I understand your statement to not stop the med without talking to my Dr but I have been dealing with this for four years now and it’s gotten progressively worse. Initially I walked with a limp but now I’m on a walker and can barely even stand up. I actually had to crawl into my house the last time I went to a Dr. appointment. I almost never go out and when I do it takes me days to recover. I live on my couch. I can’t do ANYTHING. I lost my job. I’m only 52 and I feel like giving up. I have talked with my Drs (my oncologist, my FP, and two orthopedics) and I’ve tried three different meds and I’ve stopped for a month a couple years ago and it didn’t help, so the oncologist says it’s not the meds causing my problem. One of the orthopedic Drs just told me to lose weight and sent me on my way. So last week I finally stopped again and I don’t plan on going back on it. It’s my only hope—that if I give it enough time the legs will get better. I read someone in one of these chats was feeling better after ten months. I really don’t feel I have any other option. I’ve been on these meds for four years and my bloodwork always looks good so I feel like I’m in the clear with the breast cancer. At this rate it’s not going to matter anyway, as there is no way I can get out for treatment if the cancer does come back.
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