Breast Cancer Now Forum

@Louise65  @Flower123  @Impatience  @simplyeve  @GonnaGetThruThis  @Mum2boys  @Heels to walking boots  @BabyBunting  and everyone else, Just wanted to wish you all a very happy new year! Yesterday was the anniversary of the day I found out I had cancer (one of the worst days of my life), and I spent it in London with my sister-in-law, my daughter and nieces. It felt wonderful! I am so grateful to be where I am now, having had so much treatment, and I am feeling cautiously optimistic about the future.  Big hugs to you all and I hope we keep in touch next year. Love, Siân xxx ... View more

Dear all, I’m sorry I haven’t been on for a while but wanted to wish you all a wonderful Christmas. You are all amazing and I take such comfort from your posts. Like @Teagold said, I wish we all lived closer so we could go out for a drink. I wish you all the very best for a much happier 2022! Love, Siân xxx ... View more

@Flower123 I can understand why your head was all over the place. I didn’t have radiotherapy so can’t help on that front, but sending you gentle hugs. xxx ... View more

@Louise65I feel like that too from time to time. It just seems to hit me and then can last for a few days. It all still feels very raw and I know it will take time to move on. I think Covid has made it worse for me as I get anxiety around going out at the moment. I have had some lovely times lately with friends but sometimes forget what I’ve been through, overdo it physically and then have a bit of a crash. As Yvonne says, do keep in touch on here. Love, Siân xxx ... View more

@simplyeve I’m so pleased to hear it is going smoothly and congratulations on being halfway through your injections. I will have my 9th one on 30/12. I don’t find them bad at all and have virtually no side effects, which is a relief. The portacath removal went well and it is a great relief to have it out! I am actually having a fourth dose of Pfizer as I had my first two doses back in Jan and April, my third one on 24/09 and so am now due my fourth!  Love, Siân 😘   ... View more

@Mum2boys I will keep everything crossed for you with regard to your scans. My sleep suffers whenever I am worried and I found that Nytol helped me. It is herbal and less strong than sleeping pills but it just helped me get off to sleep and I also took a tsp of it if I woke up. I used the Sleep and Calm Elixir. It was not addictive and I stopped taking it as soon as I stopped chemo. My sleep has been pretty good since. Just in case you need something to help! Sending lots of hugs. Siân xxx ... View more

Congratulations @GonnaGetThruThis ! I am so very pleased for you. It will be a good Christmas this year!  I continue to have my Herceptin and Perjeta injections and have virtually no reaction to them, which is great. I am having my portacath out on Thursday. I’m feeling really good at the moment, so hoping that continues.  Sending love to you all. xxx ... View more

@GonnaGetThruThis So pleased to hear it went well. I too had a long wait for mine and my op was from 2 till 6pm. I took 2 hours to come round so it was 8pm before I saw the surgeon who was very ready to go home by that point! I wish you the best recovery possible. I did the exercises they recommend and have had no ongoing issues with full movement in my arm (I had mastectomy and full lymph node clearance).  I hope everyone is well. I have nearly completed the Couch to 5K (one more run to go!) which has given me a real boost and I have the time and inclination to cook for myself now so am focusing on eating really well to feel good and I really notice the difference. Love to you all. xxx ... View more

Dear @Heels to walking boots , I am glad to hear all is well and I am sure it will be nice to have a good Christmas before your op.  My 6 month check went well and the surgeon was really pleased. There is no evidence of any recurrence too, which was nice to hear. I am feeling really pretty good at the moment and have upped my exercise which is making me feel good (although not today due to the horrible weather - I’m lying down next to the fire!).  I will be starting hormone therapy at some point but I am having an op to remove my ovaries so it may be after that as Tamoxifen can cause DVT which apparently is risky for an operation particularly in the pelvic area! You learn something new every day.  Wishing you and everyone else all the best. I hope you are all doing well. Love, Siân xxx ... View more

