Breast Cancer Now Forum

bakerpat · ‎25-04-2020

Hi Horseylass, I was diagnosed in March too. Grade 1 ER+ I am on Letrozole, with a view to Surgery 'later' after lockdown etc. Sounds like my husband is reacting similar to yours, he doesn't talk about it. It's like it isn't happening. I found it hard telling my kids over the phone, but circumstances the way they are, it had to be done. It's new to me having people ask what they can do to help. It's usually the other way round! I hope your surgery goes well when it eventually happens. It would be nice to hear from you afterwards. Pat x

bakerpat · ‎25-04-2020

Advice please. I was diagnosed on March 31st. This might be a silly question, but does everyone have a Macmillan nurse? If not, how do you go about getting one? Do you have to be referred or can you request one? I was prescribed Letrozole, and given the number of the breast care nurse, but the way things are re. Covid 19, I feel I have been somewhat left to 'get on with it'. How much contact/monitoring is there usually after diagnosis. TIA

bakerpat · ‎13-04-2020

Hi Jan, Thanks for your reply. In our house, he's always been the one with ailments. Any that I have had I just 'got on with it', but this is different, and I don't think he likes the fact that the focus has shifted. As you say, I'll have to live with it, but it does help to know there are people willing to listen. Pat xx

bakerpat · ‎13-04-2020

Thank you Jaybro. Maybe he thinks he is helping by not talking about it. He has multiple health issues also, and I sometimes feel it's like a competition, and it's all focussed on him. I'll give him the benefit of the doubt, and see if he changes further down the line. Take care, Pat x

bakerpat · ‎12-04-2020

I was diagnosed on 31st March, and I also received my diagnosis over the phone. My oncologist said she had never had to do that on the phone in all her career. I've started a blog about how it feels to be newly diagnosed in these strange times. I wish you well on your journey.

bakerpat · ‎12-04-2020

I was diagnosed with ER positive cancer on 31st March, and was prescribed Letrozole. When I told my husband, he didn't say much at all, apart from 'oh bloody hell', and 'well it can't be that bad if they've sent you home with tablets'. He seems to think that because I'm not having chemo, it's just a formality of taking the pills then it goes away. When I've told friends and extended family, they have all been really concerned. It's not that I want people to be devastated and fuss over me all the time, but after my husband's reaction, I feel as though I'm making more of the diagnosis than I should be? Does that make sense? Am I over-estimating how serious it is?

bakerpat · ‎05-04-2020

Thank you 🙂

bakerpat · ‎05-04-2020

Hi, I'm a newbie. I was diagnosed on March 31st, and given Letrozole for a few months until the Corona situation improves enough to have surgery. I also have Protein S deficiency, which makes me prone to clots and DVT. I take Clopidogel anticoagulant, but I read that it can lessen the effect of Letrozole. But Letrozole can cause clots, so I'm confused, because I need the Letrozole for the cancer, so if I stop the clopidogrel to make the Letrozoel more effective, I could be at risk of clots from not taking the Clopidogrel! Any thoughts?

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