I’m 47. I was diagnosed in Feb 2020 with DCIS 35mm Grade 2. HER2 negative and ER 7/8. Had a lumpectomy and 5 nodes removed. 1 had a 8mm metastasis. Due to family history I decided to opt for chemotherapy. Had a complicated chemo journey as I had bad reaction to docetaxel and then an allergy to replacement paclitaxel. Then did 4 weeks (20) of radiotherapy sessions. Have the joys of tamoxifen for 10 years. Once my treatment was done I hit a real downer. I felt alone and lost. Thinking about the future just filled me with fear. The fact I lost my Mum to metastatic cancer in her brain in 2018, following breast cancer 17 years previously, I knew how things could turn out. I’ve just had my first mammogram on Monday this week and was surprised that it was literally in for the scan and out. I thought it would be the one stop shop like when I had my diagnosis. I feel short changed. Now waiting 2-3 weeks for results. The wait is excruciating. The other thing I don’t understand is why I’m not having an MRI? I was told that my tumour was not visible on my mammogram due to my breast density. So why should I feel reassured by having a mammogram. I’m not! I’ve spoken to the consultant when I had a checkup 6 months post lumpectomy but didn’t get a clear answer. I’m going to keep asking and will go privately if I have to as I can’t bear the responsibility being solely on me to find some lump or bump. Sorry for the long rant but it feels good to share.
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