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GinaK
Member
since
23-04-2020
15
Posts
2
Hugs
2 weeks ago
1 Hug
Hi folks I was just wondering if anyone on here had been diagnosed with secondary breast cancer with cancer of the unknown primary.I have finally had PET scan results not showing any primary.So because I had DCIS grade 0 high grade breast cancer 5 years ago which they said didn't require treatment. Now they are saying the right ampillary lymph node which is measuring 1.2 mm classes this as secondary breast cancer as this showed up on ct and pet and biopsy stated metastatic adencarcinoma and doctor says it has spread from somewhere else in the body, although on pet there was no spread,due to pathology report they think it is breast related so are treating it as this, but I am terrified they have got it wrong and they are giving me wrong treatment.I started on low dose paclitaxel for 12 weeks today and herceptin every 3 weeks .I also wondered what the rest of you eat as cancer loves sugar so I am on a diet with no sugar in it mainly veg and green tea small bit of chicken green smoothies but my weight is dropping 2 lbs a week as I also have no appetite atall .Hoping some of you can give me some input. Thanks very much Gina K
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a month ago
Hi Nicky I have to get herceptin and 12 weeks low dosage of paclitaxel, but I awaiting an appointment for a PET scan first, as I have absolutely no appetite and I feel full up very quickly and I have a lot of pressure in food pipe after eating food takes ages to go down, if I take a tablet it takes an hour to go down .My oncologist says esophageus and stomach can express HER 2 positive as well and that an increase in size an internal mammary node can be from a primary cancer somewhere else so my case is quite complicated.I'm trying to keep positive but these digestive issues are worrying me as secondary breast cancer doesn't cause these.If it is esophageus or stomach on top of already secondary breast cancer I think I'll just give up.Thanks for your interest.
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a month ago
Has anyone ever had a swollen mammary lymph node in chest which when biopsied was metastatic cancer and doctor said it has spread from somewhere but don't know where.
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a month ago
Hi I was just wondering what your ER PRand HER 2 status is you have done remarkably well good for you
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a month ago
Hi folks I just wondered if anyone with this type of secondary breast cancer that is in the right internal mammary gland got chemotherapy for it and if so how successful was it and what chemo was it. I have to get paclitaxel once a week on a lower dose for 12 weeks .Thanks very much for any information
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03-05-2020
01:27
1 Hug
Thank you very much for your reply.If possible could you tellme if the side effects are really bad like bad nausea vomiting etc Thanks for your time. Ginak
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02-05-2020
10:38
Does anyone know if taking paclitaxel weekly for 12 weeks will cause hair loss as it will be a lower dosage. Thanks for any help.
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29-04-2020
12:58
Has anyone got any quick tips on how to work out your metro map I have my first oncologist appointment tomorrow and I just am not making headway.The book says to key in Metabolic Phenotype then your cancer so do you key in just cancer or metastatic cancer.When you key this in it brings up pubmed articles which are totally bamboozling .Any quick help would be really appreciated. Thanks very much GinK
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28-04-2020
07:13
Thanks very much Mai7 I had a look at what you have done and it is very impressive.I only have one question I only know my cancer is metastatic it was diagnosed 2 weeks ago and that it is ER negative PR negative but I am still awaiting HER 2 result do I need this result to work out my metro map.Thanks very much for your help much appreciated. GinaK
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26-04-2020
10:41
Hi folks does anyone know how to work the metro map and how to choose if it is glucose fatty acids or glutamine driven tkanks for any help
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25-04-2020
01:12
Thankyou for taking the time to reply to me.
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25-04-2020
01:10
Thankyou for taking the time to reply to me .
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24-04-2020
10:30
I am completely new to this I was diagnosed with metastatic breast cancer in the right internal mammary node so I am still waiting to see oncologist but since the end of February this year I completely lost my appetite and I am having to force myself to eat also feel full very quickly and have nausea I just don't know how I will cope with chemo with having these symptoms already. I was wondering if anyone else out there had experienced these symptoms with metastatic breast cancer before any kind of treatment had been decided on.Hoping for some advice thankyou.
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