Breast Cancer Now Forum

Hi Lou I had my treatment in may 2020 I had 3 EC  but was fine on those no side effects except tiredness   but I did loose my hair very quickly. Like you I was going to have 12 paxitacil  I  had first dose but had that but felt unwell that week went back for 2nd dose and had a reaction. So they then changed me to another tacil family drug. Which they gave me every 3 weeks.   But every one is do different  and you might be fine on it.  All the best. I finished all my treatment last December   just go back every 6 months for next 3 years for a infusion for protecting my bones. And also my yearly mammogram.  These groups were a life line.and helped me a lot.  Love juliex       ... View more

Hi Ann and all June 2020  Was just wondering how every one was doing. Cant belive it year to when we all found out and started our treatment.  I had my first yearly mammogram today. And I'm starting back to work next week. I just want to say thank you to you all in this group. It helped me a lot reading how you was all copeing with your treatment  and the added stress of covid.  Hopeing you have all recovered, or those still receiving treatment are nearing the end of treatment.  Wishing you all the best Love juliex ... View more

Hi tara Like you i have decided not to rush back to work till I am feeling stronger. I spoke to my firm and they said they were not even expecting me back before April. Which was good. Also because I had a shilling letter send me when we went back into lock down, they could put me back on furlough.  So surprised your not getting that?  As I'm a manger of a shop and we are open, I was hoping to also of had our 2 jabs before I go back. 🤞      But for now I'm taking each day as it comes. I still have out of the blue for no reason  tearful moments, or a burst of tiredness,  but hopefully soon we can get back to some sort of normality  Take care to you all Love juliexx   ... View more

Happy new year to you all on this site. I am all finished and done  now ( bar the 6 monthly bone infusion)   and now I got to start thinking about when I think I be ready to go to work. Which I am nervous about  as have been in this little bubble of home since last April. Hope all you ladies  are all nearly finished  but if not good luck for rest of your treatments. And thank you all on this site.  Love juliexxxx ... View more

Hi Ann  I watched it.  It was very emotional .I cry every year when Iv watched it,  but suppose like every one on here it felt more personal this year.  Hope you are doing ok. Iv got my bone infusion today, then that's it for me. My oncology phoned me yesterday to sign me of and said In the nice possible way I hope I dont ever see you again. 🤞 . Like to wish you all the best and hope you all have a lovley xmas with your family.xxx ... View more

hi Ann  Yes just got home from 2nd session.  Was freezing  in room yesterday I coulnt relax as I was so cold. And also I had 3 young men doing my radiotherapy  lol.  It was like having my sons in there and even they havnt seen my breast out for a few years 😂 😂   But today was better, room was warmer and only one young man today and he was a trainee.   How are yours going.xx ... View more

Hi Ann how did your radiotherapy  go today.  Xxx ... View more

ah that lovley ttyler Congratulations. Xx   iv just come bk from my radiotherapy planning appointment.  Was only there for 20mins. Just had to have ct scan. And got to start on 2nd dec for my treatment to start.  X ... View more

Hi Ann glad your planning  went ok. I got mine tomorrow  saw oncology yesterday to talk about radiotherapy,  then today I had a call to say can I go tomorrow  for my planning meeting. I asked them about the tattoos  but my hospital dont do them any more.   I'm just having all the scans and telling me how to breathe hold my breath as my cancer on left breast and it can effect your heart/lungs. So hopefully   they will also give me my start date.  I am only having 9 treatments  that 5 one week then 3 booster the following week. Then that's me done.  I have got to hv an infusion/ injection  every 6 months for 3 years for my bones.x ... View more

Hi Ann Yes doing ok thank you. Results came back that markers were clear and so was the 6 nodes  clear, so that was excellent news. I had a letter to say I now been referred back to oncology  so not sure if its them that organise my radiotherapy appointments. I feel like iv been left to my self since OP.   Was going to ring nurses today as my armpit has started to hurt more since sat. I even had to take paracetamol. Not sure if this is normal or due to excercise I'm doing, did you get this  That  said it no where as bad as chemo.  Hope every one is getting on ok and have a good day x  julie ... View more

