Breast Cancer Now Forum

Hi Julie and everyone ,  Glad you’re getting back to work and getting on ok . my mammogram was also clear , had a few issues bleeding constantly down below and had womb biopsy but that’s clear too so just my body re adjusting after the chemo and possibly effect from Tamoxifen. I’ve been back to work since new year , I do get a few lethargic days but push on through . Hope everyone’s well x ... View more

Tara , sorry to hear of your trouble and having your lady chemo postponed 😖 ive got my last chemo tomorrow, but got to also have a scan on my arm with picc line as It’s very swollen and they think I’ve got thrombosis in it 😩 hope everyone’s doing ok x ... View more

Anne and Butler , wishing you all the best for your operations ,Tara ... sorry to hear of your loss . Hope everyone else is doing ok ! Ive got 1 more treatment to go ... had paclitaxel last time safer my reaction to docetaxel, which has been fine. Although my partner left me a few weeks ago which was unexpected so am in rather a mess. I guess we are nearing our journeys now which is a positive! ... View more

Good morning all ,  feeling much better now the antibiotics and steroids have taken hold Thankyou ! my oncologist is going to meet up with the chemo team and discus what they can give me for my final 2 treatments as the Docetaxel doesn’t agree with me . i hope you all are coping and having a good week xx   ... View more

Shi,  yes I have it every 3 weeks . Docetaxel was on 14th , started reacting worse on 18th with slight itch then day by day rash and bumps appeared and got worse ,then temperature started on 20th. They said any reaction can start within a week after treatment .i am keeping a log of it and hopefully they will change my last 2 treatments to something else .... I’m not going through this again ! I hope you’re ok and have a good week x ... View more

Thankyou ladies .  Seemed to feel more itchy / sore and temperature not decreasing so rang the hospital again .... was told to get myself to a&e     ASAP. Their first thought was neutropenic sepsis( which it isn’t ) so was put on an anti biotic drip , blood test, urine test , X-ray . It is an allergic reaction also an infection but they are unsure what ! Discharged at 11pm with more steroids / antibiotics/ etc   the itching / stinging is driving me insane ...never felt. Nothing like it .. nothing is helping  yet . hope you all have better luck and enjoy your weekends !! Xx   ... View more

Hi Anna , and all you lovely ladies . Unfortunately since my update, the Docetaxel has now shown its effects on me . I had 8 steroids the day before Chemo , on the day and decreasing amounts over the next 4 days .  First day without the steroids And I started itching my neck ... then chest ... then shoulders . Over 24 hours it was as if I had severe prickly heat and sunburn.... also oral thrush ! Seems I have an allergic reaction to the Docetaxel which can start anytime over 7 days of infusion ! Now on antibiotic mouth drops , antihistamines, steroid cream . Had a temperature last night but kept drinking iced water and stripped off . Oh and a mouth full of ulcers this morning 😖 The hospital is ringing me today to see how I am. I thought I had got away with things on Docetaxel but nope ! The Fec made me feel very nauseated which lasted a week , and was pleased after the first Docetaxel didn’t make me feel like that , however .... I’m not sure which treatment is worse now ! I get a phone call from olncologist a week before each chemo treatment, so maybe they will change something for next time ?  I hope you all are having a better week than I am xx ... View more

Hi ladies , I hope things are going well for you all . I hope things get easier Tara for you , how awful  ! I had my first T...Docetaxel on Friday , no awful effects as yet apart from Very hot flushes the first 24 hours and a furry /dry tongue, which I use Biotene mouth wash and Tongue gel, and a slight loss of taste . No nausea  which is great as I felt dreadful after FEC ! i was told that 70-80% get Quite lethargic And bones aches from Docetaxel , fingers crossed it’s not happened to me yet ! X ... View more

Hi Tara.   I had my 3rd Fec Friday , felt more nauseous afterwards too . Been taking the anti sickness pills but slightly better today . I’m too struggling with drinking more clear fluids .... not a good drinker at the best of times . I find squash with sparkling water easier to manage , bottle green elderflower is lovely! hope you feel better soon x   ... View more

Happy belated birthday Tara! Hope all ladies are coping well this week x ... View more

Hi Smclaire,  Glad to hear you managed to cope with the hair loss and didn’t loose it all ! Maybe il keep some of mine too fingers crossed 🤞 although it’s very fine normally and even thinner now but trying not to shave it off until I know there’s no more hope . I hope you’re making tv good progress x ... View more

Hi Tabs , I’ve had 2 cycles of Fec using the cold cap . Mine stated coming out last week a few days before cycle 2 , not clumps but lots of it ! Hoping it might stop before it becomes too noticeable. Have got a wig ready but not looking forward to the fact that I might be needing it . Pretty gutting  when we’ve pushed through that awful cold cap x ... View more

Hi Butler10,  Is your picc line in your left or right arm? Did it hurt? I’d rather be knocked right out to have it done but it’s only local anaesthetic as Mine has go from my right arm vein across chest 🤢 to near heart, due to having Axillary node clearance and mastectomy on the left .  The hospital said a district nurse may be able to come in and flush it weekly for me as, like you , would have a 20 mole  treck to hospital otherwise. Maybe you could find out if a nurse could come to you ? X ... View more

Good morning 🌅 cactus queen and everyone else ! Hope your all feeling ok today ?  I had my second cycle of Fec on Friday , my veins collapsed after the first tube of poison this week and now have to have a PICC line put in in a few weeks 😣 I’m absolutely dreading it , I can’t watch any of my treatment .., I hate needles. Wondering how anyone else is finding it ? I’m am using the cold cap 🥶 but have had rather alot of hair coming out over the past 5 days and gone rather thin , but not too noticeable.... just praying it stops. Anyone else the same or is it working better ? Ive had bad feeling of nausea after both treatments which have lasted 24/48 hours and generally off my favourite foods but not too bad . Have a pleasant day ladies x ... View more

Thankyou Tara ! My hairs started to come out .... only had 1 chemo .... and used the cold cap .... 2nd session Friday . I have got a wigready  “ in case “, but looks like il need it ! I got it from Trendco, But through the hospital but I’m not entirely happy with it. It’s shorter than my hair , darker and just doesn’t look right but I saw the photo of yours and it looks just like my hair , so il look into getting one of those ... thanks for the info and all the best through your journey x ... View more

Hi , Could you tell me where you got this wig, name of style and colour ?  I got a wig a few weeks ago but I’m not happy with it and this one looks good x ... View more