Hi in Dec 2017, I was diagnosed with right sided stage 1 grade 1 invasive carcinoma and left sided high grade DCIS. I ended up having a bilateral mastectomy but didn’t need chemo or rads. I had genetic testing which came back that I have a slight variation of the BRCA1. I was prescribed Tamoxifen for 5 years and told that I was very low risk of recurrence. 3 years later, I found a lump near my armpit, went to GP, then Breast clinic who took biopsy and confirmed I had regional recurrence. On 11/12/2021 I had total node clearance for grade 3. There were 2 out of 21 nodes diseased and 3’other areas described as metestatic nodules, which they can’t say if the were originally lymph nodes which have been totally taken over by cancer. Surgeon also said there was lots of disease visible, so it was agreed to clear all nodes. ive been to see oncologist, I still haven’t gone through the menopause but I’m feeling a little insecure. she told me there is no need for chemo again as all of the cancer is in the bin. I have been px zolodex injections every 28 days and letrazole 2.5mg. I really was expecting her to say that given the grad of the recurrence and the amount of disease found, I would need chemo. im really concerned that I may be getting undertreated and am terrified that without chemo, I will have a recurrence later in without the positive outcomes. my question is has anyone else experienced this and if so was your treatment different. thanks
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