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11tolo
Member
since
01-10-2020
21
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37
Hugs
25-08-2021
12:21
Hello last year whilst I was awaiting my mastectomy and Diep reconstruction I had a routine blood test at my GP. The GP mentioned that the Liver enzymes were raised and would take more blood in 1 month . I was a bit alarmed. At the time of the test I was taking co-codamol and naproxen for sciatica as well as letrozole and zoladex At the next blood test I was only taking letrozole and zoladex and the enzymes were normal. I just wanted to reply to say raised enzymes can be as a result of other meds It sound like your team are being very thorough and will hopefully get to the bottom of everything for you best wishes x
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28-11-2020
10:40
1 Hug
Hi Amy . I am very well thank you . DIEP reconstruction takes tissue from your tummy to reconstruct the new Breast so it is a long procedure. However once you’re put to sleep it makes no difference to you whether it’s 2 or 10 hours as you don’t know ! I was up on my feet the next day going for a slow walk down the ward . once you speak to your surgeon I think you will feel more reassured Best of luck xx
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28-11-2020
11:06
1 Hug
Hi Amy , I totally understand how you are feeling . I had DIEP reconstruction in August. Prior to to date the breast nurse at the hospital went through every single detail of the procedure and recovery which included all the worst case scenarios eg infection, tissue failure and the fact I’d feel like I’d been hit by a bus . Whist necessary , it made me nervous . When in hospital the team talked me through everything and I got a chance to tell them my fears about anaesthetic (and waking up!) which they explained how much you are monitored and it’s not going to happen . I was taken to theatre and after a few mins chat and prep the next thing I knew I was woken up 9 hours later . The bus didn’t hit me , I was in no pain ,(the meds worked well) , I was looked after and recovered well . when you get to the hospital you will be nervous but ready to get it done . I hope this helps you, knowing your fears are natural but you will have specialists taking care of you the whole time . Good luck x
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01-11-2020
01:58
Hi Wonky I have been reading this threat and in particular your post with interest. You say that you were told there was nothing “worrying” to see in your boob , which must have been such a relief to hear . This might be a daft question but how did they know ? Did you have further tests after radiotherapy or could they tell that from the radiotherapy imaging. I finished a week past Wednesday and would like to ask the question at my follow up . Many thanks and best wishes x
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31-10-2020
09:16
1 Hug
My goodness what a journey you’ve had I can’t believe you had to go through so many operations, You are so brave! I’m so glad it’s behind you and you were able to still get the procedure you wanted . Thank goodness for routine mammograms eh . I was 50 when I found a lump. Naively I thought it was due to me being premenopausal but when it didn’t go away , I got it checked and the rest, as they say, is history. what a difference a day makes. Yesterday was lovely , managed to get my washing out and dried and had a lovely walk but today has been horrendous!. Managed a walk in between the rain showers but was blown all over the place! Take care , enjoy the rest of your weekend x
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30-10-2020
09:07
Wow you certainly had a lot going on your last week ! It sounds like you’ve coped well considering. Due to surgery being halted thanks to Covid I was put on Zoladex and Letrozole early March which was months before surgery so not al a sudden shock to the system at the same time like you! im the same , walking each day. It felt a bit odd on Wednesday feeling tired , It’s not normal for me and exactly 1 week after treatment ended but I’m listening to my body and resting when needed. Good luck with everything and please keep in touch to let me know how you’re doing x
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29-10-2020
07:10
1 Hug
Thank you ! Yesterday was the first time I felt a bit tired. They did say it may be a week or so after treatment . How were you after treatment stopped? I’m still using the creams! So fat they seem to be working . Best wishes x
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28-10-2020
11:28
1 Hug
Thank you so much for replying Although I finished my radiotherapy last Wednesday (I was on the new week long course) it may be helpful for others . i booked a driveway just across from the Telford Road entrance which worked out great for me . However I passed the car park you mention each day and I noticed spaces each time and my appointments ranged from 9:30 to 13:00 so or anybody worrying about parking it’s likely you will be fine. Best Wishes and Good Luck xx
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18-10-2020