@Flower123 I’m so pleased to hear your op went ahead in the end and wish you all the very best for your results. I hope you have some nice distractions to take your mind off the wait! @GonnaGetThruThis My thoughts will be with you next week. I found the operation quite doable. I found it hard not doing much physically after it but got used to that. I am seeing my surgeon on Wednesday for my 6 month post-op check. Can’t believe that!  I have been feeling really good lately and my Phesgo injection didn’t give me any side effects, so I am feeling happy for now. xxx ... View more

@Flower123 Did you have your op in the end? If so, I hope it went smoothly.  @simplyeve I hope your radiotherapy continues to be ok. I was pleased to find that I didn’t have many side effects from the Phesgo. I had had 6 of them already, but always with chemo on the same day, so this was my first without the chemo. I have had looser bowel movements than usual, but apart from that have felt great. I am very glad as I have to continue with them until the end of June.  Everyone I know seems to have Covid at the moment so I’m being a bit more careful than usual, but it feels like it will only be a matter of time before I catch it! Sending love and hugs to you all. xxxxx   ... View more

@louby_lou69 I didn’t have Paclitaxel - I had Docetaxel and Carboplatin. I personally found them easier than EC, but I do know that everyone is different so it is very hard to predict. Generally, I have heard more favourable reports about Paclitaxel than about Docetaxel or EC, so hoping you’ll not find it too bad. xxx ... View more

@simplyeve I’m very glad to hear the radiotherapy is going ok and hope that that is still the case this week. This Friday, I have my first Phesgo injection without the chemo so that will be very interesting! xxx ... View more

@Flower123 So sorry to hear about your cancelled op. Will it be going ahead this Friday? xxx ... View more

Dear @Rainbow70 , so sorry for your loss. It must be a big shock if it was sudden. Sending huge hugs to you. xxxx ... View more

Huge hugs to you too, Jennifer. That sounds stressful. Keeping everything crossed that the op can go ahead.  I’m recovering from chemo slowly but surely but had a setback yesterday when a shard of glass went through my tongue! It was in a dish of food my mum had prepared for me and must have come off the glass dish she used. It was such a shock! It did stop bleeding eventually but felt very sore overnight so I took paracetamol. The nurse said tongues mend really quickly so hopefully today will be ok. Not what I needed on top of everything else. Nowhere near as bad as your problems, though, @GonnaGetThruThis and @Flower123 . Sending you both love and best wishes for the coming days. xxx ... View more

Woohoo! Congratulations @JessicaB! So pleased for you - a huge achievement. I hope your side effects wear off quickly and, as you say, it is the last time! 😘   ... View more

@GonnaGetThruThis Oh no! That is so annoying for you. Covid seems to be more around than ever and for us, that is particularly frustrating. Do you feel ok? Sending big hugs 😘 🤗   ... View more

@simplyeve I am feeling pretty good too, thanks. Definitely tired but turning the corner after my last chemo. I’m so glad to hear you are feeling better too. I also asked about a scan and I was told that I won’t have one as my cancer is ‘too early stage’ so I felt a bit reassured after that. I know what you mean about being up and down emotionally and not quite knowing how to feel. I think that it will slowly sink in that I am through the worst and regaining some sense of physical well-being will be good. I should be starting on tamoxifen soon - not quite sure when actually - and hoping there won’t be side effects. If there are, I am told there will  be other options such as anastrazole or letrozole if I have my ovaries removed (something which I will probably be having done soon as I have a large long-standing ovarian cyst).  I have actually signed up to the Breast Cancer Now Moving Forward course as I feel like it’s time to think about that now, given that I will be receiving the Phesgo injections until July next year but as the side effects should be less, I’ll hopefully be able to return to a bit more of a normal life, whatever that is! Sending lots of love to you and look forward to keeping in touch as we continue with our treatment. xxx ... View more

@simplyeve Dear Yvonne, it is so good to have your news but I’m sorry to hear that you had a hard time after your last chemo. I hope and pray that things will be easier for your from now on. xxx ... View more