Breast Cancer Now Forum

Afternoon everyone Tara sorry to hear you’re not feeling brilliant.  I’m due my third FEC on Thursday and I’ve still not recovered from the second one. I feel like I’ve never got any energy and appetite isn’t brilliant still.  I too go off of tea after I’ve had my treatment only had my first cuppa today. ive been suffering from terrible heartburn this time round think I’ve taken out shared in Renee tablets 😂   We managed to have a lovely break away last week only to a haven site, nothing was really open but it was a change of scenery.  Kids enjoyed it as the beach was deserted.  I felt bad though as I was too tired to go with them and hubby all the time so had to stay and rest in the caravan.  Was proud I managed a 4 mile walk one day but then ended up in bed poorly so think I may of over done things. im worried that this second round has really taken it out of me so I’m dreading how it’s going to affect me after the third one.   it’s sunny here still so I’m going to sit out in the garden for a while and see how I feel. hope you all have a lovely day xx  ... View more

Hi Claudia  I agree with what everyone else is saying that’s how my hair felt before it started falling out, like I’d had my hair up too tight and it needed washing. xx  ... View more

Evening everyone  so sorry it’s been ages since I’ve been on, I’ve just tried to have a good catch up on everything.  Happy belated birthday Tara. everyone sounds so positive.  Glad everyone is ok. i had my second round on 9th and I’ve felt dreadful since then.  Thankfully they altered my anti sickness meds so I wasn’t sick again but felt nausea since then, not a lot of appetite so picking as and when, hopefully it will help the diet that I started before all of this happened but doubt I will be that lucky.   I’ve had a very weird sensation since the chemo the bridge of my nose and above feels errm fizzy, not sure how to explain it.  I know I should call the number and ask them but I don’t like to bother them it’s probably just me being a wuss 😂 some one asked about work, I had all intentions of carrying on working through the chemo but since I started chemo on 18th June I’ve only managed about 5 days going in.  Work have been amazing and aren’t expecting me back until next year and they are still paying me as normal.  I work for a small mental health company as the manager so I am planning on going back in January.  Like I said they have been amazing I’ve had cards flowers, chocolates and a cancer care package.  I couldn’t ask for a better place to work. anyway enough of me going on  love to you all  Leanne xx  ... View more

Thank you horseylass but I think I look like an alien.  I’m slightly confused as well..... I’m naturally a ginger so no idea why the little bit of stubble is black 🤔 🤔 im sure you will rock the bald look when it happens, others see something completely different to what we see ourselves xx   ... View more

Oh I don’t know how to turn the picture 🤔 it’s scary I now look like my brother lol 😂 . well my brother and his lot came over tonight and I didn’t scare them away 🤣 . Let’s see what the office staff think on Monday 😬 xx  ... View more

Anna45anna sorry that you have been feeling so unwell.  Did you speak to your oncology team about the sickness?  Glad to hear that you are feeling better though.  I know what you mean about the exhaustion of parenting and I’ve got my hubby to help.  He’s at work during the day so it’s all down to me, they have been good but my daughter who’s 14 had the attitude and it’s exhausting. haha Tara it’s just like brain freeze isn’t it 😂 . Maybe we will get used to the cold or I hope so anyway.  ive got my brother and sister in law and their kids coming over tonight for an hour and it will be the first time they have seen me bold, let’s hope I don’t scare the kids 😂 xx   ... View more

I’m the same my hair started coming out about day 10/11 but day 15 I had a couple of patches so took the plunge in shaving it off. i totally understand what you said Tara about getting support from people who are no longer with us.  We lost my father in law at Christmas through pancreatic cancer, when we had him cremated I had some of the ashes made into a pandora charm (sorry if that’s morbid) but I wore my bracelet when I went for the chemo and took comfort in knowing he was there with me and looking after me.  We were really close when he was alive. I can’t wait to feel back like myself after all the chemo then radiotherapy but as hard as it is at the moment we are all having this treatment for the right reasons so we can actually still be here. im feeling the cold with this shaved head and sat in my living room with a woolly hat on lol 😂 kids find it amusing 😂 xx ... View more

Ann you are so right about the support this group gives.  I don’t know about anyone else but I try not always very well but I try to put on a brave face for everyone and stay strong but in here you can be completely honest as like you say we are all in the same boat. Don’t get me wrong my husband, kids and brother and sister in law have all been amazing and I couldn’t of got though it without them but like they have said they can only try and understand. thank you to all of you lovely ladies for your support and encouragement through all of this.  Shame we don’t all live down the road from one another we could of all had a socially distanced cup of tea 😊   xx   ... View more

Hello everyone.  Tara hope the sickness passes for you.  I’m due my second round on Thursday and I’m dreading it with how sick I felt before. i had to take them plunge and shave my hair last night, more and more was coming out everyday and I kept letting upset, then I found two bold patches and typically they were right at the front so couldn’t hide them.  I sobbed like a baby when hubby was doing it.  (Think he had a little tear as well behind my back).  Still a bit emotional today especially when my sister told me she’d been crying for me as she felt hopeless and there was nothing that she could do (she doesn’t realise how much she is helping just having a cuppa and chat) hope everyone is ok xx  ... View more

