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Callista
Member
since
20-10-2020
16
Posts
22
Hugs
21-05-2021
08:35
I have had radiotherapy, which was traumatic for me so I think I have blocked the experience. I am claustrophobic so the initial scan where they tattoo you was terrifying for me having to go through the tunnel. I feel so guilty when others have been through so much worse than I have. What right do I have to feel this way. I am lucky, I kept my breast even though it is smaller and looks different. My husband says it doesn't but I can see it every time I look in the mirror. Thank you for your kind words and encouragement and sending hugs to you all. Wendy xx
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20-05-2021
11:26
5 Hugs
Hiya, I had a lumpectomy and lymph node removal at the end of November. I feel so alone with this, from the outside I look fine, everything is normal. Inside I am so confused, I had support and now I feel all I have is my husband who is amazing. My mother very kindly told me I had nothing to worry about, I don't have cancer anymore so I should be happy not moaning. Needless to say, I don't talk to her about it anymore. Is this all normal or am I just feeling sorry for myself? Should I be happy? I don't know what is happening next, I am on Exemestane for 5 years and I was told I would have yearly mammograms. So does this mean I don't hear anything else now until November this year?
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20-05-2021
11:21
1 Hug
Hi all, I had a lumpectomy and lymph node removal in November. I am getting so much pain in my breast, like one minute it is all fine and then it's like someone has twisted my nipple. I then get shooting pains and aching in the breast. I then end up holding the breast to try and massage the pain away but it looks awful if I am in company or out. Is there anything I can do to ease this xx
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27-01-2021
09:02
Hi Dellypoos Yes, my husband is allowed to stay with me. I suffer from severe anxiety and agoraphobia so leaving the house is a big thing for me. The hospital have been good with him staying with me. We have had to fight all the way for it but I think they eventually understood. Wendy xx
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26-01-2021
01:55
2 Hugs
Hi I am due to start radiotherapy on Monday week. I am very concerned about it as from what I've been reading it will be 12 weeks since I had the lumpectomy and this is a long time wait and I worry that it pointless having it. I had a phone call yesterday from a girl in radiotherapy who asked if I had any questions. It was out of the blue so she was explaining what will happen and questions kept popping into my head, luckily Chris, my husband was listening as well and he kept writing things down. She said I have to wear a loose bra because of friction. Do I need to wear the bra that I wore after surgery or can I just wear the type I wear every day? Another question I forgot to ask is do I wear deodorant and can I use body lotion. I have already started to take Tamoxifen and I've got 5 days of radiotherapy. I don't know if this is a fast forward week or if it was decided I only needed one week. Originally I was told that I would be having 3 weeks. When I mentioned it to the oncologist that I thought it would be 3 weeks but the surgeon had said it might be a week because of covid, she said that that it had nothing to do with covid. She said it has been found that 3 weeks are no better than 1 week. I have said it before, but I feel completely on my own, all the advice I have had has been from here and I don't know what I would do without it. Wendy xx
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26-01-2021
11:58
3 Hugs
Thank you all so much for your kind words. It's so hard as you all know and understand. I start treatment on Monday 1st. I have to go for a covid test on Thursday and my husband is having one at the same time. The hospital have agreed that he can be with me whilst they set things up and they said he would need a test as well. Lots of love xxxx
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12-01-2021
01:42
1 Hug
Hi Delly Thank you for your support. I had a phone call yesterday pm, I start on the 1st February. I've got my covid test on the 28th January. I started the tamoxifen yesterday, nobody has told me to but I was given a prescription at the ct scan and so I presumed I had to start it now. It's probably just me but I assumed I would get more support than I have. Wendy xx
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11-01-2021
11:32
1 Hug
Hi Erin All I can say is that it does get better but then out of nowhere it's as if someone has just pinched it. According to the surgeon, it is the breast coming alive again. Hope that helps xxx
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11-01-2021
11:29
1 Hug
You don't know how much better I feel. Even though I have a wonderful husband, he doesn't understand the thoughts going through my mind. It has all happened so fast from finding the indentation to being diagnosed, the surgery and now I am here. I feel as if it is only just starting to sink in. I know I am very lucky. I found it early, there wasn't a lump so I wouldn't have found anything. I had come out of the shower and for some reason I looked in the bathroom cabinet whilst I was drying under my arm. I thought to myself, "Oh that's what they used to look like 🙂 " (I am 56) and I noticed the indentation. I didn't think anything of it and didn't say anything for a week. It was then up to the hospital, scans, op and now I'm here. It took a lot for me to have the CT scan as I suffer with extreme anxiety and am claustrophobic and to be honest, even though I have seen it, I am very anxious about the radiotherapy machine. Anyway, I have wasted far too much of people's time by waffling on. Just want to say thank you again and I'm sure I will be staying around not that I know that I can. Wendy xxxx
