ) .   I dont think it helps with the medical menopause as the hot flushes are awful I have downloaded all the mindfulness app and trying to go out for a walk when able. Im just so tired even when having a shower i have to sit down afterwards. I have stopped going on to google and other sites as i feel that i wasnt helping myself  Does all this get better and when  do u start to feel more like yourselves again?. At the moment i cant see the way out. Thank you all for your support  Love  Daisy xxx   ... View more