Breast Cancer Now Forum

nicolaruth · ‎25-05-2020

Thanks for this . My oncologist is still recommending no treatment but this is on offer if I choose as I am so borderline . You are right it sounds very similar to your situation and the side effects don’t seem so bad . I have not been offered any real indication of how much it reduces the risk of a recurrence so I may ask . it just seems that Her 2 is best treated with Herceptin however tiny the invasive tumour . thank you so much for sharing

nicolaruth · ‎23-05-2020

So I appear to be borderline for a chemo and Herceptin recommendation . They seem to be leaving it up to me which I find hard . The basic recommendation is treatment would not substantially improve my prognosis but they are prepared to discuss/ agree the option of a regimen of Pactlitaxol for 12 weeks andHerceptin ( 6 months concurrent ) given a poor PREDICT score . They say it’s a matter of patient preference . Their basic position is to recommend no treatment but given the Predict score they have put forward this option ( the poor predict score seems to be because I am Her2 positive and oestrogen negative despite small tumour ) I am advised the PREDICT modal is not a very accurate indicator for me as it is created on research involving tumours over 1 cm and mine is tiny at 2 mm. I really don’t Know what to do ! Is it usual to leave it to patient to decide

nicolaruth · ‎16-05-2020

I will definitely think very carefully about it . I want the most effective treatment possible .It sounds like the chemo was manageable for you that is very encouraging . Sounds like you really smashed it ! i am feeling more positive today - the waiting is hard - but I can see a way forward whatever the outcome . Thank you - these comments are really helpful . It can be very lonely and i do have a tendency to ‘overthink ‘ ! I really appreciate your help x

nicolaruth · ‎15-05-2020

Thank you for replying , it is just so scary and I am still waiting to hear .Hopefully I will hear something Monday . I am glad that the chemo and Herceptin was not too bad for you. It is difficult to plan for work . I was hoping to go back next week as it’s 4 weeks since my mastectomy but I need to know what is happening next .

nicolaruth · ‎14-05-2020

Thank you that’s really helpful . Herceptin was mentioned when Her2 was diagnosed but then they said no further treatment. I will ask more questions when I hear from them further . Thank you for the reply x

nicolaruth · ‎14-05-2020

Hi After a diagnosis for DCIS In March and a very difficult ( Covid delayed ) route to a simple mastectomy I finally had my pathology results last week . They found a larger area of DCIS than anticipated 90mm and sadly a 2mm invasive ductal cancer that is HER2 positive and hormone receptor negative . Clear lymph nodes . I was advised on 11th May that the MDT recommendation was no further treatment and was elated . I was simply expecting to wait my reconstruction. However yesterday my nurse contacted me and said the oncologist now wanted to see me and was referring me back to the MDT meeting tomorrow . she seemed surprised at this as the original recommendation was in writing and mentioned he had now done a Predict test . i am now waiting and worrying to be contacted further. I thought I was done for treatment but who knows now . Is this usual ? why would they change their mind ? I cannot sleep or focus on anything . I have no further appointment - they anticipate it may be by telephone -and must simply wait. is this usual ? What can have changed since the last MDT meeting ? (I am 58 and post menopausal .) thank you

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