Breast Cancer Now Forum

Hi Daisy, Thank you for the advice about surgery. Strangely I’m keen to get on with it but knowing me I will find it more difficult after it’s done. You’re right... it’s a nightmare trying to buy things that really need to fit properly online. I think I’ll need to order about four sizes to hopefully find something that fits.  I have always suffered from anxiety so I have probably developed lots of coping mechanisms including a lot of distracting myself with constantly reading or arts and crafts when I’m not working. I’m also finding that I am very weepy and down some days and not so bad others and I wouldn’t be surprised if the menopause has an effect on that too.  I have thought a few times during this that I need to speak to a counsellor - I’ve had counselling before for anxiety and stress and it was so helpful just to have someone to talk to who wasn’t connected to you. I totally get how you feel. I’m not used to being an ill person. I’ve always been quite healthy and independent and it doesn’t come naturally to need help. I have everything crossed for you that the  oral chemo will be a lot easier on you than the others were. Sending hugs xxx ... View more

Hi Daisy, Hi everyone, How are you feeling now? It’s been such a tough time but you’re doing so well as are we all. We should all be wearing capes 💪 !! I’m doing ok this week. I have my pre anaesthetic Assessment on Tuesday and expect my surgery at the beginning of August. I contacted my BCN who gave me some info and put my mind at rest that I would be top priority to get surgery as soon as possible. I was asking her about post surgery bras as I’m finding it very difficult to find anything suitable. If anyone has any recommendations that would be great. The problem I’m having is  that mastectomy bras and soft bras don’t come in larger cup sizes 😠   The BCN also said to wear cotton pants or they would make me take them off to go to theatre! Which did make laugh. No lacy underwear allowed. Hope you are all doing ok xx T   ... View more

Hi Vasanthy, I don’t have a date yet for surgery but the doctor who did the ultrasound said things looked good and all she could really see was calcifications which would not have been affected by chemo. I hope to have my surgery very soon though as my surgeon said it would probably be fine in July xx ... View more

Hi everyone, Daisy and Vasanthy - I’m so sorry that you have both had disappointing news from your pathology results. With TNBC I guess we all have a higher chance of having to have more chemo as there are no other drug treatments available. I’m preparing myself for something similar too. I’ve already been told I will need radiotherapy after surgery.  I am thinking about you all and sending hugs and best wishes xx T ... View more

Hi Daisy, So sorry to hear about your lovely dog passing away. That must have been so hard to deal with along with everything else. Sending hugs xx Glad to hear that surgery went well and no tumour was seen. Fingers crossed for good news when you get your pathology results next week.  Hope everyone else is doing well xx ... View more

Hi Thomaschix, My unit had just moved back into their proper wards a day before my treatment so things were pretty hectic but I don’t think they have a bell! A bit of a shame so it was all quite low key.  Next for me is lots of scans on 9th July which I’m quite nervous about then surgery asap. Then I’ll be having radiotherapy too. There won’t be any other treatment for me after that as I have Triple Negative. I hope the Kadcyla doesn’t have side effects like other chemo regimes though and that you can escape from shielding. Do you have to stay on that for a long time? It’s been a long haul already combined with Covid and shielding so I hope your little one can get back to nursery and you to work. I’m hoping that I can escape shielding once my immune system is back to normal as Scotland is shielding until end of July. We are already allowed to meet up with family outside which has been a lovely relief and go out for walks though I’m not able for that just now.  T x   ... View more

Hi everyone, I have been thinking about you all and hoping that you are all coping ok xx My last chemo went fine and I am now battling through the horrible side effects but thankfully no temperature this time. I’m as weak as a kitten this week but looking forward to getting on with the next stage of treatment.  Vornsta - Hope your chemo is still going ok and that you will soon be finished. I know what you mean... radiotherapy is a bit scary as it’s new but sure we will take it in our stride as we have with everything else xx Daisy - Have been thinking about you lots and hope that recovery is going ok after surgery xx Thomaschix - How are you now? Are you having radiotherapy now that surgery is done?   Vasanthy - Hope you are doing well.  Tracy xx ... View more

Hi Vornsta, Well done on your 10th Pacli. Is that given weekly? Not long now till you are finished xx Hope it doesn’t make you feel too bad.  Daisy ~ Hope you’re doing well following your surgery. I’m sure it’s not a walk in the park but I hope you’re coping ok xx Thomaschix ~ How is recovery going? Do you still have your drain? My sister is a brilliant sewer and she is going to make me a couple of drain bags from the pattern in case I get both done xx Vasanthy ~ How are you doing now? Hope things are going well. All prepared mentally and physically for my last chemo tomorrow xx All the best to everyone on this lovely supportive group xx ... View more

