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Lunatic21
Member
since
30-01-2021
49
Posts
63
Hugs
12-08-2021
06:06
1 Hug
@AnnieV I’m so sorry you are going through what I did! I’m writing this whilst sitting in the historical car park waiting in session 13/15 of radiotherapy. The decision was so difficult but I was given all the information for and against chemotherapy. I discussed with my consultant my BCN and my family before deciding not to go down that route. I am on tamoxifen for 10 years/ yearly mammograms/ no spread/ all tumour removed first time/ and scored 41 on the ocon test….. At 44 and having gone through 6 months of this I decided to take the risk as it was so so so so so low! I hope you get lots of support too if this decision is yours to make x I need to get my life back!
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08-08-2021
10:29
1 Hug
Has anyone has any issues at the scar site months after surgery? I had a pain which was put down to a stitch not dissolving on my doughnut scar but the BC nurse said not to worry as it wasn’t hot or spreading. It eventually burst after some shooting pains……3 months later it did it again…48hrs of a green spot, the pain being intense then tonight it burst again. Oozing white gunk! And leaving a small whole in the skin. Is this normal?
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31-07-2021
06:23
2 Hugs
I had a 3 week delay due to my ocotype test not having been requested due to the doctors not reading back through my notes! At surgery removal the tumour has shrunk as I was on tamoxifen for 10 weeks pre surgery! The test came back intermediate and I had to decide myself whether to have chemo! glad this is nearly over!
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30-07-2021
02:17
1 Hug
I had surgery on 21st April…. Started radiotherapy on Monday! 13 weeks after surgery. Covid delays are real!
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06-07-2021
07:22
3 Hugs
So it’s my decision to have chemo or not??? I’ve come back as intermediate in the prosignia score…. What another horrible part of the cancer crap. I believe I am rejecting chemo in favour of radiotherapy, 10 years of Tamoxifen and 5 years of mammograms…. Hopefully this is the correct choice xx
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05-07-2021
01:05
2 Hugs
So has my consultant appointment to get my Prosignia results…. And I fall into the intermediate category: 41 !!! Aaaargh I have to decide myself if I want chemo? Who wants chemo?
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18-06-2021
09:45
And thank you…but semi young! I’m 44 now, 43 at diagnosis!
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18-06-2021
09:44
I was clear lymph nodes. The consultant was going through all the info for radiotherapy and discussing going back into tamoxifen when I said “ I didn’t like the side effects but at least it shrunk it “ he then stopped talking and looked at the computer and said “oh …. Well need to do another test as you were over the 2cm threshold!” Why didn’t they look at ALL my notes!!!?????
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18-06-2021
06:50
Thank you! You are the first person who has told me it’s been done quickly!
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18-06-2021
06:49
2 Hugs
How long should I wait between my planning and starting radiotherapy? Everything since diagnosis ( IDC grade2 ER+ HER- 26mm reduced to 18mm) at the end of January has been delayed due to Covid. I had 10 weeks on hormone therapy before surgery on 21/4 then 5 weeks to pathology results before a meeting with my oncologist on Tuesday 15/6. My planning meeting appointment came through today for 9/7 but this is nearly 12 weeks since surgery…. The deadline my BCN told me for getting radiotherapy started or it is not beneficial…. And I’m still waiting in a genetic test ( 2 week turn around) confirming I don’t need chemo as that was missed at the MDT meeting as my tumour shrunk before surgery due to the tamoxifen. I feel so lost and left in limbo! please help!
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18-06-2021
06:31
Thanks Evie, Spoke to the BCN yesterday she wasn’t too useful but is lovely! She sent a info leaflet on the testing through…. Not very detailed though! she did say I need to have radiotherapy within 12 weeks of surgery so not to panic. Today I also received my appointment for my radiotherapy planning session…9th July which is another 3 weeks away…. surgery was 21st April…so they have until 14th July to start the radio or isn’t not worth it????? Is it normally started that quickly from the planning? I don’t get this anymore.
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16-06-2021
10:08
2 Hugs
I have left a message with my BCN in the hope of a call back today x I feel like I’m annoying then unnecessarily but I have taken today off work as I’m very stressed and confused from yesterday! I’m grade 2 and all removed at surgery with no spread so didn’t have any indication of chemo until yesterday! Just more limbo….5 months so far!
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15-06-2021
05:52
6 Hugs
I’m so lost today: after thinking I was on the final step of this cancer sh!t I have today received a curve ball! (diagnosed with grade 2 IDC 24mm ER+ HER - then surgery WLE and 2 SLN tests: all clear, no spread) My tumour is now being sent for further tests to make sure I don’t need chemotherapy ( it has shrunk from 24-18mm on 10 weeks of tamoxifen) ….2 more weeks waiting before they can either start radiotherapy 3 weeks after that or begin chemotherapy sessions that have never been mentioned until today! I was also told I would have 5 radio sessions but today was told 15! Cancer should come with a mental health disaster warning 🥺 I was diagnosed in January ffs!!!!!!! Just want all this over so I can start my life again 😟
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06-06-2021
09:31
I have looked into this app as I’m needing some guidance…but it asks for an access code? You need to get it from an access code? See attached image.
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24-05-2021
05:52
3 Hugs
Thank you so much…. You have made me cry for the first time today xxx It’s such a strange experience and starting to think I made it all up!
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Got the call this morning: cancer out! Lymph nodes clear…. On to radiotherapy now. The IDC had shrunk from 25 to 18mm after being in tamoxifen for 10 weeks before surgery due to delays. Not sure why I feel so weird? Why am I not excited? Such a weird response. Any one else feel like me or is this wrong?
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22-05-2021
05:41
1 Hug
I came on here looking for anyone else with this weird shooting pain and found your post.I had a lumpectomy And SLNB in April and the last 2 days I have had real pain in the breast. Feels like someone is sticking needles into the area where the cancer was. This is new and not fun at all! Hope your pain is calming xx
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13-05-2021
12:27
2 Hugs
Hi Treas, I’m 3 weeks post surgery for WLE and SLNB and am still having pain. I don’t get my results for another 11 days and am not going back to work ( as a teacher) until as l at least then. I’m really struggling with how this is impacting me. I hope you get good results xx
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11-05-2021
10:19
Nothing is definite…. I’m glad you are getting your pathway this Friday, good luck. I took the steri strips of On Saturday…. Wow that sting’s 😣 I had a doughnut incision and although I think it’s healing ok it’s so sensitive that I’m having issues wearing my bra. A friend, last night, recommended breast feeding pads so I’m going to try those!! How are you healing?
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