Breast Cancer Now Forum

@AnnieV  I’m so sorry you are going through what I did!  I’m writing this whilst sitting in the historical car park waiting in session 13/15 of radiotherapy.  The decision was so difficult but I was given all the information for and against chemotherapy. I discussed with my consultant my BCN and my family before deciding not to go down that route.  I am on tamoxifen for 10 years/ yearly mammograms/ no spread/ all tumour removed first time/ and scored 41 on the ocon test…..  At 44 and having gone through 6 months of this I decided to take the risk as it was so so so so so low!  I hope you get lots of support too if this decision is yours to make x  I need to get my life back! ... View more

I had a 3 week delay due to my ocotype test not having been requested due to the doctors not reading back through my notes! At surgery removal the tumour has shrunk as I was on tamoxifen for 10 weeks pre surgery!  The test came back intermediate and I had to decide myself whether to have chemo!  glad this is nearly over! ... View more

I had surgery on 21st April…. Started radiotherapy on Monday! 13 weeks after surgery.  Covid delays are real! ... View more

So it’s my decision to have chemo or not???    I’ve come back as intermediate in the prosignia score…. What another horrible part of the cancer crap. I believe I am rejecting chemo in favour of radiotherapy, 10 years of Tamoxifen  and 5 years of mammograms…. Hopefully this is the correct choice xx ... View more

So has my consultant appointment to get my Prosignia results…. And I fall into the intermediate category: 41 !!! Aaaargh I have to decide myself if I want chemo?  Who wants chemo?  ... View more

Thank you! You are the first person who has told me it’s been done quickly!  ... View more

Thanks Evie,    Spoke to the BCN yesterday she wasn’t too useful but is lovely! She sent a info leaflet on the testing through…. Not very detailed though!  she did say I need to have radiotherapy within 12 weeks of surgery so not to panic.  Today I also received my appointment for my radiotherapy planning session…9th July which is another 3 weeks away…. surgery was 21st April…so they have until 14th July to start the radio or isn’t not worth it????? Is it normally started that quickly from the planning?  I don’t get this anymore.  ... View more

I have left a message with my BCN in the hope of a call back today x    I feel like I’m annoying then unnecessarily but I have taken today off work as I’m very stressed and confused from yesterday!  I’m grade 2 and all removed at surgery with no spread so didn’t have any indication of chemo until yesterday!  Just more limbo….5 months so far! ... View more

This is what I did, I’ll delete and try again! ... View more

  I have looked into this app as I’m needing some guidance…but it asks for an access code? You need to get it from an access code? See attached image.  ... View more

Thank you so much…. You have made me cry for the first time today xxx  It’s such a strange experience and starting to think I made it all up!   ... View more

I came on here looking for anyone else with this weird shooting pain and found your post.I had a lumpectomy And SLNB in April and the last 2 days I have had real pain in the breast. Feels like someone is sticking needles into the area where the cancer was. This is new and not fun at all!  Hope your pain is calming xx ... View more

Hi Treas,  I’m 3 weeks post surgery for WLE and SLNB and am still having pain. I don’t get my results for another 11 days and am not going back to work ( as a teacher)  until as l at least then. I’m really struggling with how this is impacting me.  I hope you get good results xx ... View more

Nothing is definite….  I’m glad you are getting your pathway this Friday, good luck.  I took the steri strips of On Saturday…. Wow that sting’s 😣 I had a doughnut incision and although I think it’s healing ok it’s so sensitive that I’m having issues wearing my bra. A friend, last night, recommended breast feeding pads so I’m going to try those!!  How are you healing?  ... View more

I spoke to my BC nurse last week, she said it’s normally 3/4 weeks so probably just when an appointment was available! Just send everything is taking ages! 10 weeks from diagnosis to surgery…5 weeks for results….. who knows when I’ll get my radiotherapy??    Started having  breast pain over the last couple is days…hopefully it’s all starting to internally heal x ... View more

Hi Daised,  I am so glad you are being treated so quickly I was diagnosed at the end of Jan with HER -Oestrogen + 25mm IDC and after being put on tamoxifen I had my surgery 2 weeks ago.  I had a WLE with SLNB…as has been said the scar from the lymph node removal hurts!!! Much more than anticipated. Only in the last couple of days have I had any issues with the breast and it’s now shooting pain’s presumably as it’s healing.  I am a teacher and signed off for another week then may consider a phased return.I was advised not to go back to work, from my consultant, until my results but they are not coming until 25th May; nearly 5 weeks post op. I’m hoping to get away with radiotherapy which will again mean an impact on my work…. Incredibly frustrating but I will be better for healing fully before trying to go back to full time.    Only my story…we all heal differently…but wanted to share from a 2 week post op status!    Take care…you are in a whirlwind of tests and treatment…. Be kind to yourself x ... View more

Good afternoon! How are you doing? I'm frustrated today.  Got a telephone appointment through the post for my follow-up...24th May! That's nearly 5 weeks post surgery?  I didn't get any info after surgery as to what they found it removed ahs feel a little confused.   The muscle near my arm pit is not happy although I think the scar from the SNB is healing well... just too scared to remove the plaster on my breast! Are you coping after your drain removal?   ... View more