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Jojo1447
Member
since
01-10-2020
53
Posts
53
Hugs
10-05-2021
03:35
1 Hug
Hi I went for my results last week. Surgeon was pleased as chemo had done its job and shrunk tumour, the tumour was removed with clear margins. The lymph node removed however could not be cleared as showed scarring, they could not say if this was old scarring from the initial biopsy or scarring from cancer cells which they chemo had zapped. He gave me the option of blasting the arm and shoulder area with radio therapy but said this could cause future scarring to my lung, or go back in and remove another node for testing which has not previously been biopsied, obviously if this showed something i would still need the radio therapy. I know i have to have the rads to the original tumour area but if i can avoid the additional area i thought that was that was the best option so back in for day surgery this Friday. Think i've made the right decision i would have always wondered if not???
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10-05-2021
11:27
1 Hug
Finish my Chemo back in March. After speaking with surgeon i was informed the chemo had done a really good job and shrunk tumour. I then had a lumpectomy with aux lymph node removal. On follow up with surgeon he was really pleased. The tumour taken away with clear margins however pathology could not give clear result on lymph node which showed some scarring. Doctor informed me that he was pretty confident that the scarring was from my initial biopsy back at the start but could not say for sure. He said i had 2 options. The first was to do nothing and proceed to radio therapy which i was aware i would have to have anyway, but they would also give this to my shoulder and arm area as well as the original breast area. He did say though that this may cause scarring to my lung. Or they could go in and remove another lymph node for testing. If this shows no scarring then i would not have to have the additional radio therapy. I chose this option as i think i would have always wondered if not. So 2nd surgery booked for this Friday, just now wondering if I've made the right decision?
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21-04-2021
08:39
Morning smilodon I am exactly the same re the drains but to be fair I’m a needle phobe so it’s really the thought of anything piercing my skin I think lol no idea why can’t say the needles have ever hurt or made me pass out I am getting better having had to go through this I just thank god I had a picc line for the chemo lol. you ll be fine, I’ll be thinking of you, let us know how it goes xx
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20-04-2021
12:56
Hi Smilodon I just wore some jogging bottoms and t shirt with a zip up hoody. They asked me to change into their gown and asked if i had a dressing gown with me. i didn't take one so they gave me one of theirs to cover my backside lol, so take a dressing gown if you can. As soon as i was back on the ward they said i could get changed if i wanted back into my own things. I was quite surprised that they let me wear my wig for the surgery, as long as they know they say its ok, so i would just check im sure they will let you wear something, soft cap if its comfier for you. I was told they try not to use drains but you sound like you're having quite a lot done in one go so yours may be different. Good luck for Thursday, let us know how you get on.
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19-04-2021
01:05
1 Hug
Hi MayC Had the op on Friday. I was admitted @ 7am daycase. Went to surgery at 12 and was waking up at 1.30pm shouting at the staff because i was starving lol... they took me to recovery for half an hour then moved me back onto the ward where they gave me tea and toast. I had a long wait via pharmacy meds as surgeon had prescribed incorrect dosage for my weight for meds to take home and he was still in surgery. I could have been discharged at 4pm but didn't get out until 6.30pm so a long day. Little bit sore first night, but on Saturday i started the exercises and i am amazed by the range of movement i have. I know i have to take it easy but back to working at the dining room table this morning. Didn't want to go off sick or use my holiday days want to save them for when all this is over and i can go out and enjoy myself.
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15-04-2021
08:27
1 Hug
Hi My lumpectomy is tomorrow day surgery. Been told i need to get there for 7am and can be discharged anytime upto 10pm. Hope its sooner rather than later. Have to say i am getting scared now, not bothered me up to now but i know its the next step. I am a real needle phobe and got to nip to appointment today to be injected with the dye to show the nodes they are removing (2) for biopsy, so feel sick and will do until that bits over i dare say. Glad you re felling ok and hope the appointment in 2 weeks goes well. Take care Jo x
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01-04-2021
06:53
Morning it would be around 8 I think. I ended up missing 3 altogether but they allow for problems apparently. week after chemo ended I started with the tingles and numbness in fingers and toes but that is getting better now chemos stopped but just keep an eye out for it. let us know how you get on. Good luck Jo x
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31-03-2021
04:56
Hi Michelle I started on EC for 3 cycles then moved onto Carbo every 3 weeks and taxol weekly. To be fair i think I've come off lightly o the chemo front when i hear of some of the groups horror stories. I've finished chemo 3 weeks ago and only side effects i suffered were 2 days of fatigue where i couldn't get out of bed t the beginning of EC. Towards the end my bloods started acting up delaying a treatment and the last one was cancelled as i was anaemic and they did a blood transfusion. I now have op date set for 16/4 which i am a little apprehensive about but looking at it as next stage to recovery. Hope it goes well for you Jo x
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29-03-2021
04:02
1 Hug
Hi Smilodon I finished chemo 3 x weeks ago, surgery is next step. I had appointment with surgeon who was happy with what the chemo had done shrinking the lump. I have been told i will have a lumpectomy on 16/4. I too was petrified about being let out so soon, ie drains and things. When i told him of this concern he reassured me saying they dont use drains unless they have to go in an remove nodes at a later date after first surgery depending on pathology reports of what they've removed so a bit of a relief there although still scared and seems to be approaching fast. Picc line removal next Tuesday eeeek, bit squeamish about that can't say I'm looking forward to that bit. My veins have taken a battering and they find it hard now to find a vein for bloods, and being a needle fobe i guess I'm going to have to get used to being a pin cushion lol. Has anyone else lost their appetite after chemo? while going through it i ate everything in site... now i don't fancy foods anymore and have to force myself to eat.