01:57
2 Hugs
Hello i am 2 sessions down and continue Monday - Wednesday. So far no side effects . My skin looked slightly pink (but not like sunburn) but the creams seem to doing the trick . Time will tell as to how I feel one completed, but I’ll be interested to hear how you get on following treatment . wishing you a side effect free recovery Xx
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11-10-2020
08:39
3 Hugs
Hi all just came across this thread which I’m finding helpful , I start my 5 sessions on Thursday and will be driving around 40 mins, I will buy Aveeno and drink plenty water so thanks for these tips . Any other tips or advice would be welcome! I am also trying to manage fears and anxiety about cancer coming back or spreading as I approach the end of treatment . I was diagnosed January but didn’t get surgery until August due to Covid so my anxiety was debilitating at times . I’m sure it will get easier in time . Best wishes everyone and thankyou for the helpful thread xx
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05-10-2020
07:02
Good morning Biokish thank you for your helpful response . I’ve actually been on “book my space” and booked someone’s drive that is a 5 min walk from the Telford ford entrance . I don’t mind a walk round as I think this might be the wrong side . However I don’t know if it’s a real 5 mins yet! I’ve only booked it for my “pre” appointment so i will have a walk around to locate the car parks you’ve told me about to see if there is any chance of getting a space for the actual treatment . Thanks once again x
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03-10-2020
01:28
Hello I hope this is okay to post live just had my appointments through for radiotherapy in a few weeks and wondered if any ladies who were treated in Edinburgh had any tips on parking ? I’m not from Lothian and will need to drive myself so any tips /advice /experience would be welcome . I think the travel worry has trumped any worry over the actual Radiotherapy thanks for reading x
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02-10-2020
10:25
1 Hug
Morning Heather Hope you are recovering well after your surgery. I had DIEP on 7 August and I must say I have recovered well . Going back to see plastic surgeon on Wednesday so fingers crossed they feel the same I have never had experience of compression leggings , I hope they worked for you . I felt supported enough initially with the tuba bandage and big pants with some support . With regards wound care , I only started using bio oil last week . So far so good I hope you are happy with the surgery results and wish you a speedy recovery x
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01-10-2020
10:59
2 Hugs
Thank you both for your kind and helpful replies . I’m going to phone the Brest nurses tomorrow . I need to stop the constant worry and either be reassured or get the tests and the only way that can happen is to speak up just writing it here was a help so I appreciate you taking the time to respond Take care xxx
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01-10-2020
09:43
1 Hug
Hi I agree with the other post , it depends on the nurse. I got mine yesterday and boy did it sting! I had immediate reconstruction early August using my own tissue from my tummy (I’ve been on zoladex since February) and I feel it’s hurt more since my procedure so perhaps having more spare skin helps . you can also ask for a numbing spray to be applied to the area first , it may help . Goid luck!
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01-10-2020
07:39
3 Hugs
Hi everyone I'm new in here. i was diagnosed in January with grade 2 er+ Her2- breast cancer. My surgery was delayed due to covid and was put on letrizole and zoladex. It was an awful time mentally as I worried each day the longer I waited without surgery my cancer would spread . In May I got sciatica in right buttock/leg (had it a few years back) . The pain went away quickly but was left with numbness right to my toes . My gp/consultant at the time said it was unlikely to be related to breast cancer and an X-ray was clear (I don’t have a bone scan) fast forward to today , I had a mastectomy and reconstruction early August , pathology showed lymph nodes clear, tumour 2.7cm. I don't need chemotherapy. I seemed to be in the grey area with regards radiotherapy but have elected to have it as I want to make sure Ive done all I can to prevent recurrence. The Onco test they carried out showed recurrence risk at 9 years as 6% despite the encouraging position I find myself in , I am worried sick that it had already spread by the time of my mastectomy due to the delay and the fact I still have numbness in my right leg with now right leg pain, occasionally lower back stiffness would the pathology report show chances of spread via bloodstream? ive not been able to pluck up the courage to ask or tell anyone and it's impacting on me being able to feel encouraged with my results . maybe I’m experiencing Letrozole side effects (I get night sweats and headaches sometimes) any advice/reassurance welcome and thanks for reading x
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