Breast Cancer Now Forum

HEW · ‎04-09-2020

I have titanium clips from biopsy's. They told me that it was a marker so that they could find the exact same spot again. Part of this is because I'm in my 30s to my tissue is dense... the clips help when I get mammograms. I was told they would not set of airport alarms, although I haven't tested it out yet. After is healed (2 weeks) I didn't notice them being there.

HEW · ‎17-04-2020

Hello, Yes, a big thank to everyone who replied. I'm sorry I've not been back on sooner, I was winding myself up with googling things (DCIS and Covid related) so I had to give myself a bit of an internet ban. I'm so sorry for everyone having to go through any sort of medical treatment at this time. It's really scary. I had to go in for a pre-op assessment on Tuesday and panicked a bit then about being in hospital nevermind going through the op. How are you feeling now Daffodil after your op? I hope much better. Has your consultant made an decisions about further treatment? Marisawray..... how are you? Have you managed to get through to a helpline? xx

HEW · ‎03-04-2020

Hello, I'm sat here hoping I get a call for surgery I don't want. It is such a surreal situation to be in. I'm 34 and got diagnosed with high grade DCIS at the start of March. The plan was a mastectomy of the left breast with reconstruction at the same time. Now because of the virus I can't have the reconstruction and I'm on a waiting list of people needing surgery that gets discussed and prioritised weekly. No-one is monitoring me while I'm getting beaten to the surgery slots every week by people with a more pressing surgery need. I totally understand this but it doesn't make me feel any better.... how will anyone know when I become most urgent? Will I ever get the surgery? It was also hard enough processing having a mastectomy but now knowing I'll be flat on one side is heartbreaking. I can't seem to find photos of how it will look or what clothes I'll be able to wear.

HEW · ‎03-04-2020

Hi, I'm in a similar situation, I got diagnosed at the start of March 2020. I had two very bad miscarriages last year and the feeling of 'why me' is sometimes overwhelming. I'm not really sure there is anything that helps for people to say but what I'm constantly telling myself is 'I will get through this, because I have to'. Really what is the other choice? You can't give up. Have a few proper crying sessions now and again and then try and be strong and don't bottle it up. Don't push those close to you away and take help where you can get it. Thinking of you. x

HEW · ‎03-04-2020

Hello all, I'm not 100% sure why I'm writing on here but I thought getting it all out might help. I'm 34 and got diagnosed with high grade DCIS at the start of March. The plan was a mastectomy of the left breast with reconstruction at the same time. Now because of the virus I can't have the reconstruction and I'm on a waiting list of people needing surgery that gets discussed and prioritised weekly. Whilst I'm pleased I'm on the list I'm worrying that I'm getting worse (every time I feel a pain) and that no-one is monitoring it while I'm getting beaten to the surgery slots every week by people with a more pressing surgery need. I totally understand this but it doesn't make me feel any better.... how will anyone know when I become most urgent? It was also hard enough processing having a mastectomy but now knowing I'll be flat on one side is heartbreaking. I just put on one of my favourite tops and burst in to tears knowing after surgery I'll never be able to wear it (or half my wardrobe) again. Realistically I won't be able to get reconstruction because the waiting list is looking like 2 years at least and my husband and I are hoping to have children (I had two missed miscarriages last year) so hopefully in 2 years I'll have a small child and if I go in for surgery I won't be able to look after them. Also it will be trickier because they'll have had to cut off and throw away all of my breast skin. So I'm trying to make my peace now with always being uneven, for 40+ years. It's so hard not to spiral thinking about the what ifs etc and having all the uncertainly is driving me insane. There isn't anything anyone can do or say but I needed to get it all out so I don't keep it in and end up feeling bitter. I was in a rubbish situation before COVID but at least I had some options. I feel like all my options have gone now and I'm just fighting for any chance of surgery and this not spreading. *big deep breath*

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