Hi everyone, So I had my original hormone positive BC (er/pr +ve, her² -ve, Brca -ve) diagnosed in 2005 aged 28. Had FEC chemo, radio and wle. No lymph spread. Fastforward to 2018, aged 41, DX with pleural effusion (fluid around outside of lung) caused by lung Mets and multiple lytic bone mets. Commenced on denosumab (for bones), zoladex (to stop hormones), palbociclib / Ibrance, and Letrozole. I have managed really well with this combination, have had amazing results. No change and areas look almost healed. Phew! Had a routine scan in July 2020 and found an enlarged axilla lymph node, went on to have biopsy and found it to be triple negative BC! Had a pet scan, looks as if all my previous hormonal cancer is inactive! However, they have now found a new primary, same breast that has spread to lymph nodes in axilla, pectoral muscle, clavicle and in neck! Can't quite believe it myself! I'm now starting new treatment in about 2 weeks of nab/paclitaxel and Atezolizumab immunotherapy. Anyone been through similar? Consultant said I'm in a unique position but it's pretty lonely in this 'unique' position!
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