Thank you for your post. I am so sorry to read about your diagnosis. We want you to know what we're here for you. As you may have seen we have lots of threads on secondary breast cancer as well as the Ask Our Nurses board where you can ask questions to our specialist nurses.
Thank you for also sharing some of your tips and story.
Sending you our best wishes,
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Thank you for posting.
It sounds like you are having a really difficult time with secondary breast cancer. It can be hard to know where to turn to for support.
Everyone diagnosed with breast cancer should have access to a specialist breast care nurse who’s there to provide information and support. Some people will have a secondary breast cancer nurse specialist.
The specialist nurse or your GP can usually refer you to other professionals and who may be able to help in providing you with more effective pain relief which aims to manage your cancer- related pain and improve your quality of life.
If your pain is not under control and affects your sleep you may benefit from the advice of palliative care experts, they specialise in pain and symptom control. You can be referred to the palliative care team through your oncologist specialist nurse or GP. Many people find that once their pain is under control, they feel they can sleep better without waking in pain and are able to be get out and about more which improves their quality of life.
For some people a referral to an occupational therapist can be helpful as they can assess how you are able to manage daily activities including sleeping. They can also request practical aids that can be supplied through social services or voluntary services, for example chairs or beds. There are voluntary services, such as the British Red Cross and the Carers Trust who may also provide practical aids in many areas. Your specialist nurse, GP or local cancer centre may be able to tell you about other sources of practical support as well.
Our secondary breast cancer information pack has a list of useful organisations and charities which may also be able to help.
We provide a number of different services for people living with secondary breast cancer aimed at providing both information and support.
Our helpline team are here for anyone diagnosed with secondary breast cancer. They have time to listen to your concerns, talk things through and/or signpost you to more support and/or information.
At times like this, some people find it helpful to talk with others who are going through a similar experience. We have a secondary breast cancer online discussion forum for sharing information and support. There is also a weekly Live chat session which runs on Tuesdays at 8.30-9.30pm.
Both services allow people to talk over their experiences and offer support to each other.
Our face to face Living with Secondary Breast Cancer monthly sessions also give you the chance to meet and share experiences with other people who understand what you’re going through because they’re going through it too.
In a safe and relaxed environment, our regular sessions provide information about all aspects of living with the disease, as well as the chance to meet and talk openly with other people with the same diagnosis. Each support session is led by a qualified therapist with group facilitation skills and relevant counselling experience.
You’ll hear from expert speakers about a range of topics such as pain management, side-effects, fatigue, clinical trials and benefits, and have a chance to ask questions. There’s the opportunity to find out about other available support and services too.
People are welcome to attend as few or as many sessions as they wish. Refreshments (including lunch at longer sessions) are provided. You can search for current locations dates on the above link or you can call 0345 077 1893 for more information.
We often find we can help people more by speaking to them on the phone. Your call will be confidential and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
Our usual opening hours are Monday to Friday 9am to 4pm and 9am to 1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
Thank you for contacting us. Please contact us again in the future if you have any further queries.
Breast Cancer Now Nurse
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