Breast Cancer Care Forum

Hi hurshybear,    you’re right it’s so bloody hard. I fall apart and cry at least 10 times a day, sometimes more. It’s the worst thing to be told. ( I’m only 3 weeks post secondary diagnoses) I start treatment this week and I’m so anxious about it. What I can tell you is the treatments they are giving us are very effective and have good results for a long time which is what we all want. What’s your diagnoses and what treatment are you on? Sending you a big hug xx ... View more

The positivity comes and goes a lot during the day...I’m sure it will settle down in time. I hope we can have a long time on the meds. When Is your scan to see how things are going? Xx ... View more

Thank you all for your lovely replies, I’m sure once I get into the swing of the treatment and I get good results (hopefully) I will feel better. I need to try and get my head around my new diagnoses and my new “normal “ but god it’s hard isn’t it. Xx ... View more

Hi Helen,    thank you for replying, yes the nurses at my unit are lovely I saw them all when I had my 5 rounds of chemo! I’m starting, ribociclib letrozole, denosumab and I’ve had my first zoladex jab last week. I’m so nervous and had such bad luck so far I have no faith this will work xx ... View more

Ok that makes me feel better that’s another thing I was worrying about! It’s bloody endless worry all the time and I’m wondering why I’ve got a permanent headache! Xx ... View more

I was also going to ask about when treatment starts...I’ve had my first zoladex jab yesterday and I’ve got my letrozole to start in 2 weeks but I’ve been told my chemo unit will be in touch about my other meds as they have to do them for me. Is this how things work? I’m just getting a bit anxious I’m not on any meds other than my jab! X ... View more

Those cancer cells that lurk about are buggers aren’t they. Seems no matter how much chemo you have if one is left it will make its way around. How was your last scan result? Are you still on your first line of treatment? My oncologist said that one positive is that er+ cancers have more treatment options and new ones are being researched all the time and who knows what’s round the corner. I think the reason I’m so down today is because he used the word palliative and that to me means death...I’ve been a carer for a long time so I know that word well. It’s freaked me out no end today xxx ... View more

Oh no you haven’t come across badly at all I totally understand why you’d want to protect them. If you don’t mind me asking what type of breast cancer have you got? Mine is lobular grade 2. Did you ask what your time frame was? I didn’t ask and I don’t want to know as I know it will panic me even more. Xx ... View more

Thank you for your reply bevC75.  I’ve been very open and honest with both my boys from the very start as I didn’t want any nasty surprises popping up. I went through chemo so lost all my hair and I was quite poorly at times so there was no hiding it I’m afraid. He’s much more positive now I’ve read him nice stories of ladies coping well and being here way past there prognoses which I believe is improving all the time. It’s a tough pill to swallow being told what we have and I have terrible days of panic and fear ( today is one of those days ) but then I think no I won’t allow cancer to do this to me and I pick up again. It’s a huge rollercoaster ride I wish I could get off as I’ve had enough of this constant fear and uncertainty. I find myself wondering how long I have left and will this work for me etc...it’s crippling me and I’m not living my life xx ... View more

I have tired to find the ybcn group but all I can find is an open group? Is there a link you could send me? X ... View more

Hi pawsome,  thank you for replying. I’m glad to hear that after a few cycles the side effects should settle down, I guess it just needs time for my body to adjust and for me to adjust as this is all new. Thanks for all the tips on things I can do, I will admit I love a glass of wine or 2 at the weekend so if I have to cut that out I will really miss it, but if I have to do that then I obviously will as my health is way more important. I hope I get on ok with all this it’s feels quite overwhelming right now xx ... View more

Thank you Jennie60. onwards and upwards I hope, I hope I’m lucky with side effects but I have a feeling being thrown into menopause will be tough for me...I’m only 35 so it will be rough for a while I think. Still if it keeps this evil cancer at bay I will do anything I can. I hope your well xx ... View more

Hi Nicky08, thank you for replying...I’m 35/36 in May so this is going to hit me hard I think as like you said it’s forcing me into it. The side effects do not sound fun but I knew I would have them so it’s no shock! I just hope they do the job for and long time and I can feel more settled and not keep worrying all the time. Xx ... View more

Thanks Mexico, let’s hope they work for me....no reason why not but I always think the worst which is never good for the mindset is it. Hope your doing ok xx ... View more

Hi daylightdancer666.  thank you for your reply, I think I’m going to take him to see the Macmillan nurse next week for a chat mainly about the medication and the fact people are able to live longer and better lives on these tablets. He seemed much better yesterday after a talk with his dad ( we’re separated but get along ) we’ve made plans for the weeknd so that’s given us all something to look forward to. I’m so sorry about your mum it sounds like your family have really been through it. I hope your mums treatment goes well and you continue to have good scan results xxx ... View more

Thank you for your reply kindensurprise. It’s so nice to hear you all saying the fog will clear as at the moment it doesn’t feel like it will, I keep thinking of all the things I won’t see my boys do in the future and that’s sending me to really dark places and I just keep thinking how unfair this is on not just me but all of us. I feel totally robbed of any future. I know I need to not think about those things but it’s all I think about it’s draining me so much and I want to stop but I just can’t seem to, the only time I don’t think about it is when I’m asleep at night it’s exhausting, I’m in a daze all the time xx ... View more

Thank you so much Mexico, your post has really helped me. It’s so nice to know we won’t always feel like we do....at the moment I feel we’re in a black hole and can’t climb out. I’m seeing my oncologist tomorrow and treatment will start and I know I will feel better. I’ve had a good chat with my son today and he’s much more positive and happy about my treatment plan now. I also called the Macmillan nurse and they suggested for him to come in and have a chat with them about it all which I think will help him massively. This is a long journey with many ups and downs I’m sure but I’m ready to take it on. Good luck with your treatment, have you had any scans yet? If so I hope they were positive xx ... View more

Thank you jennie60,  the schools are aware and are keeping a close eye on both the boys. Xx ... View more