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GinaK
Member
since
23-04-2020
30
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13
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30-10-2020
08:11
Thanks for your reply Nicky I have got su[[lement drinks from doctor but I try not to take them as I am scared they will just fuel the cancer I do try to keep to a low fat diet like it says in the How to Starve Cancer book by Jane McLelland but past 4 days I have eaten what I have wanted but no weight increase that is why I was interested to hear what other SBC sufferers ate . Thanks for your reply Nicky take care x
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29-10-2020
11:35
I would like to know if everyone with secondary breast cancer has a normal appetite and also do they just eat what they want or cut out certain foods,I am asking because I have no appetite and I am losing weight every day feb 2020 12st 4oz oct 2020 8 st 10 oz I am forcing myself to eat but I cannot eat big portions. I have been told by a nutritionist to try to keep to a low fat diet but I have recently been eating bread sweets and crisps I was also told by nutritionist to cut out dairy so I have been having porridge in morning with unsweetened coconut milk but I am fading away quickly I amh HER2 + or/PR- any tips would be appreciated also curious about other sbc appetites and what they eat thabks for any help .
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23-10-2020
07:47
Does everyone with secondary breast cancer just eat what they want or do some people stick to a low fat diet .I have been sticking to a low fat diet and my weight keeps going down, love to hear what other peoples diets are like. Gina K.
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19-09-2020
12:51
Thanks very much for your reply Nicky x
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19-09-2020
12:50
Thanks very much for your reply Nicky x
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16-09-2020
05:40
Hi folks I haven't been on here for a while , just wondered if anyone on herceptin injection every 3 weeks ever gets any pressure in back and shoulder .I cannot use the hedge trimmers to cut my hedges anymore as very quickly I get gnawing pain in shoulders and back .I am also getting not bad, but a bit of pressure in head, I am just wondering if herceptin is not working anymore and the cancer is growing and spreading. Curious if anyone else has experienced these symptoms.Any advice will be gratefully accepted. Ginak
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15-08-2020
04:32
Thanks very much for your reply I am taking domperidone anti sickness tablet before meals , sertraline twice daily, COC prototocol astorvastatin 2 a day, metformin 1 a day, one month doxycycline one a day ,then next month vermox one a day, 1 digestisyme tablet, 3 curcumin, 1 ashwaganda,and 2 reishi mushroom capsules for early morning nausea 1 prochloperazine.I have discussed it with dietician and they gave me complan.Here is what I ate yesterday. 11.30am Breakfast bowl of porridge with whole milk 10 red grapes, slice of brown toast butter n' jam 1 cup green tea, 1 hour later pkt of crisps and complan drink,5.30pm potatoes, brussel sprouts half a chicken breast in gravy, 1 flake, bowl of watermelon cup of green tea, 7.30pm bottle of fortisip this is all I can force myself to eat as my food is not digesting quickly staying in my foodpipe longer and if I tryto eat more I feel really nauseous.I had no appetite weight loss and nausea before I went to see dr about these symptoms which led to me being diagnosed with secondary breast cancer which showed up in right mammary lymph node but they could'nt find primary but think it is breast as lymph node biopsy is breast cancer they say primary is too small to see on a scan.Ijust really do not feel good with this nausea forcing myself to eat and weight loss.Dr at hospital thinks its great scan only showed cancer in lymph node and nowhere else which is good, says herceptin every 3 weeks will work great but I'm not going to last long losing weight every week.Just don't know what else I can do and noone else with this disease seems to have theses ongoing symtoms.But thanks for your reply much appreciated.
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14-08-2020
11:23
Does everyone on here suffering from secondary breast cancer have a normal appetite, no nausea and no weight loss.I am really stugging to eat have nausea 3 stone weight loss in 3 months.It says in mcmillan website these symptoms are near end of life but I don't have any metastasis just have cancer in mammary lymph node which chemo has reduced to 2cm from 1.2mm and they couldn't find the primary but due to biopsy they are fairly certain it is in the breast.My foof also seems to take a long time to digest its like things have slowed right down.I just don't understand why I seem to be only one with these symptoms I've had them for 6 months now and don't know how much more I can keep forcing myself to eat. Any comments would be much appreciated.
