Breast Cancer Now Forum

Hi Ladies, delighted to hear you are all doing so well and fantastic news Lorna that you’ve had your surgery at last, I’m so sorry it was delayed but at least everything is moving forward now.  I’m on monthly Zoladex and daily Exemestane, not going to lie Jemmalou the side effects are not pretty, hot flushes, night sweats, bone and joint pain and insomnia, BUT small price to pay for being here and healthy! I’m also on biphosphonate Sally, weekly tablet as my bone scan showed weakening in the lumbar region. Can’t believe this crazy year has gone so fast!! The downside of having hair again is no haircuts during lockdown so I’m sporting a very interesting style 🙈 🤣 but it’s all good! Stay safe and healthy 🙏 ... View more

Hi All, Just wanted to check in to see how everyone is doing a year on from starting the crazy chemo train. It’s definitely been a year none of us could have imagined. Hope everyone is doing good x ... View more

Happy 40th Catd2504! Not exactly the best way to celebrate hitting the 4.0. but hopefully there will be plenty of celebrations when you’re feeling better. I finished chemo 6 weeks ago, unfortunately earlier than expected as my last two sessions were cancelled thanks to corona. Don’t know if that made an impact on the hair regrowth but I’m really surprised how well it’s coming on. It’s still more a kinda fuzz than hair but I’ve got some kind of covering on most of my head (still a bit of the crown playing catch-up) and definitely a few more hairs on the eyebrows. I know it probably doesn’t sound a lot but I had literally nothing 6 weeks ago and thought it would be a few months before I saw anything so I’m very surprised. Hopefully you won’t have to wait too long to see some improvement! ... View more

Hi All, So glad to hear everyone is doing ok and side effects are easing, long may it continue!   I met my oncologist last week and she confirmed they are stopping my chemo, just too high risk in the current climate. I am starting hormone treatment next week and radiotherapy in next few weeks hopefully. Being totally honest, despite the horrendous side effects last time, I am gutted. I completely understand why and it is the safest option now but if four chemo sessions will now suffice, why was I originally prescribed six. I feel I am being shortchanged and possibly at the expense of my health. I can only hope this change now doesn’t mean I pay dearly for it down the line.    Apologies for such negativity, I’ve been so positive this entire journey but it’s hard not to question things at the minute, and much harder to see the bigger picture when we are all living under this black cloud of corona. But none of us are strangers to battles and this one will be no exception, we’ll beat it one day at a time. Please look after yourselves and stay safe x ... View more

Hi All!   I just found this group today and the timing couldn’t be better. Glad to find others going through this at the same stage as me. I had my 4th chemo on 19th and my first dose of Docetaxel...what an introduction! I had the usual symptoms on my first 3 rounds of FEC fatigue, nausea, sore mouth but got through it ok and did feel I got off lightly.   Well the Docetaxel sure made up for it! I had four days of some pain and a lot more fatigue than the FEC but woke up on the 4th night completely burning. Managed to get my temp to come down eventually but spent the next 5 days in bed with sweats, severe pain and zero energy. I did ring the helpline on the 5th day and they told me to stay at home, keep taking paracetamol and liquids and contact them if I got worse. They are very apprehensive about taking high-risk patients into hospital because of present circumstances. My temp hasn’t went above since but I’m still taking the paracetamol just incase (I’m checking my temp before I take the paracetamol) I started coming around better yesterday but it really did scare me, especially with corona at the minute you can’t be too careful. Sally I’m so sorry you had to go through that it sounds awful and very scary, thank goodness you are home and safe now.   Sadly my last two chemos have been cancelled but they are bringing my radiotherapy forward instead, less chance of infection. I’m now at the stage I’m almost scared to go to the hospital for the radiotherapy. It’s a crazy world for everyone right now. Stay safe everyone x     ... View more