Hi I’ve only just come across this site, I was diagnosed with DCIS just over 4 weeks ago and had a mastectomy on my right boob a week ago. I too have a Mirena. my DCIS is oestrogen reactive, I’ve had conflicting info regarding whether the Mirena should be in or out! Initially I was told by the Breast nurse it should come out because it has oestrogen in it, which I then clarified it didn’t have oestrogen in it. We did have a bit of a disagreement regarding it, in the end she did say it should come out as it still had hormones. I’ve done a bit of research and asking various clinicians and I’ve not found any evidence to state it should be removed, other that if it is progesterone reactive. At the moment I still have it, the thought of having a period as well as mastectomy was not something I wanted to deal with. I have to go back and see my consultant once the results from mastectomy to see if there is any further treatment needed so I will re discuss it. If it does need to come out then so be it, but I’d prefer to recover from this first.
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