Hi all So lovely to read your messages and despite the hideous things we are dealing with to just know how we are all in this together. I am really a Feb chemo starter but joined the Jan one in chemo fog brain and have now looked here and wanting to share here too! Chuck - mouth ulcers - I had them the first time but oddly not the 2nd but I found a gel called Iglu really helped as it seals them. Ju72 - I got very anxious last week about what was happening with my treatment so called my chemo ward who arranged for the consultant to call me before my planned appt the day before my next treatment. For a couple of days last week I felt like the breast cancer had been eclipsed by covid-19 which was so upsetting but then I somehow became pro-active with reaching out and also called my breast care nurse and came on here, to thankfully find the reassurance I needed. My telephone appt is tomorrow so am rather apprehensive whatever the outcome. I have also been self isolating Hannah as I live alone, and even though the support from family and friends has been incredible, it's just not the same as being with people. Last week was literally the toughest of my life as i was dealing with the chemo side effects of raw skin down below, rash from antibiotics, lost voice etc etc. I was crying constantly and had to write a daily list to remind myself of the things I needed to do to look after myself. The last 2 days I have turned a corner and what has helped massively is knowing that my 25 year old son will come to stay with me in a couple of weeks after he and his dad will self isolate together first. I wonder how long before I annoy him! Also my partner has built a seating area in the front of the garden for visitors so they can keep the required distance! I'm lucky to have a front garden to make it possible to clap eyes on friends. Finally, just to say about hair loss - I decided I couldn't handle the cold cap so once my hair started coming out, my head was shaved as I found the strands of hair all over the place quite distressing. Luckily I got some headwear specifically for people with hair loss, the week before. Claire, of Chemo Headwear, Lodsworth, West Sussex was fabulous when I visited her and has a vast array of styles and fabrics. I'm sure you would be able to speak with her and look at styles online. I am pleased with mine and they keep the back of my head warm, which seems to be constantly chilly. Anyway I seem to have rabitted on a bit but sending warmth and love to you all. Jill x
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