Tara it shows you get what you pay for with the wigs, mine were cheap ones and you can tell.  I will have a look at the company you got yours from. claire I’ve got spots as well but at the minute only on my face, I’ve never suffered with spots so feel like a teenager now.  I’ve got one just on my lip line and now my lip is really swollen 😢 at least I think it’s a spot.   horseylass I hope you enjoyed your walk, it’s raining here at the moment so my doggy will just have to wait for now. love to everyone x ... View more

Tara the wig looks amazing you can’t tell it’s a wig.  Where did you get it from? As I said mine were awful the kids and husband nearly wet themselves laughing at me 😂 xx   ... View more

Hi claire welcome to the group, I’m having 6 rounds of FEC so different to what you are having.  I had my first round on 18th and due my next one on 9th July.   All I can say is make sure you drink plenty and rest when you need to.  I was really sicky after the first round and the ladies in this forum were all amazing and told me to speak to my oncology team and they have agreed to alter my anti sickness meds so fingers crossed for next time. I wasn’t given injections and asked and not everyone is given them so don’t worry 😉   i hope it all goes well for you  Leanne xx  ... View more

thank you Ann I will let them know as don’t want to feel like that every time xx  ... View more

oh Tara I hope it’s not too sore for you.   I didn’t call the oncology team and just pushed through it all.  I’m with you on the tiredness through nice never felt this tired before.   Work have been amazing and have told me that I don’t need to go back until January (on full pay) but I’ve had 5 weeks off and I’m getting bored.  They have thankfully agreed that I can go in as and when I feel like but on light duties.  I will just have to see how it goes. ive been having a lot of light headed ness lately but apparently my calcium levels are really low at 2.1 so I’ve been put on adcal to try and get the levels back up. hope everyone is ok x  ... View more

Sorry not been on for a while. happy belated birthday horseylass.  Tara your wig looks fab.  My hair is starting to come out but not enough to shave it yet thankfully.  My wigs arrived and they have gone straight into the bin.  I thought I’d have a couple of different ones but omg 😮 I look like I’m in drag so I think I’m going to embrace the boldness and just wear the beanie hats instead.  When did people start to really notice their hair was coming out?  I hope everyone is coping with their sessions of chemo.  I was so poorly after my first one on 18th and so I’m dreading the next one on 9th July I’ve never felt so tired, drained and sick but thankfully since about Wednesday this week I’ve been feeling better. i promise I will try to come on more as you are all so supportive.  i would post pictures of the wigs but I’m worried you will all get a stitch laughing lol 😂   everyone enjoy your weekend xx ... View more

hello all you lovely ladies. Sorry I’ve been quiet for a few days.  Welcome to the new people sorry I’m useless with names. well I had my first course on Thursday as as I said a bad day but things have improved slightly. Although I feel like my energy has been zapped all I was to do is sleep.  I don’t really feel like eating but know I’ve got to.  All I fancied yesterday was Chinese sweet corn and chicken soup so I made the rest of the family endure a Chinese just so I could have my soup and oh my it was amazing.  I’m just sleeping as and when I need to but I do feel guilty for the rest of the family.  I’m trying to be on my best game by Tuesday as it’s my daughters 14th birthday and don’t want to ruin it for her. my wigs haven’t arrived yet but my hats from hats4heads have and they are brilliant for the cost.  I got 6 different ones for about £40 so can have a change when I fancy it, although so far my hair is all in tact (I think) I’m paranoid when brushing it and check the brush to see if it looks like a normal amount. still having to take the anti sickness tablets every day and now on a laxative but apparently that’s from the steroids they give you.  I’ve not had to have the injections this time but they said they will reassess at my next session. good luck to those starting their treatment on Tuesday  xxx   ... View more

Tara loving the wig, when mine arrive I will post pictures.  Well had my first round today of Fec, it went really well no issues being given it at all.  Came home and felt like I had the worst hangover and sickness possible took an anti sickness tablet which didn’t help and finally at 8pm was sick.  Now my back (kidney area) is hurting but think it’s from the wrenching.  Has anyone else felt like this after their first one? I’m hoping I’ve got the worst of it today and will be ok tomorrow 🤞  But on a positive I got home to a lovely bouquet from a friend which cheered me up as well  sorry to bring the chat down.  Xx ... View more

hi plumblossom and welcome, I’m not normally one for forums but everyone in here is so supportive and it’s great to be able to talk so openly, it’s sometimes hard with family and friends as I tend to put a brave face on and not worry them all.   good luck for tomorrow.   thank you everyone for the well wishes for tomorrow xx ... View more

Thank you horseylass, good luck for Tuesday.  I was told by the nurses not to drive myself as your blood alcohol levels can be over the legal limit for driving.  When did you have your operation done? Sorry you probably have said.  I didn’t drive for 4 weeks following mine as it keep pulling on the scar.  It’s not easy but enjoy letting other people do things for you, well that’s what I was told. xx   ... View more

Thank you Cubot I’m so nervous about tomorrow.  Sorry to hear about your hair I’m dreading it.  I’ve ordered some beanie hats from hats4heads they should be here in the next couple of days, they were so reasonable with the prices, I think I’ve ordered 5 plus a sleeping one and it was only just under £40.   good luck tomorrow with your second round and also to anyone else have a round this week xx ... View more