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juliedoc12
Member
since
22-12-2020
14
Posts
28
Hugs
13-08-2021
08:23
2 Hugs
Hi ive recently started on tdm1 treatment after there was 8mm left following my mastectomy and previous chemo. Ptd and Ec. I just wondered whether anyone else has had this treatment and what their experience of it was. My oncology doctor said people live a normal life whilst on it, so far I’m a bit unsure about that, after experiencing aching muscles and joints, nausea. I didn’t know whether it’s a relatively new treatment, targeted therapy. just wondered if anyone else has had the same treatment. thanks, Julie xx
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13-08-2021
08:11
1 Hug
Hi lewy thank you for your reply, my surgery was 8 weeks ago, same as you Her2+ 4cm. Luckily lymph nodes were clear. It’s good to hear that your surgery has taken the anxiety away. I think for me that’s one of the reasons I want to have bilateral, I’m finding myself checking and checking, they said 6 monthly mammograms but I don’t want that every 6 months, worrying if I’m going to get a clear result. I am now on tdm1 treatment for the next 10 months as there was 8mm left. I wish you all the best in your recovery Julie xxxxxx
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02-07-2021
10:08
Hi I had my surgery 2 weeks ago. Apart from a seroma that I had drained yesterday the Doctor said the scar is healing well. I wanted to start to moisturise but don’t know what would be best to put on it, does anyone have anything they would recommend? Love and thanks julie xx
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20-05-2021
08:24
1 Hug
Hi I’ve had my last chemo ( hopefully) and surgery is next month. Feeling really tearful, anxious, not knowing what to expect. I’m having right side mastectomy, sentinel node biopsy. I think I got through the chemo okay, this just feels so different. Any advice would be much appreciated xxxxx julie xxxx
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17-03-2021
05:41
1 Hug
Hi Just had chemo number 4 of PTD. I move onto EC next. I just wondered if anyone else has had the same and what if any the side effects were. I asked my consultant who said the feeling of nausea, being sick, may be more but they would increase my anti sickness. I had got used to the PTD ( crazy, never thought I would say that) and now the thought of the change and the possible new side effects is urghhhh Anyone with any advice would be much appreciated. Thanks, Julie xxxx
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17-03-2021
05:32
2 Hugs
Hi I’m on chemo 4 of 8. The surgery is looming I am finding it hard to decide whether or not to go ahead with a double mastectomy. The right side is the affected breast, tumour was 4cm Her2 positive, ultrasound next week (hopefully chemo has done the job ) I spoke with my consultant who said I would be referred for psychological assessment and it’s a personal choice but with 4 women in the family who have had breast cancer......... i just don’t want it coming back in the other side...... I know I don’t have to make the decision yet. thanks, Julie xxxx
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09-02-2021
09:05
3 Hugs
Hi Had my second chemo on 12 days ago and I’m really feeling it this time. I know the team said it has a cumulative effect but I didn’t think it would happen second one in. Last time I picked up after a week so had about 2 good weeks before the next treatment. At this rate I’ll be lucky to have a few days before the third one. Maybe I’m expecting too much xx i think I just wanted to have a bit more of a break in between.🥴 julie xx
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02-02-2021
07:51
1 Hug
Hi Started chemo on 7th January second was last week. I had a picc line put in last week, thought it would be be for the best as veins seem to disappear when a needle is in sight!!! Now not so sure the dressing is itchy and find myself worrying about infection. Also too had anyone else had problems with the tummy injections post chemo ?? Getting spasms in my back, told the doctor she just advised to take paracetamol but it doesn’t really touch it. Just wondering if anyone had any advice.? Thanks julie x
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02-02-2021
08:44
Hi westieruth Sorry to hear about your diagnosis. It’s a whirlwind of ups and downs, I’m finding. xx Yes I was diagnosed with her 2 positive in December. Yes, we can private message xx Speak soon Julie xx
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08-01-2021
10:14
1 Hug
Thanks Tara First treatment yesterday went well, I’m not sure what I imagined it would be like. Head is feeling itchy, as are eyes and nose. No feeling sick, yet. (Hopefully not.) But they have given me more steroids to take today. Sending you love and best wishes xx
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08-01-2021
09:58
2 Hugs
Hi, thank you for the photo, I had my first treatment yesterday. My head feels itchy and tingly, as does my nose ( presume that’s because of the hair there also) I did decide to cut my hair with a little help from my husband although he was a little reluctant, which I can understand. I’ve just found the steroids to be horrid, I feel tired but feel like I’ve got so much energy too, 😩 but last one today till my second cycle. I love your egghead, much love to you x
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02-01-2021
04:39
1 Hug
Hi Belinda I’m okay, I start chemotherapy on Thursday 7th. How are you doing ? Yes I did manage to have a nice couple of days. Since then it’s all the appointments etc, I’m pleased to be starting the chemo ( can’t believe I’m saying that) Have you already started.? I’m hoping I’m going to be okay with it. julie x
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02-01-2021
04:24
3 Hugs
Hi tara I hope you don’t mind if I ask you a question about chemotherapy? I am due to start my first one this week. I just really wanted to ask about hair loss. The doctors have said it will be after the first treatment. I was thinking of cutting my hair short as at the moment it is shoulder length. I’m feeling emotional about this especially with no hairdressers at the moment. I would like to have some control over this part as much as I can. Could I ask you what your experience was. ? I would be very grateful. Thanks. Julie x
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22-12-2020
03:50
10 Hugs
Hi I have been diagnosed 2 weeks ago with HER2 positive. I had my first appointment yesterday with the oncologist, to say I am feeling scared is an understatement. Just really struggling at the moment and I am finding it hard to talk with family, close friends I think because I am thinking of them. Just thought it would be good to connect with people in a similar situation .thanks for reading . Julie x
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