Breast Cancer Care Forum

Hi Tracy and Vas  Thank you for your replies to my last post. What regimes are you next moving onto ? My last cycle finishes in 4 weeks then due to meet with oncologist on 27th following scan on 21st. The oncologist is going to reduce my dose on wed due to neuropathy in hands and my heel. He made clear not to be going outside apart from hospital appts which i hadnt been anyway. WBC remain on low side but high enough to go for next treatment on Wednesday. Then they are going to increase my filgrastim injections from wed.  Hope you both are keeping well  Lots of love Daisy xxx ... View more

Hi  Hope Everyone is doing ok and keeping Safe. This may seem a bit of a strange one but does anyone experience any strange nasal sensation. It feels like an irritant and makes me feel a bit breathless.  Throat area is not sore or no sigh of infection.  Im not sneezing or not runny nose. Just feels uncomfortable i was wondering due to lack of nose hair if causing an allergy. Ive just got some priton to try today and currently using a dehumidifier in my bed room . Just wondered if this strange one was just me . Take Care Love Daisy xxxx ... View more

Hi Sally  So pleased to hear that you are recovering well and are able to enjoy your garden too. I missed two of my weekly treatments due to low white blood cells  and although i was disappointed not to have the chemo i suppose its our bodys way of  needing to recover to carry on with this harsh treatment.  Im experiencing some neuropathy in my left heel and right hand . It is intermittent but i not if they will also reduce my dose to try to combat this.  I wish you a speedy recovery and keep safe in this time. Big Hug Daisy xxx ... View more

Thank you very much shi. I will keep drinking. I have got one of the gel cool pads to put on my pillow which does help at times. Its such a horrible experience on top.of the chemo SE . I keep checking temp too which is fine so far.  It really has knocked me off my feet today . Thank you for all replies its much appreciated  Love  Daisy xxxx ... View more

Hi Tracy Thats how i feel too and feel quite irritated with the smallest things which is  unlike me really as im normally quite relaxed.  I worked it out ive been stuck in for  20 weeks already and i think thats getting to me a bit too.   Just cant wait to go shopping when all this is over. It just seems ages since doing something normal . Are you due for your treatment this week  ? Xxx Best wishes Daisy xx   ... View more

Hi  Does anyone experience hot and cold flushes. Since starting chemo my period have stopped . Normally  very regular . Im 48.  Its happening about 5/6 times a day and through out the night.  I think that isnt helping how i feeling  Thanks for any advice  Xxxxx ... View more

Thats good news your half way through .Well done .Hope your next treatment will be ok for you too.  xxxx Love  Daisy xxx ... View more

Thats fantastic news so pleased to hear that varsanthy . Ive got my appt for genetic on 14th April unless its done by telephone in the current climate then send bloods across. Did it take long for results to come back ?  How is everyone coping? Ive  feel s bit anxious today its hard enough going through this situation and trying to get through chemo. Ive got next session tomorrow. Which is cycle 3 treatment 2. Consultant rang yesterday to say she has booked me in for a ultrasound scan to check progress. Did anyone else have ultrasound or CT scan?    Hope you are feeling ok now too Sally,? Xx Im currently on paclitaxel weekly then every x3 one with carboplatin.  My treatment will then change to EC. Does anyone know what to expect on EC in relation to SE.?  Im just feeling so tired and anxious today just want to feel normal again . I find im getting quite fed up of people moaning having just to stay in when we are all having to stay in facing all this with chemo side effects too. Just want to be my normal "mum"  Hope you are all keeping safe and sending lots of love  Daisy xxx  ... View more

Hi Everyone  Just wanted to say keep safe and sending lots of best wishes to you all . Hope everyone treatment is going as well as these things can.  Love Daisy xxxx ... View more

Hi wolvesgirl Thank you for your reply it means a lot to me to see how you have all have got through this treatment.  It definitely feels strange on the othet side of the fence so to speak. I find myself subconsciously checking the medication in when having treatment. Although i dont know much about oncology or chemo as my back ground is district nursing for the last 30 years. Just feels hard psychologically to not be able to help out now when needed.  Bloods are still taken by the phlebotomy department but have given us a time visit now instead to try to avoid further contact with other patients etc. Its feels strange going by myself too but totally understand the reasons why. The safer and less risk the better obviously .  I have spoken to oncology team and for my next appt on 6th April this will be done by phone consultation  which is much better than sitting in a waiting room. On a happier note my vegetable hamper arrived today and like you im trying to work out what meals to cook to save any waste. Glad to hear you havent needed to take much analgesia so hopefully on the mend now so you can relax and get back to some normality. Pain is awfully debilitating and i dont think u can appreciate it until you experience it personally. Hopefully your tape will be fine too. Take care and keep safe . Thank you for your support everyone on the chat .Its really is appreciated as it makes me feel that im not experiencing this dreaded treatment alone and the information you share is invaluable.  Thank you  Love Daisy xxx ... View more

