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bonbonboosh
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since
07-05-2020
12
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01-08-2020
09:10
1 Hug
Hi MaggieG, What an upsetting situation, I'm so sorry. I've just done some checking through the literature I've received from the hospital, and from a practical point, there are multiple forms of radiotherapy. The main ones being internal and external. If you were having internal (which you'd know about because they'd insert something), then no you wouldn't be able to go near babies, puppies, etc. But for external (which I'm having and I think a lot of people have for breast cancer) you're fine around children. My pamphlet categorically says "does not make you radioactive and is perfectly safe for you to be with people, including children". As you're fast forward maybe it's worth speaking with your team just to double check it's the same? Or maybe phone the breast cancer now helpline while they're open this morning? I'm sorry, this must feel like a kick during a tough time. Sending lots of love xxx
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24-07-2020
12:20
2 Hugs
Hello everyone, It's been great to read through the thread so far. Thank you tmmorriss and Shi for the advice! I start radiotherapy 3rd August for 18 sessions. I’ve started moisturising now just in case it helps! I hope it goes well for everyone, and hopefully we can virtually keep each other in company 🙂 Jen x
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14-07-2020
04:18
Hi Debbie, That's great news! I'm in a similar boat. Lymph nodes clear, but showed signs of 'lymphovascular invasion' so I had the Oncotype DX test, which came back as a low score. Long story short, I won't be having chemo, and have my CT scan ahead of radiotherapy on Friday. Radiotherapy should then start in 3(ish) weeks, and will be 18 days of treatment. Do you know much about yours yet? I was worried about chemo so it was a relief to hear I won't be needing it, but have to say I feel strangely guilty. I know so many people (in life and on this forum) that had/have to go through it, and I feel a bit like a cheat for not. A very grateful and lucky cheat of course, but still feeling a bit fraudulent. This experience throws a lot of unexpected emotions doesn't it. I'm not quite sure I've caught up with myself yet. How are your scars doing? Mine have really settled in the last week which I think it helping me feel a lot more positive. Lots of love to you, and anyone reading this, Jen x
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13-06-2020
06:27
Hi Whitebread, Kitkat, Glad to hear that surgery went well, although not glad that recovery is so difficult. Thinking of you guys and sending lots of love. I read on another post that those lavender microwave pillows can be quite good? I hope the pain eases quickly. Aside from bruising (which seems to be everywhere!) I have no idea what to expect under my dressing. I’m due to take it off on Monday and am a little nervous. I was doing ok not thinking about histology results until yesterday, but then the gremlins got me and I had the first panic attack I’d had in weeks. I find I’ve always been desperate for ‘the next thing’ so for such a long time i thought that was surgery, and I’d feel better after surgery. That was short lived! Now I feel like I’ll feel better after my results as I’ll know where I stand and what my treatment will look like. I need to stop piling on so much on the next thing making me feel better. I have my results appointment (telephone call due to covid) on the 24th, which is 2.5 weeks after the op. The waiting is just the worst isn’t it. Wishing you both a markedly better day today. Lots of love, Jen x
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07-06-2020
09:19
Hi Whitebread, Kitkat and Susie, So sorry I've missed all your messages this week, I came down with a bit of a head cold so was desperately trying to get rid of it before tomorrow! Luckily, I'm better now, and am strangely looking forward to it! I'm not sure I'll say the same tomorrow morning... Kitkat - thank you so much for the best wishes! Am glad your op went well last week, thank you for detailing it all for us. I think I would've panicked going into the operating theatre for anaesthetic, so grateful for the heads-up! Good your recovery is going smoothly, have you anything to take your mind off things before results? Hopefully they'll be soon. Whitebread - If I don't speak to you, good luck for Tuesday! Nice to know we'll both be on the mend together! Susie - have you heard anything since your last message? I hope you get a date really soon, the wait must be so difficult. Lots of love to you all, Jen x
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02-06-2020
11:26
Hi ladies, I hope you're both well? I was just wondering how you guys are getting on and if there's any sign of surgery? I'm pencilled in for Monday for a lumpectomy, so self-isolating this week and then having a covid test on Friday. Nice to have a little break from Tamoxifen, even though I'm sure it's psychological! Hope you're both ok, Jen x
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11-05-2020
04:30
Hi Whitebread1 and Susie, Firstly I'm so sorry you're both in this position, it sucks with everything else that's happening. But in a strange way it's nice (!) to know we're all in the same boat, and at least we know it's a problem being faced everywhere rather than localised to areas and it's not us as individuals being de-prioritised. I may be getting excited very prematurely, but I received my pre-op phone call appointment today completely out the blue, for tomorrow morning. Surgery may not still be for a while (I'll ask tomorrow), but this is movement in the right direction. Hopefully we'll all start seeing a shift over the next few weeks. Please let's all keep in touch, as it sounds like we're all in a very similar place in terms of diagnosis type, treatment and timeframe. I know how worried I've been about it all, and I'm sure you're the same, so sending lots of love to you both, Jen xx
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09-05-2020
07:41
Thanks Mel, I really am so glad it was better than you were expecting, you read such horror stories! I've just done a bit of research online and I think it may be because my surgeon has recommended reconstruction as well as tumour removal (called Mammaplasty). The cancer is right in the cleavage so could look very strange, they want to pop in a bit of fat from somewhere else to fill the hole. I think it's the reconstruction part that's on hold which probably explains the wait compared to yours and others. I'm sure there's no way they would wait that long without being sure the tamoxifen is stopping it growing. The wait makes sense when I can rationalise it, but I think it'll be a real mental battle to sit on, just want it done! Thank you so much for your replies during my wobble. Really great you're home, did you need to stay overnight? Hopefully the recovery will be really smooth, and your only real problem will be remembering to sleep on your back 🙂 Jen x
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09-05-2020
05:51
Hi mel71, I'm so pleased you had surgery and are on the path to recovery! How are you feeling? Wishing you a speedy recovery. May I ask how many mm your tumour was? That's interesting you've had surgery as I was told anything other than mastectomy was off the table completely. It's very difficult to know how much to push back to the hospital (if at all). I hate pestering people, but 3 months seems like such a long time to sit knowing I have this sitting in me! Wishing you a speedy recovery, and best wishes for the next part of your treatment x
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09-05-2020
05:46
Thanks Mai7 for your reply, I love your idea of finding things to try and feel like I've got more control. Keeping fingers tightly crossed that it won't truly be a 3 month wait to surgery. It seems such a long time to sit and seemingly do nothing before 'proper' treatment starts. More worried about my mental state than physical state! Thanks again x
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07-05-2020
03:06
Hi lovely ladies, I'm 33 and was diagnosed 2nd April with grade 2 hormone-receptor positive, HER2 negative breast cancer, fortunately it has not spread to my lymph nodes just yet. I'm being told that lumpectomy surgery will be in 3 months (it always seems to be 3 months even as the time goes on!). In the meantime I've been put on tamoxifen, which has been fine and *touch wood* no side effects just yet. I understand that any surgery apart from a mastectomy is on hold due to covid-19. On the whole, I've been fine with this - it is what it is - but then other times it scares me silly. I'm most worried about: - Tamoxifen not working and it spreading during the 3 months - I'm a worrier and a 'do-er', and this is 3 months extra to worry without any 'doing' to get rid of it. - The 3 months could keep being extended if coronavirus continues to be such a drain on NHS resource and operations continue to be cancelled. I was just wondering if anyone else is in the same boat? Sorry for my little rant, it's such a niche scenario in these 'unprecedented times' (gosh what a terrible phrase!) and it'd be lovely to be in touch with others. Lots of love to everyone on this forum xx
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