Hi Bonty I have only been on Letrozole for 4 months but have sure noticed the difference. I am 64 and an active 64 (well I was) these days my legs and feet feel like they are made of wood, sometimes they feel as if they do not want to move at all. I have also noticed my feet have become clumsy (well I know it's me that operates them) but you know what I mean they are slow to respond so I end up bumping into things, or knocking them over. The first thing in the morning is the worst I have to be so careful in case I fall down the stairs. I am feeling depressed I can accept what might or might not be with my cancer - but this seems so unfair and an added penalty to an already difficult situation. I have been told I need to stay on them for 5 years, if this carries on I will be a cripple long before then. I do like walking as well as gardening but it ALL seems like a real effort of late. Sad all in all. Poppy xx
... View more
Hello, @HappyVibes i'm so sorry for the lack of reply, have been trying to take a break from all things internet recently! How are you getting on with your seroma now? Hope you can start or have started the next bit of your treatment soon/now. Thank you for your reply, and @VWCarrie. Thankfully things have settled down now and enough for radiotherapy to go ahead, i've just completed my first week (of 4!). I had been propping myself up in bed as well and also did take ibuprofen for a couple of weeks 3 times a day on the recommendation of one of the registrars who I went to see when I got a couple of stitches clipped down, not for any pain but just to help with any residual inflammation that might have been there from the infection. I had asked about another course of antibiotics but doctors and surgeon didn't think it was necessary. In the end I only had it drained twice and then it did it's own draining for several weeks until eventually it stopped about 2 weeks before radiotherapy started. Also drank a load of turmeric tea as another anti-inflammatory. No idea what if any of those things worked in themselves, but it seemed to settle and oncologist was happy for radiotherapy planning to go ahead. I do have some hardened tissue in the area where the tumour and majority of infection and seroma was, think the breast surgeon called it 'induration', and he told me to massage it daily with Bio Oil (though not doing the bio oil during radiotherapy, just using Aveeno at the moment). Bit annoying as it actually is more visible than the bloody tumour was, and i guess it might get a bit harder with radiotherapy. Although to be honest it's probably only more visible to me cos I'm the one looking at it most! Will just have to see how it goes! Hope you are all doing ok. Sending hugs to you all. We can do this xx N x
... View more
Hi @HappyVibes / Rose Glad to see youre seeing light at the end of the tunnel. The op's OK. Little bit sore the past few days - bit more knitting together I expect. I'll call my breast nurse in a few days just to check. I've a fitting for a proper prosthetic on 17 March. Chemo doable - main side effect for me is awful jet lag whooziness days 4-7, with day 6 being horrid. By day 8, I was just about back to me. The hair loss was upsetting even though I was expecting it. I got my hair dresser round to do a level 4 clipper/buzz cut and I'm much happier for it, especially with my blue rooted, silver blonde sided wigs that my hair dresser joozed up with some layers. Need to get some courage to wear them out - thank goodness for lockdown eh? Had a bit of nausea, probably more mind over matter and nothing the tablets I've been given can't stop. Thanks for asking. 🤗 Love AnGELa xxx
... View more
Thanks @mamma All the remaining nodes cleared came back negative so I don't have to have chemotherapy. Just waiting for a date for my radiotherapy now and then that will be my treatment finished 😊 I hope your treatment is going smoothly and you're coping ok with it. Sending a big hug. Rose x
... View more
All the best for a speedy recovery. I think tiredness is perfectly normal and understandable......physically and mentally there’s a lot to absorb. I started walking every day - has been huge help even when feeling tired so great that you are out and about. A little exercise and rest and relaxation ......be kind to yourself...... and you’ll soon be feeling much better.
... View more
Hi Jane, Glad your appointment went well and you have options open to you. So hair loss, for me personally I embraced it, I had lovely long hair to the middle of my back with a curl but I was curious to see what I would look like without hair (did I have an odd shaped head? 😂 ). When my hair started to come out by the brush full it was time for it to go I didn’t want to be left with thin looking hair so I gave my 10 year old a pair of scissors and said to her she had a once in a lifetime chance to cut any hair style she wanted into my hair and she didn’t need to be asked twice 🙄 . Once she was done we took a picture and then I got my partners hair clippers and clipped it on a grade 1, within 48hrs most of my hair had completely fallen out. I generally don’t cover my head when I go out unless it’s cold because people will look at me whether I’ve got a scarf wrapped around my head, a wig on or bald. My opinion is I have nothing to be embarrassed about, I have nothing to be ashamed about and I’m proud of my bald head it’s a sign of the strength I have to go all out and get through this journey. On cold day I wear a Wolly hat or I did get some fun scarves from Surban Turban, they also have tying guides, I also brought an under cap from Simply Wigs it has a padded top that adds a bit of height (height give the illusion of hair underneath). There is also a lady on YouTube who is useful when it come to tying head scarves and enhancing your makeup to compensate (basically no hair = make more of the face and eyes). Her YouTube is EyelineHerBlog. Everyone is different when it comes to hair loss, my hair doesn’t define who I am, I’m still me and I know it will grown back who know if it will be different but it will be fun to find out xx
... View more
Thanks for posting.
There are no specific guidelines that are used for when only one lymph node is involved. Whether you are offered chemotherapy treatment depends on a number of factors including the grade, size and stage and biology of the cancer. The stage of the cancer does depend on the number of nodes involved, so you won’t know the exact stage of the cancer until you’ve had the other lymph nodes removed and examined. All the relevant factors are looked at once your surgery is complete to make a decision as to whether chemotherapy will be of benefit to you.
Your specialist may use a computer programme such as NHS Predict to estimate what benefit might be expected from treatments such as chemotherapy or hormone therapy. This programme uses individual information about the person and their breast cancer alongside data from large research studies. Sometimes it’s very clear that someone may benefit from having chemotherapy. But in other situations, it may be less clear.
Genomic assays may help with this. These are tests that look at groups of genes found in your breast cancer. They can identify how likely the cancer is to return (recurrence) and if you are likely to benefit or not from having chemotherapy. If the decision is still not clear, the doctor will talk this through with you and may leave the decision for you to make. We often hear from and support people making this decision.
It’s understandable after the delay you’ve experienced that you might worry that cancer cells may have already spread. The factors mentioned above will tell your treatment team how likely this might be. They can then tailor your treatment to this, to make sure you get what is needed to reduce the risk of your cancer coming back in future as far as possible.
It sounds as though it may be useful for you to call our Helpline to talk this through. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
The number is 0808 800 6000 (Text relay prefix 18001).
We also offer a range of free supportive services that you might be interested in both now and in the future. For more details about all of these services, please see the information on the link, or talk to one of our Helpline team.
If you would like a nurse to call you do complete this form. Ticking the box agreeing to a call back.
Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
Breast Cancer Now Nurse
This thread will now be closed from further replies. If you have any additional questions or would like to provide feedback, please start a new thread.
... View more