Hi jellytot83, Oh boy was I so pleased to see your and read your post! I’ve been searching the internet for anyone taking ribociclib for any personal experiences. And reading the replies I’m feeling very relieved. I live in Brisbane Australia I’ve been on Ribociclib since September 2019 after being diagnosed with secondary breast cancer on pelvis and spine in August 2019. I had 10 radiation treatments September 2019. I’m now taking ribociclib and exetemestane (Aromasin) along with Zoladex and Denosumab (Xgeva) injections every 28 days. I’ve had 2 incidences of low white cell counts since then and I was originally on 3 tablets per day, (which made me very nauseous) but now on 2 tablets per day and I’m managing that ok. I’m in my week off at the moment and I’ve found that never to be pleasant, especially the first 3 to 4 days but it’s easier since taking the 2 tablets. My skin seems so much drier and I’ve got splotches all over my arms and legs and I’m very pale. I’ve always had pale skin but it’s paler now. I get outside daily to get some sun but don’t stay out too long. Bone pain increases a little in this week off too. My original diagnosis was in 2012, IDC left breast, hormone receptive. Secondary is hormone receptive too. 2012 treatment was lumpectomy, SNB, six clclearance, 6 chemo treatments and 30 radiation treatments. Hormone therapy for 5 years. That finished in 2017. Then It came back in August 2019. Such a shock then, but doing ok now. I have my good and bad days emotionally. Hubby and kids keep me going. Hope your all doing ok too, take care. Deanna. 💖 First diagnosis was in 2012.
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