Hi Daisy, The best of luck for your surgery. Thinking about you xx ... View more

Hi Daisy, I have a week until my last chemo. I’m dreading it but will be so happy to know it’s done. I’ve got an appointment for an MRI scan on 9th July so everything crossed for the results of that xx Im sure the waiting before the surgery must be tough with the fear of the unknown. I’m sure I will be the same in a few weeks. Sending you lots of hugs for now and for after surgery xx T x   ... View more

Thanks Thomaschix. I will have a stab at making one. 😊 x ... View more

Hi everyone, I hope you are all doing well xx Vasanthy - Best of luck for your surgery xx Thomaschix - Great to hear you are doing well. And love your photo! I will need to make myself one of those bags soon xx Daisy - Best of luck for your surgery next week xx  I will have my last chemo on 26th. I’ve got a theory that it’s the filgrastim that’s causing my fevers because they’ve started on the same day and gone away after I stopped the injections  will see what the oncologist thinks. Tracy x       ... View more

Hi Daisy, No one had mentioned using antihistamines for filgrastim side effects so I will ask about that.  I haven’t spoken to my surgeon again since the imaging after the 3rd chemo cycle. At that stage my lump had fragmented but I’m sure it has shrunk now going by what I can feel. All I know at this point is it will be July and probably a mastectomy. Last chemo is 26th June. Xx ... View more

Hi Vornsta, at this point I would prefer not to have another docetaxel but as I only have one left I think they will want to carry on as planned. The oncologist did say that he might reduce the dose if this happened again so we’ll see what he decides. If I have to go through this again I will hate it but at least I will know it’s the last time. I have noticed that my lump is much less easy to feel so hope that it is doing its job whilst making me so ill. Thank you for the suggestion re filgrastim. I will ask my team if that is ok to try for next cycle. Hugs everyone T x ... View more

Hi everyone, Caead - It must be a great feeling to be finished with chemo. So happy for you! Your nephew sounds like a cracking boy, very imaginative calling your drain a Juice Box 😃 X Thomaschix - hope you are continuing to heal well x Daisy - Good luck for your surgery when it comes and I hope you are feeling better now that chemo has stopped x Sorry my chemo brain is not letting me remember where everyone else is in their treatment but hope you are all doing well  - Vornsta, Vasanthy, Carisma everyone in the group x Today I’m feeling marginally better so hope that I am on the road to recovery again. I think the filgrastim injections are making me feel particularly awful with the aching bones and joints so will be glad when I take my last one tomorrow for this cycle.  Hugs to all 🤗 T x ... View more

Hi everyone, Hope you are all doing ok as we get through this treatment xx Glad to hear you’re home and surgery is done Thomaschix. Best wishes for a smooth recovery. Xx The hospital has allowed me home With more antibiotics. Docetaxel is seriously tough but only one more to go. It’s my sons 21st birthday tomorrow So it will be nice to see him through the window and have a shielded birthday celebration.  Hugs to everyone 🤗 xx T   ... View more

Evening everyone! Thomaschix - Hope you’re doing well after your surgery x Daisy - Hope you’re doing better now x Hope everyone is doing ok this week x Im back in hospital again after my 2nd Docetaxel. Temp again. Not as bad as last time but they wanted me in to check my bloods etc. Things are moving much quicker this time and they already have me on IV antibiotics so hope to get out more quickly this time. Waiting for another covid test! Worried about what this will mean for my Last treatment xx T ... View more

Hi Vasanthy, All the best of luck for your surgery on the 17th xx I’m sure it will be a relief to finally have it done xx T ... View more

Hi Daisy, So glad to hear you’ve got a new plan and that your surgery will be done soon. Sending you hugs and hoping that this plan lets you feel better and stronger xx Thomaschix - Sending you hugs and best wishes for your surgery on Tuesday xx My 6th cycle went well yesterday. Still feeling ok today but expecting that to change once I stop taking steroids and start filgrastim today. Fingers crossed no temp this time. T x ... View more

Hi Daisy. Please don’t apologise, we all just want you to feel better and are always ready to hear how you’re feeling whether it’s good or bad. I hope the doctors can get this sorted for you as I know when you feel so unwell how your mindset changes or mi e does anyway. You will soon be through this and it could be a good thing if your surgery is brought forward.  Sending you hugs xxxx T ... View more