Breast Cancer Now Forum

Please try and stay positive. My only advice is don't just rely on conventional medicine. Have a look at Care Oncology in Harley Street. Buy the book How to Starve Cancer by Jane Mclelland. Available on Amazon. Take control of your body.  I do both of these protocols. Have just finished chemo incl Paclitaxel. i found it brutal... But others have coped well.  Consider medicinal CBD with a high THC ratio. Look at Dee Mani Mitchell website and How to Starve Cancer website. This lady is causing a real wave in treating cancers of all types. You can do this... Wishing you well. Be positive xx ... View more

Hi Bee I'm not having Paclitaxel weekly but know how you feel. Don't beat yourself up.... I felt great for 3 days. From day 4 for a week I felt wretched. Aching in limbs, fuzzy feet, tingling in feet and hands. Swinging between constipation and diarrhea and severe fatigue.  I forced myself out for 2 20 min walks every day. Slowly I began to feel better. Now I feel great again. My next chemo is 9th Sept. I understand the effect of chemo is cumulative... Rest if you need to. Try to have little walks every day. Eat healthy nutritious food. Drink lots of water. I'm sure it will pass. You've got this... Be kind to yourself. These treatments are brutal. Xx ... View more

Hi Bee,  Thank you so much for your reply. Had my 1st chemo Wednesday.  So far I feel fantastic. No side effects, no nausea, lots of energy... Very bizarre. Not what I was expecting at all. I know it's early days, so just taking it day by day.  Keep well and safe.. Xx 😊 ... View more

Bee3,  Lovely to hear from you. I'm so glad your session was OK and that you don't feel too bad. It has reassured me. I know we all may have a different experience but I'm trying to be positive and tell myself I'll get through it..  I wasn't going to try the cold cap... But maybe I should? I have a wig and one headscarf so I'm kind of ready... What a Rollercoaster this is... Being on the cancer train....  Stay well and I'll check in after my first treatment on 19th. Xx ... View more

Thank you so much for your reply.  I'm starting chemo on 19th.2 cycles 3 weeks apart, then a scan.  In the end, my onco is supportive of me doing the COC protocol, diet change and increase my exercising regime.  I'm apprehensive about chemo but coc protocol increases efficacy of chemo and they recommend a combined approach.  Xx ... View more

Hi I'll be your buddy. I start chemo on 19th. Am having carboplatin and paclitaxel. Once every 3 weeks for 2 cycles then a scan.    I am also doing the COC protocol, with lots of supplements added in. If you don't have it already, check out Jane Mclelland book How to Starve Cancer. It's a positive inspirational read.  You can do this 👍 Best wishes Susie x ... View more

That's great Rosie. Thank you. As if we haven't got a big enough fight on our hands without battling oncos 😩 .  Loads of good health to you x ... View more

That's shocking! Who do these oncos think they are? They are not God and they don't always suggest the best thing for you as an individual. They bang out the standard line... So glad you didn't give in x ... View more

Hi Rosietd Good for you. So glad you sorted things out. I shall be going into battle with my onco tomorrow.  If he stays resistant I'll find another who is more flexible.  I know my body. I know which road I want to go down and I need to be supported not thwarted in my efforts to improve my situation.  Good luck with everything.  X ... View more

Hi Find another oncologist. This is your life. Don't get fobbed off. Hope you manage to sort it x ... View more

Hi Had my COC appt this morning. Starting straightaway. How are you getting on?  ... View more

Hi Nicky,  II'm reading though that chemo can make cancer more aggressive and eventually options chemo wise run out 😯 My BC is er/pr+ her 2- My lung cancer is likely TTF1 adenocarcinoma. Both non aggressive (at mo) both low level. Chemo can cause me lots of other issues some may be permanent and at mo I'm well with no symptoms. I won't be if I start chemo..  This is so difficult... But I really appreciate your advice x ... View more

Hi love mama,  Thank you so much for your response. It's such a hard decision to make but my gut instinct is telling me that chemo now while all is stable with no progression is too toxic and brutal. My thinking is to try COC protocol along with more supplements, dietary change etc to try and hit the cancer and weaken it.. Then go in with a lower dose of chemo. Do COC for 2 months, get scanned and see...  Once you are on the chemo train you can't get off🤷‍ ♀️ .  Hope you are OK? X ... View more

Thank you Nicky.... Nothing is ever straightforward.  I'll carry on researching and asking questions. There will be a way forward.  Many thanks for responding and sensible advice.  Xx ... View more

Thank you gillyflower All you say makes total sense. Lots of questions still to ask.  Really appreciate your advice and input.  Xx ... View more

Hi Nicky,  I have secondary BC and secondary lung cancer 😩 However, I've been told it's low level. Neither cancer aggressive. Stable on scans since March. No progression. No change.  Think they were perplexed by what's going on with me as I've also had an autoimmune disease since I was 23. On steroids off and on since then but it's been in remission for last 2 years. I feel well. Am asymptomatic. Best I've felt for years.... Chemo at this stage seems a sledgehammer to crack a nut. Oncologist even told me it's legal poisoning. I just feel the alternative approach with maybe some low level chemo is a better way forward.. But it's not an easy decision to make.  Thanks for your input X ... View more

Hi Summer60,  Thanks for replying 😊 . We discussed with oncologist Jane Mclelland protocol and he told me they would not allow both treatments. I had to do 1 first then the other and they are recommending chemo first. I'm not happy to try chemo first. I want to try the COC protocol.  Chemo treatment is 6 rounds every 3 weeks with carboplatin and paxlitaxel. I have a very complex medical history. My current diagnosis is secondary lung cancer... They can't locate the primary.. Said my body may have got rid of it. I have also secondary BC. They've told me it's highly unusual. I don't have tumors but microscopic evidence of these cancers in my nodes. My mediadtinal nodes show evidence of the lung cancer, my other node in my pleural lining, which is very small shows evidence of secondary BC, but it's not showing much hormone which my original BC was er/pr positive her2neg. They have said my cancer is low level and stable since March..  I just feel they are overreacting by hitting this hard. I feel they will be poking the tiger.. It's all very confusing. X ... View more

Hi,  I too am in the process of sending COC my medical info. I am thinking of not going straight in with chemo and trying COC protocols first.  Please let me know how you get on Xx ... View more

Hi So sorry to hear about your Mum. Please have a look at FECO Rick Simpsons oil. I am researching this myself to use. It's not legal in this country due to its high thc But... It's possible to get it. There have been staggering results. It's organic and natural but very potent. Best results due to uptake is as a suppository.  My view for what it's worth is you have nothing to lose by trying it.  If you want to PM me I can point you to websites etc I am looking at. It's contraversial. There seems to be some resistance in medical profession to these types of treatments but it's a personal decision in the end.  I wish you and your family all the best wishes. There is always, always hope 💕 ... View more