Hi Everyone   Wolves girl  I can understand having the message may feel especially when finishing treatment on Friday. Its such hard times . Hope your 24 ECG results are ok. I totally understand what you mean about hospital. It all feels sureal. I have ordered a meat hamper and fruit hamper to be delivered to try to minimise risk and save anyone unnecessary shopping .I was at Newcross  yesterday for my chemo and although business as usual .i was so aware of keeping my distance from other patients. I didnot use the table and limited contact as much as possible  and was using handgel. Nurses were trying to keep the 2m distance from each other as much as possible in trying to carry out their duties. Im just glad that i havent got to go again till monday for bloods then chemo next wed.   Can i ask if anyone knows how far into treatment did u get a progress scan ?   I have also had appt to attend the genetics centre as anyone any experience of what to expect from this ?     Hope you are recovering well from your surgery Lisa ?    Stay safe everyone   Love Daisy xx   ... View more

Hi All Im currently typing this while im in the chemo chair. Thankfully my WBC have increased. Hope you are all keeping well . I have been in doors since October due to the chest pain so this feels a very long time. Its hard to keep busy now really especially with all side effects from Treatment. Apparently i can start from my double treatment which i missed last week. ( i was told not to worry about the one before hand ) The consultants senior house offiicer wasnt very helpful to be honest as she didnt know my regime or even when to see me again so it felt like a waste of time and more importantly an increased risk of attending a clinic area in this climate. My chemo unit states its business as usual but need to make appt to attend before hand 4 bloods.  Currently had the tacol now just awaiting the carboplatin. Feeling very tired at moment and feels strange not to have  anyone  with you.  Take care. Try not to get too anxious if u can  Love  Daisy xxx ... View more

Hi Lisa Thank you for replying and i hope you are doing ok. I hope you get on ok tomorrow with your appointment.   The hospital today was quiet and was able to keep a distance from others. Hope all goes well and stay safe  Love Daisy xx ... View more

Hi Sally How are you feeling today.? Im on a combination of paclitaxel and every 3rd week paclitaxel and carboplatin.  I find that my joints do ache. I take paracetamol and  find fenbid gel which is 10% ibuprofen  ( you can get this from gp Its stronger than the ibuprofen that u can buy over the counter). I also find heat pads help. My daughter had made me some heat pads using rice and odd socks ! ( which work well as they fit round better than ones u can buy. I get pain in my shoulders so the sock can wrap round easily) There was some people on this forum who say loratidine helps .  Totally understand where u are coming from. It makes you feel so low.  Pineapple is what everyone suggests to try and ironbru was also recommended by my chemo unit but personally i didnt like the taste.  Hope you are able to keep drinking as much as u can manage. I used to love coffee cant stand it now. Hopefully the symptoms will pass and we will get through all these horrible times soon . Sending you a big hug and keep safe  Love Daisy xxx ... View more

Hi Everyone  Just wondered if anyone could answer My question. I have missed x two sessions of Chemotherapy due to low white cells. My question is do u carry on through the regime or do u start on the ones you missed.  I ask the oncologist today as she didnt know ! Which hadnt inspired my confidence.  My WBC have increased so in can have treatment on Wednesday which im pleased about . Hope you are all keeping safe    Love Daisy xxx ... View more

Hi Sally How are you feeling today ?  Love Daisy      ... View more

Hi Julie and Everyone  Thank you for your reply and support it means a lot to me. I feel very anxious at the moment due to the virus. I feel scared to go into hospital tomorrow for my bloods and then for the oncologist appt but also feel more afraid if they say my wbc is still to low as i feel that my pain is increasing the last week .  Its such a worrying time for everyone let alone our wonderful Nhs staff working around the clock  obviously as well other key workers such as retail staff etc.   Hope you are all keeping ok and staying Safe. Love to you all  Daisy xxx ... View more

Hi lisa  Glad you are feeling  better and hope each day u keep improving from the operation.   Just rest and stay safe.   Love to everyone  Daisy xxxx ... View more

Hi Wolvesgirl   Thank you for your reply. Im a nurse and have Working in the NHS for the last 30 years. I feel so sad that i cant help in this crisis but i would say to you after all you have been through u need to keep yourself safe .  So glad to hear that you have come to the end of your treatment and it really helps to know that there is a end in sight Thank you for sharing . I just feel so anxious at the moment with everything and it feels never ending to get through this chemo . Take care and keep Safe  Love Daisy xxxx   ... View more

Hi Jem  Im on a similar regime to you. Im on paclitaxel for 12 weeks but every 3rd week get carboplatin too.  Then im to start on EC for 4 cycles every 2 weeks. I have had some side effects such as constipation and diarrhoea.  Taken movicol / prune juices etc to help constipation but lately i have found weetabix with banana and rasberries help. I have experienced a sore throat /cough which was intermittent . Had chest xray but no infection . Ive have had filgrastim injections when i have the paclitaxel and carboplatin. I find these do tend to make my joints painful and also feel fatigued very easy which i find frustrating  as im usually very busy .The main issue i have had is with constant burping which is painful across my chest and breast  I have tried lansoprazole Gaviscon peppermint oil /tea . Elevating my bed . Nothing seems to be working at the moment . I am currently awaiting a call back from Gp to discuss.  I still have quite a lot of my hair left at the moment but its now very thin but have also got a wig which i wear when i go out . Previously had long hair now my head is cold.  How did u find the EC treatment. ?  If i can help in any way with how its been so far for me please just ask.  Take Care Daisy xx ... View more