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09-08-2020
08:44
2 Hugs
Has anyone completely lost their appetite with metastatic breast cancer ? Its not my chemo which has finished I lost my appetite in February which is why I started getting tests and metastatic breast cancer was discovered in April having to force myself to eat its terrible and weight loss is now at 3 stone.
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15-06-2020
06:34
1 Hug
Hi Ella Robb thankyou for being so thoughtful and replying to me .There isn't much to post I'm afraid I'm sitting here in tears as I'm typing this I just can't come to terms with it I just feel like my life is totally over. The breast nurse has even set up skype sessions with a psychologist which are not helping atall. I just feel I no longer have a life it doesn't help have no appetite and I am having to force myself to eat I just feel I'm at the end of the road nowhere else to go its a living nightmare.
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13-06-2020
07:44
Does paclitaxel cause deep gnawing pain in your spine hip bone and shoulder or are theses signs of cancer spreading into bones. I would appreciate anyones personal experience of this .
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12-06-2020
06:44
Hi there would you mind recommending to me the herbalist from Edinburgh as I live in Scotland and it would be easy to travel to Edinburgh thank you Gina K.
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11-06-2020
04:50
What is the longest amount of time anyone has been on herceptin before becoming resistant to it please let me know.
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05-06-2020
08:26
8 Hugs
Please could some of you let me know how you cope with this kind of diagnosis on a daily basis. My life has just stopped I lie in bed till 12.30pm every day get up force myself to eat my meals and go on laptop all day then cry for an hour every night before bedtime This diagnosis has taken over my life I cannot think or do anything it is there all the time I haven't got a life anymore nothing can be planned everything is just uncertainty I can't handle it. Please let me know some of your coping mechanisms.
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21-05-2020
12:01
1 Hug
Hi folks I was just wondering if anyone on here had been diagnosed with secondary breast cancer with cancer of the unknown primary.I have finally had PET scan results not showing any primary.So because I had DCIS grade 0 high grade breast cancer 5 years ago which they said didn't require treatment. Now they are saying the right ampillary lymph node which is measuring 1.2 mm classes this as secondary breast cancer as this showed up on ct and pet and biopsy stated metastatic adencarcinoma and doctor says it has spread from somewhere else in the body, although on pet there was no spread,due to pathology report they think it is breast related so are treating it as this, but I am terrified they have got it wrong and they are giving me wrong treatment.I started on low dose paclitaxel for 12 weeks today and herceptin every 3 weeks .I also wondered what the rest of you eat as cancer loves sugar so I am on a diet with no sugar in it mainly veg and green tea small bit of chicken green smoothies but my weight is dropping 2 lbs a week as I also have no appetite atall .Hoping some of you can give me some input. Thanks very much Gina K
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06-05-2020
09:43
Hi Nicky I have to get herceptin and 12 weeks low dosage of paclitaxel, but I awaiting an appointment for a PET scan first, as I have absolutely no appetite and I feel full up very quickly and I have a lot of pressure in food pipe after eating food takes ages to go down, if I take a tablet it takes an hour to go down .My oncologist says esophageus and stomach can express HER 2 positive as well and that an increase in size an internal mammary node can be from a primary cancer somewhere else so my case is quite complicated.I'm trying to keep positive but these digestive issues are worrying me as secondary breast cancer doesn't cause these.If it is esophageus or stomach on top of already secondary breast cancer I think I'll just give up.Thanks for your interest.
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04-05-2020
11:37
Has anyone ever had a swollen mammary lymph node in chest which when biopsied was metastatic cancer and doctor said it has spread from somewhere but don't know where.
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04-05-2020
11:27
Hi I was just wondering what your ER PRand HER 2 status is you have done remarkably well good for you
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04-05-2020
11:22
Hi folks I just wondered if anyone with this type of secondary breast cancer that is in the right internal mammary gland got chemotherapy for it and if so how successful was it and what chemo was it. I have to get paclitaxel once a week on a lower dose for 12 weeks .Thanks very much for any information
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