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10-01-2021
11:26
1 Hug
Thank you all. You have confirmed all that I thought, I'd had a comment from a family member which made me feel that way. I am relieved that the cancer is gone, it was larger than they originally thought so I'm glad it's gone. I'm still wary about having the radiotherapy and taking the tamoxifen but looking at my husband's face when I have mentioned not having it is what is leaning me towards it. As you can see I am so confused 😞 Is it still ok for me to come here now as this is the only place I am getting answers to my questions? I have a nurse now which is for the oncology part but I'm assuming when I get discharged I lose access her her as well. When I phoned the breast clinic and spoke to them they said I had to phone the oncology nurse. I haven't had a letter from the surgeon but do I presume that I have a mammogram every year now? I think I was told at the video call but to be honest, I didn't really take it all in. I might phone and ask. I feel as if I am on my own with it all now and have no medical support other than my GP, who is fantastic. Can you direct me to what else I can do to make sure it doesn't come back. Thank you all so much Wendy xxxx
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08-01-2021
05:51
Thank you for that sweetheart. I don't know whether I should go ahead with the radiotherapy as if I don't have it anymore is there really a reason. Is this the normal procedure for oncology or have I just been unlucky. I really am confused. I wasn't told when to start the Tamoxifen or what time of the day to take them. The leaflet in the box doesn't really give much information just that it should be taken at the same time every day.
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08-01-2021
04:47
3 Hugs
I was diagnosed with breast cancer and had a lumpectomy before Christmas. I have to have radiotherapy and then Tamoxifen for 5 years. I have a telephone consultation with the oncologist, specialist nurse and dr who told me about the treatment I would have. She said I would be contacted 6 weeks after the radiotherapy to see how I am and then discharged to my GP's care. I am confused, as in a letter I recently received it said that I don't have breast cancer but that the treatment is to stop my breast cancer coming back. Is this normal to be discharged and do I have breast cancer or not. I feel a fraud telling people I am having treatment for breast cancer if in fact I am not. I am totally confused because I was told by the surgeon that in 5 years I would be given the all clear. I am sorry if this is not in the right place, so please accept my apologies if it's not and feel free to move it. Many thanks, Wendy xxx
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14-11-2020
06:19
2 Hugs
Hiya I had a lumpectomy two weeks ago on Monday. The last couple of days I have had a really painful nipple. Its not all the time it comes and goes but the pain is a stabbing pain and it takes a couple of minutes and then it goes again. Sometimes it lasts longer. Is this anything to worry about?
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04-11-2020
11:14
Hi Seabreeze Yes, I had it. They were very good in the hospital, I had 2 panic attacks and was in tears at time but they let my husband stay with me. The surgeon had arranged for him to walk down to the theatre with me and wait until I had to go in for the anesthetic. He was also there when I went into second stage recovery. I am very sore but I suppose that's to be expected. I was surprised where they cut me, the indentation was underneath but I have a dressing in which goes right through my nipple and it keeps tingling as if I am getting an electric shock. The underarm is very restricted but I am doing my exercises 3 times a day. I was told I will have a follow up face to face appointment in about 2 weeks. Thank you for checking on me. Wendy xxx
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29-10-2020
11:48
Thank you both, your replies have really helped me. My husband wants to be with me and has taken the time off work. Its just because of the Covid situation, the hospital said that he might not be able to be there. If that is the case, I don't think I would be able to do it. I am stage 1 so I class myself as really lucky. I will have a sentinel node biopsy in the morning before the operation. I feel better today,
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28-10-2020
02:49
2 Hugs
Hi all, Please bear with me, it's my first time posting. I'm due to have a lumpectomy and sentinel node biopsy on Monday. I've been going through all sorts of emotions, wondering whether I should have had a mastectomy, they have said I'm stage 1 but I guess they won't really know until they have a look. I know a couple of people that have had lumpectomies and then had to have a mastectomy so I just don't know. I suffer with extreme anxiety and panic attacks and I won't find out until Friday whether my husband will be able to come with me and be there for 2nd stage recovery. It sounds ridiculous but it is a deal breaker for me, I don't think I will be able to cope knowing that he won't be there. I have so many emotions right now and questions, lots of questions. I have just buried my head under the sand until now. What type of bra should I buy, do I need to wear button blouses, so many things buzzing through my brain 😞 Thanks for listening. Wendy x
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