Breast Cancer Now Forum

Hi Allypal As well as this site I have found a fantastic Facebook group called make2ndscount and this kind of question comes up all the time.  you can join as a family member if you want to.  without them I would be be lost. I ask any question and they come back within seconds with side effects, tips and lots of reassurance. One lady posted yesterday she had been on treatment for 9 years ! Which is so what we want to hear.  This site is good but it’s not as instant. I use BCN zoom sessions which are brilliant and they have a Tuesday chat which again is great.  I’ve heard cape is good and very doable. take care  cathy ... View more

Hi Joyce  Ive been on palbo and Letrozole for nearly a year now.  Insurewith have just started taking on new clients again and they do insure us.I’m  off to France in May. Unfortunately I have no Maggies or groups that meet her on Anglesey but have just found a lady about 45 mins away so will hopefully meet up soon. take care  cathy ... View more

Hi Joyce i agree terribly lonely, I don’t see anyone unless it’s the bloods later every two months. My palbociclib is sent through the post and the palbo nurse phones every two months. the swimming I have been told not to do - too many bugs in swimming pools and so I go in the sea which although cold it’s so amazing after and good got the soul. I feel worse on my week off and am now on omeprazole for the reflux and indigestion. take care cathy ... View more

Hi insurewith have now started taking new customers again.   ... View more

Hi my hair has thinned a little and I have it dyed. Going to the hairdresser is a treat and I would want to give it up. hope that helps cathy ... View more

hi Joyce, yes very lonely. My chemo gets posted to me and I don’t see anyone unless it’s the postman or I go to the local shop. I wish there was a Maggies or somewhere to meet up. I do zoom with Marion but it’s not the same as talking in the flesh.  Hopefully things will get better be we can meet up safely  take care cathy     ... View more

Hi Emily I have a small beach about 4 miles away. I went for a swim two days ago just hubby and me. I just floated and looked up to the sky. It was so peaceful. Cold when you get in but then you seem to warm up. Ive been on palbo since March and it’s doable. I get fatigue not tired just not being able to do the things I used to, including work. I sometimes on my third week get headaches but I get up as soon as they start and have something to eat. I find my hands and my feet hurt and my elbow joints. Nails are like paper and ridged. I take magnesium and it really helps with the aching. I ran out at Christmas and last night my legs were aching a lot. So off to Holland and Barrett today.  I know some people get different side effects, I don’t get nauseous.  With me the 4th week when you have a break is normally the worse when you feel bleh but then you start again. My hair is fine hasn’t really thinned but have only been on it 9 months as I had covid and had to stop taking the palbo. hope this helps  cathy    ... View more

Hi my oncologist said no swimming in indoor swimming pools as the risk of infection is high.  I go outdoor swimming in the sea in a wetsuit and it truly is amazing.  (I'm on Letrozole and palbociclib ) good luck  cathy ... View more

Hi I’m on Palbo and Letrozole since March this year and yes I’ve had mix up on meds not sending. My bloods are now every two months and apparently my scans are now every 6 months. I get a phone call never at the time it was supposed to be and I don’t mind that so much as I know they are busy. But she doesn’t always seem to get the facts straight and I think she’s just too stretched. Without make2ndscount on fb I would be very lonely as there are no support groups or places like Maggies anywhere near me.  take care  Cathy  ... View more

I’m not surprised you’re a wreck, you can talk to the ladies here at BCN, I found they listened and let me cry and I did feel better after talking to them.  I also have been prescribed Diazapan when I was initially told by my Dr as she said you might need something to help you for awhile. sending love  cathy ... View more

Hi Butterfly I have liver mets and have been on Palbociclib since March and have had significant shrinkage. Side effects for me have been minimal. Can’t help with the fluvesant sorry as I’m on Letrozole.   take care cathy ... View more

Hi Noz I was diagnosed with liver mets I’m March I had quite a lot of them. im on palbociclib and Letrozole and there has been significant shrinkage and hardly any there after 4 months treatment, hope this gives you hope  cathy xx ... View more

O my heart goes out to you, so brave to go on your own for a start off. NO ONE should have to go through what you went  through. I am disgusted by the way you have been treated.  I hope it’s a one off, but even so, what you are going through, she should be more empathic. Anyway hope you get the Palbo soon I’m on Letrozole aswell as palbo. All women react differently to these two, but a common side effect is fatigue and menopause systems.  This is a great site and there are FB groups aswell if you need them. Take care and lots of hugs  Cathy  ... View more

Hi 4748 Thats fabulous news, just what we want to hear, thank you x ... View more

Hi I to had lots of cancerous lumps under my armpit. I found it in March By my first scan in June they had all mostly disappeared I’m on Palbo and Letrozole.  Hope this helps  Cathy x ... View more

Hi I found it difficult to get a quote. A lot of people were saying try insurewith but they are not taking on anymore clients. I got a quote from Goodtogo insurance for a single trip to France around £280 they wouldn’t cover me for a year.  Hope you get covered  cathy ... View more

Hi Mel I was in yours shoes in March and the first thing I did was google - so Don’t. The information is misleading and frightening. Here you will get support and the truth. Ask to go on the Tuesday chat, which is great as you can chat with others in the same boat. like yourself I have it in my liver and I thought it was a death sentence but it isn’t the liver is an amazing organ and can still function very well with the cancer. My first scan in June (started palbociclib and letrozole in March) showed considerable shrinkage intact they had trouble finding it so there is hope. take care and please ask if you need any help or reassurance  Cathy  ... View more

Hi Michelle I’m on the same as you, I get the odd feeling sick, lots of headaches, and joint pain, but I make myself eat - bananas are good and I drink gallons of water.  I also eat trail mix and nibble throughout the day. I find if I stay in bed I feel worse so crawl out feeling very sorry for myself and make a cup of tea - then go into my garden which makes me feel better. Rest when you can though, as I think I can do it but my body says please stop. I gave been on this combination since March and and have had considerable shrinkage so it works very well. take care cathy ... View more

Hi Michy1 When diagnosed with mets in liver, I asked oncologist was there anything I could do, diet, no drinking and he said keep drinking and there is nothing special or dietary that I could do.  so I have a wine or two quite often or a gin.   hope this helps cathy x ... View more

hi Lyn have given your email to Sue for the zoom session  take care  Cathy x ... View more