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23-03-2021
07:38
2 Hugs
Hi felinefriendly just had my appointment through for the 16/4 I’m terrified. It’s a day case and that worries me too x
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11-03-2021
02:26
1 Hug
Thanks ttyler Very reassuring. To be fair i've been ok on the Chemo only really had 2 days of lethargy never really felt poorly only a little woozy and out of it. I've been told by my breast cancer nurse they are looking at a lumpectomy depending on the results of the scan and it should be a day case. Guess i'll find out more in just over a weeks time. I have to say i am going to enjoy tomorrow lie back and think thats part of a journey complete. Take care all Jojo x
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10-03-2021
04:29
1 Hug
Hi Felinefriendly Hope you're doing ok and out of hospital? I too had some abnormal blood readings and have missed 2 treatments throughout, one on New years eve and one a few weeks later. I have my last chemo session due this Friday.... 2 weeks ago i was informed i was anaemic which concerned me but so far they haven't worried about it and treatment has gone ahead, so fingers crossed for the last one. I am TNBC and had chemo first to try to shrink the lump, hopefully thats worked i can feel the difference but i'm no expert. I have MRI booked week after chemo finishes then appointment with surgeon for results and i presume date for op. That scares the hell out of me but know its all part of the journey. Jojo x
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06-03-2021
03:24
1 Hug
Hi Belinda I’m doing good thanks. Had my weekly chemo yesterday 1 more to go next week. To be fair I’ve done really well with the chemo, only had a couple of fatigue days really throughout the 6 months. Little scared of next stage stage surgery then radiotherapy. don’t post much on here but on most days to check how everyone else is doing xx
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14-02-2021
07:00
1 Hug
Hi i have the smoothies and find them quite refreshing, not really had trouble with the taste only the metallic bit after chemo. I have 4 more chemo then mri and appointment with surgery team. Scary bit for me I think, but just want to crack on with it. I try to go for walk everyday but my it has been cold. had my Covid jab last Tuesday and sent me so lethargic Wednesday and Thursday didn’t want to do anything. Ok now though. hope your dads funeral goes ok we’ll all be thinking of you jojo x
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11-02-2021
12:35
Hi Donkeywoman I have treament on a Friday (weekly) and Tuesday just gone had my Covid jab booked. Was dreading it i don't do needles lol, however didn't feel a thing and was quite proud of myself after 🙂 Woke up yesterday feeling drained and generally no energy and generally feeling quite dizzy and sickly, not like me since starting chemo think i've only reacted like that to the chemo once, so think it may have been a combination of the jab and the chemo catching up. Slept alot drank smoothies and this morning woke up feeling a little better. Had to go for bloods and managed a Mc Donalds brekkie on the way home so must be better lol. Hope everything goes well with your jab but just rest and take it easy after. Jojo x
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04-02-2021
01:49
1 Hug
Hi JB Its all overwhelming but just take it one step at a time. I was diagnosed in September and started Chemo October last year. Had 3 rounds of EC then changed to weekly taxol/carbo. I was terrified at the thought of chemo, but to be fair compared with others i have got off lightly with the side effects. Had a couple of days of feeling lethargic other than that I've managed to work full time from home. I have just had call from my breast care nurse with details of treatment after chemo. My last session is due 12/3 MRI booked for 19/3 Appointment for counselling/discuss surgery and consent on 29/3 then op booked for 16/4. So far they are talking of lumpectomy which scares me, I want it gone with the best option of it not coming back. Good luck with your appointment today, come back later let us know how you got on Jo x
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28-01-2021
12:09
2 Hugs
Hi I recently had appointment with oncologist and after examination he couldn't find the lump which is encouraging. I am triple negative and completed 3 rounds of EC now on weekly taxol and carboplatin every three weeks. Half way through this weekly treatment now, however my bloods are all over the place. Recent on yesterday my platelets are still too low, so after missing last Fridays treatment it was agreed to defer tomorrow treatment for a week to give me time to build my platelets up. I just worry now that this will interrupt the shrinking of the tumour. I'm more frustrated about not being able to have treatment, as other than my bloods i can honestly say i haven't suffered any side effects of the chemo other than hair loss and 2 days of fatigue, hope to continue like this. So sorry to hear the people on here suffer and count myself quite lucky really that i have been able to continue to work full time from home. Although i must admit i do use the treatment as an excuse not to do household chores lol. Love to you all Jojo x
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16-01-2021
11:01
Hi Belinda well I got the treatment and it went ok thanks. didn’t say anything about bloods I have appointment with oncologist in 2 weeks so see what he says jo x
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15-01-2021
01:13
1 Hug
Hi im a real needle phone too. I was told before treatment I needed a picc line and cried of the thought. To be honest best thing I had done they take bloods and give treatment through it. I must admit I don’t look when they change dressing as the thought of it being inside my skin grosses me out lol but go for it jo x
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