Hi wendy. I'm not sure what way round your treatment is  I had all my chemo first, then had my lumpactomey on the 19th October. Like you wasnt sure how it would be. My husband wasnt aloud in, also I had to go and have some markers put in first  then had to go and hv a injection done ready for the blue dye they put in during the OP. All which was pain free and didnt hurt. Also  recovery from op was a lot easier then I thought. I only needed paracetamol first night. Have done the excercise  every day  today I took my dressings  of and was very impressed by my scare. The only think that is sore still is the under arm where that scare is .  Had good news as they got rid of all the cancer and lymph nodes were clear to. So just got radiotherapy next  then hopefully that's me finished.  All the best for Monday.xxx julie ... View more

Hi ann  Hope you are going good after your OP the other week.   Xxxx ... View more

 Hi Anne    Yes home by 4pm.  Morning was busy thou had to go and hv 2 wire markers put in,  then  walk the length  of hospital physic dept to have a injection of radio active which was for the blue dye to go in before they started op  went out like a light when I got to theatre  had best sleep ever.lol. my Consultant phoned my hubby while I was in recovery and told him all gone well  And that she phone me next Monday 27th.  So hopefully radiotherapy next then 🤞 all done.   Are you doing well.xx ... View more

Hi Anne   Glad it went well.  Iv been up for my covid test this morning  so hope it comes bk ok as my OP is on Monday. Got to be in by 7.30  then at 9.30 I got to have another marker put in plus the blue dye.  Then I persume I go down to theatre or back up to ward to wait my turn. Hopefully it will still be just a day job.   Then hv few weeks then start the radiotherapy   fingers crossed every think finished before xmas.xxx ... View more

Hi Anne Will be thinking of you tomorrow. Hope all goes well for you. Xx ... View more

hi yes hv actually done some house work today. Thou was shattered after wards. As that was my last chemo every think seemed to seem worse and take longer to go away.  The upset stomach after 3 days and me taking just the 1 imodium stopped.  Thou now I gone the other way. 🙈    iv got hospital scan tomorrow to have a magseed marker put in ready for my OP on 19th.   Oct.   So got 3 weeks to get my strength back up. Hope every one Is haveing a good weekend.x ... View more

Hi heather  I'm glad I came back on here and read your post.  I had my last chemo on 16th  and dont no why but was thinking by magic as it was my last I wouldn't suffer so much  as they had reduced my taxil drug. 🙈 but the pain in legs and feet just as bad,  and on Tuesday for the first time out of the 6 session of chemo I got the awful diarrhoea  I just thought I put up with it havnt eaten as it was going straight through me. Thought it was easing up yesterday  so my husband said I had to try somethink so he got me chicken soup.  Ate it  then with in a hour I ran to loo again.  So reading your post I took a imodium. So fingers crossed I will stop now. And start to feel better. So thank you all lovley ladies on here for all the advise and how your feeling  on here. Hopefully we will all have a lovley weekend.  💕 💕 ... View more

hi Ann I had my final chemo on wed. Today got my aches and pains in legs☹ Had phone call yesterday to say my OP has been put back to 19th October. Due to my last chemo being a week later.  Also got told tok make a dentist check up, as after op and radiopharpy I got take some tablets for my bones and it can effect your jaw!!.   I hv now booked me and hubby  a few days away @ beginning of Oct to new forest.  Fingers crossed covid dont mess it all up again.  Hope all hv a good weekend Juliex   ... View more

Hi Anne  I should of had my last chemo on Thursday but it got cancelled to Wednesday now  as blood was low. But hay on bright side I could enjoy my birthday .  I also was given my surgery  date for my OP it to is 13th October,at the rbh.  So will be thinking of you to that morning.  Mine is a lumpactomey and just in for the day hopefully. Have to go up to clinic the day before just to hv some blue dye put in for guidance so they no where to go and at my next ultra sound they are putting in a tiny magnetic thing lol as guidence too. At least they shouldn't get lost in my boob.xxx ... View more