Breast Cancer Now Forum

That’s fantastic. I’m happy to hear that. I didn’t realize osteoporosis could be reversed. That gives me great hope that I can get better too.  ... View more

Thank you for the advice. Honestly I am just not able to add more outside appointments at this point. I can barely get up off the couch. But I have now done some research and I have ordered magnesium, fish oil and vitamin d supplements.  I have looked into diet recommendations and this will be harder for me. The idea of giving up dairy just doesn’t seem possible. Also, apparently even heating up foods causes problems. It hardly seems reasonable to suggest eating only cold foods. But I can give up red meat and substitute cornstarch for white flour easily enough. And eating more fruits and vegetables seems like a no brainer. So we will see what happens.  ... View more

I had a horrible diarrhea problem a few months ago and after having no luck with my Drs solving it I finally decided to try going off of all my meds except for my bipolar meds which I’ve been on for 25 years. After 2-3 days the diarrhea went away so I started reintroducing each med one by one. Turns out it was the lisinopril and metoprolol that we’re causing it. Since then I’ve switched to Norvasc and except for a couple of times I ate ice cream the diarrhea hasn’t returned. I just wish the joint and bone pain issue, that I now am convinced is caused by the Letrozole, would clear up as quickly. I stopped the Letrozole last week and I’m going to give it as long as it takes to  see if the side effects clear up. I’m not taking this horrible med any longer.  ... View more

I understand your statement to not stop the med without talking to my Dr but I have been dealing with this for four years now and it’s gotten progressively worse. Initially I walked with a limp but now I’m on a walker and can barely even stand up. I actually had to crawl into my house the last time I went to a Dr. appointment. I almost never go out and when I do it takes me days to recover. I live on my couch. I can’t do ANYTHING. I lost my job. I’m only 52 and I feel like giving up. I have talked with my Drs (my oncologist, my FP, and two orthopedics) and I’ve tried three different meds and I’ve stopped for a month a couple years ago and it didn’t help, so the oncologist says it’s not the meds causing my problem. One of the orthopedic Drs just told me to lose weight and sent me on my way. So last week I finally stopped again and I don’t plan on going back on it. It’s my only hope—that if I give it enough time the legs will get better. I read someone in one of these chats was feeling better after ten months. I really don’t feel I have any other option. I’ve been on these meds for four years and my bloodwork always looks good so I feel like I’m in the clear with the breast cancer. At this rate it’s not going to matter anyway, as there is no way I can get out for treatment if the cancer does come back.  ... View more