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lollypop84
Member
since
07-02-2020
99
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105
Hugs
08-10-2020
12:00
Hi angel eyes. ive got a few side effects from letrozole, weight gain, stiff joints, bone aches just feeling a bit stiff in the morning but it’s ok once I get going. Hot flushes, insomnia! Sounds like a lot but I will take all of these side effects because it’s a really good drug! I know many people who have been stable on letrozole alone. Can I ask why you’ve not taken it yet? Danielle xx
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07-10-2020
08:35
Hi Jools, I hope your treatment goes well, what treatment will you be on? Xx
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06-10-2020
02:38
13 Hugs
Hi ladies I had my 3 monthly ct scan 2 weeks ago and got the amazing news last Thursday that I’m still stable! My bone mets in my spine have not changed since they were picked up this time last year and are showing signs of healing which I’m over the moon about. My onc was very positive and told me I have many lines of treatment ( 7+) and he’s really happy with how I’m doing. I’m so relived and happy I’m doing so well. My current treatment is 400mg ribociclib, letrazole, zoladex and denosumab. I’ve been on this since feb this year and I’m coping really well on it. Thought I wound share this good news for anyone else just starting out on this treatment or similar. sending you all lots of love ❤️
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29-09-2020
08:03
1 Hug
Hi, I also have lobular breast cancer with mets to my spine, I am 36. I was diagnosed in January this year. I am er+ and pr+ and her2- also grade 2. I am on hormone treatment of ribociclib, letrozole, zoladex and a bone strengthening injection of denosumab. I had a stable scan in May ( no further spread ) and I am due my second lot of scan results this Thursday! Once your mum has a plan in place hopefully she will feel better. Lobular is slow growing which is good! X
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19-08-2020
08:17
4 Hugs
even with stage 4 and being incurable we are still living a full and normal life, it’s not all doom and gloom! The treatments that are out nowadays can keep us stable and here for a long time!
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19-08-2020
06:21
i have bone mets confirmed in jan this year. Pain doesn’t automatically mean bone mets it can be caused by lots of things. I have no pain from my mets in my spine at all and we’re only picked up by accident on a ct scan when I was diagnosed with breast cancer. I have lots of aches and pains but not where my mets are, different treatments cause aches and pains and a lot of what I’m on causes them. Good luck to you both x
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13-06-2020
06:50
1 Hug
Hi corrina, the treatment is really doable, I have minimal side effects and the worst one I get are hot flushes from the menopause!! I’ve really settled into it on the 4th cycle and feel so well, like I don’t even take anything. My advice to you is....eat before you take your tablets as you’ll feel sick otherwise, drink lots of water/squash...or wine 😉 get a decent moisturiser as your skin will change a bit. Other than that it’s really easy! I do everything that I used to and feel so well which is important for all of us. Good luck and let me know if I can help in any way xx
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12-06-2020
07:37
16 Hugs
I just wanted to post on here for anyone that needs some positivity! I had a scan after 3 cycles of treatment and I got the best news that my cancer is stable and still only in my spine and is also showing signs of healing! I’m on ribociclib, fulvestrant, letrozole, denosumab and zoladex ☺️ I can now allow myself to believe in these drugs and that they will work well for me. For anyone just starting out I hope this helps you feel more positive. I feel like a huge weight haS been Lifted and I’m not under a dark cloud anymore, I’ve not thought about cancer once today! lots of love to you all xx
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04-06-2020
04:30
Hi hippygirl, I also have the fulvestrant injections into my bum so I know how you feel! Ouch!! I had mine Tuesday this week and I’m still sore 😫 I started mine in feb so I’ve had a few now but it doesn’t seem to get any easier or nicer! Good luck with your treatment ❤️
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04-06-2020
04:27
1 Hug
Hi beebs, thank you for sharing the link it’s given me hope as a newbie! Diagnosed with spine mets in jan this year. Xx
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01-05-2020
03:28
1 Hug
Waaaahooooo!!!! What a way to start the weekend 🥳 now go and celebrate 🥂
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27-04-2020
05:48
Hi Mexico, how are you? Thank you for your reply. I’ve actually been in touch with a group called time to talk and they are calling me back this week for a phone chat about ways to help me deal with my anxiety. I’m hoping it helps me and I can stop feeling like I do all the time, I am so newly diagnosed I think I’m expecting miracles and that’s just not going to happen yet. danielle xx
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25-04-2020
01:37
Hi Katie, I sleep so badly also, I wake up constantly all night Long and I’m constantly tired all day 😫 not fun at all. I hope my bc behaves next week to! Xx
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24-04-2020
06:15
Yes I’ve had a low white blood count last month and had my treatment delayed a few days and thankfully they came back up and I was able to stay on the high dose of 600mg! I’m due to start my 3rd round next week and I’m praying my bloods don’t play up! The most annoying side effect is the hot flushes but other than that I’m doing really well on it xx
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24-04-2020
06:05
I’m on ribociclib, fluvestrant, zoladex, letrozole and denosumab! Quite the cocktail xx
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24-04-2020
05:52
Hi Katie, oh the hot flushes are horrific and they stop me sleeping at night. I’m finding I’m coping with side effects quite well and don’t get many really so I count myself lucky! What treatment are you currently on? Xx
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24-04-2020
05:14
1 Hug
Hi woodsbonsai, thank you for your lovely reply, I was only diagnosed with breast cancer last September and was told then that it had potentially spread to my spine but it was to small to confirm. I went through 5 rounds of awful chemo to then be told it was cancer in my spine and that chemo had highlighted it but it was still small thank goodness. I know It’s to early for me to even think about getting my head round this but this week has been really tough going which hasn’t happened for a while as I was coping ok. You’ve really helped by sharing the story of the lady so thank you, I just hope in time I won’t think about it constantly as it’s draining me xx
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24-04-2020
04:56
Hi katie1962, welcome to the site but sorry your here. Sounds like you’ve really been through it health wise. I’m recently diagnosed with secondaries ( jan this year ) and I’m still in a dark place most days and it’s terrifying. I’m 35 with 2 boys aged 11 and 14, I have secondary Brest cancer in my spine in a few places. I’m now on hormone treatment of ribociclib, fluvestrant, zoladex and denosumab and letrozole so quite a combo!! Anyway enough of me going on 😂 lots of love danielle xx
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24-04-2020
04:49
Hi ladies, ive had a terrible week I’ve been in a really bad place and had bad anxiety all week and I’ve been in tears I hate feeling like I do. I have a scan coming up soon and that’s making me so nervous as it’s my first since starting this treatment so it’s a big one for me. I also have bloods next week for my 3rd cycle of meds and last time my wbc was so low I had it delayed so I’m worried about that to. Sorry I’ve been a right moaning Minnie!! It’s nice to read positive stories though that always helps. I hope your all well and coping in this horrible time we’re all in xx
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22-04-2020
10:01
Hi blondie! first of all 17 years....wow!!! Where are/were your mets? I’m newly diagnosed ( jan this year ) with spine mets in a few places and I’m still struggling with my diagnoses. I’m only 35. Have you done anything to help with your mets? Eg diet or supplements? You’ve given me hope so thank you xx
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