Breast Cancer Now Forum

Hope you're ok after a bad reaction.  Hows the weekly  Paxitatol going? That was the one i suffered with towards the end my bloods were all over the place on that missed the last 2. Hope all is well as it can be xx ... View more

Just to update you. I got my referral last Friday at the hospitals breast clinic. To be fair i was quite relaxed going to hospital and i know its sounds aweful but it was kind of like being home, not that i wanted to be.... I sat in the waiting room eyeing up the other women sat there and remembering around 18months ago this was me sat there thinking 1 in 2 thats all i could think as thats what the ads say 1 in 2 of us will get cancer in our lifetime.  Again still quite relaxed.  I saw my surgeon in and out of consultation rooms.  I got called in. Didn't get to see my surgeon but saw his registrar who was very nice, put me at ease right from the minute he spoke.  He took my history and examined me. After that he said he couldn't feel anything abnormal but praised me for going to get checked considering my history.  He arranged for a mammogram and an ultra sound and said if they saw anything worrying they would do a biopsy.  Thankfully nothing abnormal on the ultrasound and was told that the mammogram looked ok too.  The ultra sound just showed raised bumpy tissue which they say is normal around the lymph nodes a little lower than my scar. My first mammogram was due in April, but have been told that this will now be deferred until next year as they class this one now as my first. Have to say i am relieved, just hope all those ladies in the waiting room had ok outcomes. ... View more

Hi   I have a couple of good friends but this is how i process and deal with things im afraid....its just me lol. I may have to vent and let off steam here occasionally 🙂 ... View more

So had a doctors appointment last night. She couldn't feel anything to begin i had to point it out which she then agreed there was something different.  Going to try to refer me back to my team for imaging and further checks. It never ends.... just feel like you're getting back on track then something else comes along to pull you back down. I am feeling so anxious now, decided not to mention anything to family until i know one way or another, i can't have them to worry until there is something confirmed to worry about. ... View more

Thanks xx ... View more

Thanks Thanks for this. To be honest i just feel like i've been left to it. I saw my surgeon who gave me the news that he had taken clear margins and i'm sure he said he would sign me off.  Not had any oncologist follow-ups, had rads for 3 weeks and got a call from them a week after.   I have been given a list of appointments for yearly mamograms but apart from that nothing really. The hospital have been really good with the treatments i am not complaining on that front, just the follow up care plan i feel is lacking. ... View more

Not sure what this is you've mentioned???? ... View more

Thanks Evie xx ... View more

Hi Evie Chemo finished last January, Op in March and Rads finished July last year. Jo ... View more

Hi Fi I went through this 1 year ago now, just hopped on this site for a look around hope you don't mind. When i first started chemo i started with 3 x rounds of EC every 3 weeks.  I too was told on the day of chemo i would have to self inject from day 3 for 5 days after each round, i could have cried as a real needle phobe and the thought of injecting myself in the stomach was a no no, first time i was crapping myself but to be fair you get used to it and the needles are so fine and on a coil spring, after the 3 rounds a then went onto a weekly treatment and had to self inject for only 3 days after each treatment. Yes you're right you just get your head around one thing and another then comes along to slap you down. just stay strong and think its not forever and it will get better.   Hope you all don't suffer too much. Jo x ... View more

Hi Amy To be honest i didn't change anything about my diet.  If i fancied something i had it lol never denied myself anything. I didn't take any supplements only Vit D which my oncologist advised. I struggled with drinks, tea and coffee tasted so aweful (metalic), so i drank lots of water and juices and had fresh smoothies. I made sure i stayed as active as possible and went for daily walks, mind you living alone and having a 5 month old pup helped with that one. If you need an early night have one don't feel guilty, remember the steroids will probably kick in and youll be bouncing off the walls at 2-3am perfect time to get the housework done lol... Keep your mind active, i worked throughout, all-be-it from home but that helps take your mind off the nasties... now back in the office full time and feels like nothings changed. Stay positive, remember this is a few months of treatment which you'll get through its amazing how strong we are, for a lifetime ahead. Good luck to you all, if you don't mind i may jump on thread and check how you re all doing.   Take care ladies   Jo x ... View more

Hi   I started chemo around a year ago.  I had 4 rounds of EC, 3 weekly, then 12 x weekly treatments.   To be fair i was fortunate and i think in general i sailed through chemo.  Didn't feel ill once but when i first started i had 1 day of fatigue.  Towards then end my bloods started dropping so i missed a couple of treatments. I then had a lumpectomy followed by 3 weeks radiotherapy. Good luck to you all just starting out on this road. x ... View more

Thanks  ... View more

Thank you  ... View more

Thanks for reply hun xx ... View more

Hi I went for my results last week. Surgeon was pleased as chemo had done its job and shrunk tumour, the tumour was removed with clear margins.  The lymph node removed however could not be cleared as showed scarring, they could not say if this was old scarring from the initial biopsy or scarring from cancer cells which they chemo had zapped. He gave me the option of blasting the arm and shoulder area with radio therapy but said this could cause future scarring to my lung, or go back in and remove another node for testing which has not previously been biopsied, obviously if this showed something i would still need the radio therapy. I know i have to have the rads to the original tumour area but if i can avoid the additional area i thought that was that was the best option so back in for day surgery this Friday.  Think i've made the right decision i would have always wondered if not??? ... View more